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,

I teach baby sign language to hearing infants and

toddlers. I currently have two children in one of my

classes who have downs syndrome. One child is four

years old and has a very very limited vocabulary. He

can be very aggressive, his mother has told me, when

he is frustrated. Not being able to communicate wants

and needs would be frustrating to anyone. This same

child now has 100+ signs in American Sign Language and

is making great improvements. The other little girl

in my class with downs is 18 months old and currently

has about 35 signs she uses on a regular basis. She

does not speak verbally at all. Being able to

communicate with her parents has made all the

difference in her family.

This is just a suggestion - but try signing with him.

Little by little it may reduce his frustration and

aggression if he can communicate with you.

You are in my prayers!

April Eisele

Colorado, USA

wife to Jon

Mommy to three little blessings from Korea:

Mira (4)

Misha (2)

Micah (3 tomorrow!) - waiting to come home! :)

--- chatthisway <mulvaneyclan@...> wrote:

>

> My son age 6 is non-verbal. He is 50 lbs

> super man strong

> and is starting to get very agressive with my

> daughter, but mostly

> me.

> He pulls hair, bites, pinches, and scratches at my

> face. He seems to

> be very loving most of the time but then goes into

> these rages. Some

> times he is happy when he starts doing thiese things

> and thinks it's

> funny. I feel horrible, but I sometimes feel very

> negative and have

> feelings of violence wanting to come out at him when

> he hurts me. I

> know it is normal for me to feel defensive when I am

> being hurt, but

> I just need some help to figure out how to deal with

> his agressive

> behavior. Help!!!!!!!!!!!!!!!!!

>

>

> a

> concerned mother

>

>

>

>

>

>

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Guest guest

Hi,

I was just wondering where you live and whether or not you are receiving

any help in the way of early intervention services, or speech/language

pathology?

My work in the past has been in doing behavioral intervention with

children who have Autistic Characteristics and severe behavioral issues

many of which (but certainly not all) stem from frustration in not being

able to communicate. It would be my first thought that it would be

extremely frustrating for your little peanut, and difficult for any

parent to fully understand how frustrating it is for you to deal with

the behaviors.

I guess my only advice is that if you are not getting help from someone

with experience in both speech pathology, and behavioral intervention,

you might need to seek that out. There are just so many strategies in

dealing with aggressive behavior, but the first step we ever did with

any child is to assess the reason behind the behavior and deal with that

problem first(while also making sure the child/siblings/family are

safe).

I wish you all the best,

Trish

blepharophimosis I need help!!!

My son age 6 is non-verbal. He is 50 lbs super man strong and

is starting to get very agressive with my daughter, but mostly me.

He pulls hair, bites, pinches, and scratches at my face. He seems to

be very loving most of the time but then goes into these rages. Some

times he is happy when he starts doing thiese things and thinks it's

funny. I feel horrible, but I sometimes feel very negative and have

feelings of violence wanting to come out at him when he hurts me. I

know it is normal for me to feel defensive when I am being hurt, but I

just need some help to figure out how to deal with his agressive

behavior. Help!!!!!!!!!!!!!!!!!

a concerned mother

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Guest guest

Thanks Trish,

I'm from Washington state. is getting speech through the

public school, but I have never heard of the behavioral

intervention. Who would I call to get those services?

> Hi,

>

> I was just wondering where you live and whether or not you are

receiving

> any help in the way of early intervention services, or

speech/language

> pathology?

> My work in the past has been in doing behavioral intervention with

> children who have Autistic Characteristics and severe behavioral

issues

> many of which (but certainly not all) stem from frustration in not

being

> able to communicate. It would be my first thought that it would be

> extremely frustrating for your little peanut, and difficult for any

> parent to fully understand how frustrating it is for you to deal

with

> the behaviors.

> I guess my only advice is that if you are not getting help from

someone

> with experience in both speech pathology, and behavioral

intervention,

> you might need to seek that out. There are just so many

strategies in

> dealing with aggressive behavior, but the first step we ever did

with

> any child is to assess the reason behind the behavior and deal

with that

> problem first(while also making sure the child/siblings/family are

> safe).

>

> I wish you all the best,

> Trish

>

>

>

> blepharophimosis I need help!!!

>

>

>

>

> My son age 6 is non-verbal. He is 50 lbs super man strong

and

> is starting to get very agressive with my daughter, but mostly me.

> He pulls hair, bites, pinches, and scratches at my face. He seems

to

> be very loving most of the time but then goes into these rages.

Some

> times he is happy when he starts doing thiese things and thinks

it's

> funny. I feel horrible, but I sometimes feel very negative and

have

> feelings of violence wanting to come out at him when he hurts me.

I

> know it is normal for me to feel defensive when I am being hurt,

but I

> just need some help to figure out how to deal with his agressive

> behavior. Help!!!!!!!!!!!!!!!!!

>

>

> a concerned mother

>

>

>

>

>

>

>

>

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Guest guest

Hi

Here in NY we of something called the committee on Special Education that

would be a good place to start for help with behavior issues. As others have

mentioned I have come across so many children that have aggressive issues

when they don't have an adequate mode of conversation and are frusterated. I

have seen this behavior diminish with aquired communication skills.

(Aedan's mom)

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Guest guest

Start a point system or star system. When he gets a certain amount of stars he can get something he wants, an extra hour tv or something like that. Or better yet, he is old enough, put him in football or soccer. Sports are a good way for boys to let go of their energy and just be a boy. chatthisway <mulvaneyclan@...> wrote:

My son age 6 is non-verbal. He is 50 lbs super man strongand is starting to get very agressive with my daughter, but mostlyme. He pulls hair, bites, pinches, and scratches at my face. He seems to be very loving most of the time but then goes into these rages. Some times he is happy when he starts doing thiese things and thinks it's funny. I feel horrible, but I sometimes feel very negative and have feelings of violence wanting to come out at him when he hurts me. I know it is normal for me to feel defensive when I am being hurt, butI just need some help to figure out how to deal with his agressive behavior.

Help!!!!!!!!!!!!!!!!! a concerned mother

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Guest guest

Hi ,

I really am not too sure where you would access these services in the

U.S. I am from Canada, and they are referred by the pediatrician or the

school system (if it has not already been recommended by then) then the

child is assessed and the government steps in with financial funding to

provide the services. Maybe a good place to start might be in asking

around with your Dr. or in the school system?

All the best,

Trish

blepharophimosis I need help!!!

>

>

>

>

> My son age 6 is non-verbal. He is 50 lbs super man strong

and

> is starting to get very agressive with my daughter, but mostly me.

> He pulls hair, bites, pinches, and scratches at my face. He seems

to

> be very loving most of the time but then goes into these rages.

Some

> times he is happy when he starts doing thiese things and thinks

it's

> funny. I feel horrible, but I sometimes feel very negative and

have

> feelings of violence wanting to come out at him when he hurts me.

I

> know it is normal for me to feel defensive when I am being hurt,

but I

> just need some help to figure out how to deal with his agressive

> behavior. Help!!!!!!!!!!!!!!!!!

>

>

> a concerned mother

>

>

>

>

>

>

>

>

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Guest guest

,

Along with s bleph has other concerns that are not

related to the bleph. Being non verbal is not a symptom of Bleph as

you know, but he also has significant developmental delays that make

it hard for me to determine if he understands a star chart at all.

My daughter would benefit from your wonderful idea. I will give it

a shot with to see if it is something that he will compehend.

Thanks

> My son age 6 is non-verbal. He is 50 lbs super man strong

> and is starting to get very agressive with my daughter, but mostly

> me.

> He pulls hair, bites, pinches, and scratches at my face. He seems

to

> be very loving most of the time but then goes into these rages.

Some

> times he is happy when he starts doing thiese things and thinks

it's

> funny. I feel horrible, but I sometimes feel very negative and

have

> feelings of violence wanting to come out at him when he hurts me.

I

> know it is normal for me to feel defensive when I am being hurt,

but

> I just need some help to figure out how to deal with his agressive

> behavior. Help!!!!!!!!!!!!!!!!!

>

>

> a concerned mother

>

>

>

>

>

>

>

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Guest guest

Thanks Trish!

> > Hi,

> >

> > I was just wondering where you live and whether or not you are

> receiving

> > any help in the way of early intervention services, or

> speech/language

> > pathology?

> > My work in the past has been in doing behavioral intervention

with

> > children who have Autistic Characteristics and severe behavioral

> issues

> > many of which (but certainly not all) stem from frustration in

not

> being

> > able to communicate. It would be my first thought that it would

be

> > extremely frustrating for your little peanut, and difficult for

any

> > parent to fully understand how frustrating it is for you to deal

> with

> > the behaviors.

> > I guess my only advice is that if you are not getting help from

> someone

> > with experience in both speech pathology, and behavioral

> intervention,

> > you might need to seek that out. There are just so many

> strategies in

> > dealing with aggressive behavior, but the first step we ever did

> with

> > any child is to assess the reason behind the behavior and deal

> with that

> > problem first(while also making sure the child/siblings/family

are

> > safe).

> >

> > I wish you all the best,

> > Trish

> >

> >

> >

> > blepharophimosis I need help!!!

> >

> >

> >

> >

> > My son age 6 is non-verbal. He is 50 lbs super man

strong

> and

> > is starting to get very agressive with my daughter, but mostly

me.

> > He pulls hair, bites, pinches, and scratches at my face. He

seems

> to

> > be very loving most of the time but then goes into these rages.

> Some

> > times he is happy when he starts doing thiese things and thinks

> it's

> > funny. I feel horrible, but I sometimes feel very negative and

> have

> > feelings of violence wanting to come out at him when he hurts me.

> I

> > know it is normal for me to feel defensive when I am being hurt,

> but I

> > just need some help to figure out how to deal with his agressive

> > behavior. Help!!!!!!!!!!!!!!!!!

> >

> >

> > a concerned mother

> >

> >

> >

> >

> >

> >

> >

> >

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Guest guest

:

Our son is 9 and non-verbal with occasional behvior issues. I second

the suggestion to try sign language. We use signs at home at a two

years old's vocabulary level and our son has picked up several. He has

fine motor issues so its his version of a sign. We have a dictionary we

use to look up common words and we have a CD program from Michigan

State that costs about $30. You can see a sample at:

commtechlab.msu.edu/sites/aslweb/browser.htm

At school he should be exposed to PECS (picture exchange system ?)

PECS is good but requires more structure so you have the right pictures

available.

Try them both but it may take a while.

On the behavior side you want to learn about " positive behavior

supports " . They should know about this at school. You can learn more at

websites like www.pbis.org/main.htm or www.apbs.org/main.htm

Good luck, be patient and make sure to take a break for yourself.

Joe

>

> I really appreciate all your helpful hints. Kennth went thru EI and

> then public preschool. He is noe in special kindergarten. I think

> my next step would be to talk to his school councelor to see if she

> knows and therapists who help with these sor of things.

>

> Thanks

>

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  • 1 year later...

We never recommend using the PS that put them in....the risk is too great that the explant will not be done correctly due to their bias.

As a case in point, my own implanting plastic surgeon offered to remove mine for free. He did not believe that they were making me ill, but because I was desperate he made an offer. But he would have just gone in and yanked them out, leaving the residual capsule. I had asked about the en bloc removal, but he said he only did that for silicone gel and that I didn't need that kind of removal. So, you see, he would have taken them out, but would have done a chop job that left me sick, in my opinion.

Not all implanting surgeons are like that, but as a general rule, we do not recommend using the same PS that put them in to take them out.

Explant must be done correctly for the best chance at healing. Finding the correct surgeon for explant usually takes a bit of research!

Patty

Re: I need help!!!

The PS that put them in should be willing to remove them at a lower cost...have you asked him ?

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Oh Gosh, there are so many women in this same position. If there is one thing I can say I've heard over and over again when women find this group, it's "HELP, I have no money for explant!"

You are definitely not alone there.

You are going to have to put your creative cap on for this one and find a way. All women usually do...many max out credit cards, dig into 401(K) accounts, borrow from family or friends, sell assets, take out home equity loans, WHATEVER it takes....you will find a way.

When your health is at stake, you find a way.

Where are you? We know of a few doctors around the country who do proper explant, but it helps to know where you are.

Patty

I need help!!!

I had implants put in on June 9,2006. Since then I've had breathing problems, and I have been diagnosed as having panic attacks. I want them out soo bad, but I can't afford it. Do you know of any good doctors that do explanting at a reduced price? I am desperate to have them removed!!!

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  • 1 year later...

Stop giving her zinc. Stop anything new that was started in the last

week or two. What do you give for yeast control? I've heard laughing

hysterically was yeast related.

a

>

> She is out of control on this round of chelation. She is seeing people

> that aren't there. She is laughing hilariously. She is racing a mile

> an minute. All the other rounds were pretty ok. Things started going

> bonkers last week (while not chelating) Its when I started zinc. It

> was 15mg. and she went crazy. She started to come down a little and

> then I started a round and the round is awful. There was no way I

> could continue. She couldnt catch her breath. I gave her charcoal to

> get whatever I could out of her system. Oh my gosh,it is painful to

> watch her. Any advice please!!!

>

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i have been giving threelac. 2 packets a day.

On Aug 30, 2008, at 10:59 AM, panderson14me wrote:

> Stop giving her zinc. Stop anything new that was started in the last

> week or two. What do you give for yeast control? I've heard laughing

> hysterically was yeast related.

>

> a

>

>

> >

> > She is out of control on this round of chelation. She is seeing

> people

> > that aren't there. She is laughing hilariously. She is racing a mile

> > an minute. All the other rounds were pretty ok. Things started going

> > bonkers last week (while not chelating) Its when I started zinc. It

> > was 15mg. and she went crazy. She started to come down a little and

> > then I started a round and the round is awful. There was no way I

> > could continue. She couldnt catch her breath. I gave her charcoal to

> > get whatever I could out of her system. Oh my gosh,it is painful to

> > watch her. Any advice please!!!

> >

>

>

>

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Generally, kids need something to control yeast, like an antifungal,

along with a probiotic so not to get an overgrowth of bad bacteria.

When did you start the threelac?

>

> > Stop giving her zinc. Stop anything new that was started in the last

> > week or two. What do you give for yeast control? I've heard laughing

> > hysterically was yeast related.

> >

> > a

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I give threelac every time she does a round.

she is also on diflucan.

i get a bit confused at times as to what is a die-off reaction and

what is just a really toxic reaction to something.

my gut instinct just told me that something was really wrong. i don't

know <sigh>

when i see her start to kind of gasp for air a bit,... i get worried

that i am hurting her. ugh!!!!

On Aug 30, 2008, at 8:16 PM, panderson14me wrote:

> Generally, kids need something to control yeast, like an antifungal,

> along with a probiotic so not to get an overgrowth of bad bacteria.

>

> When did you start the threelac?

>

>

> >

> > > Stop giving her zinc. Stop anything new that was started in the

> last

> > > week or two. What do you give for yeast control? I've heard

> laughing

> > > hysterically was yeast related.

> > >

> > > a

>

>

>

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Laughing hysterically has always been yeast flare-ups for my son.

Have you tried GSE to control yeast? How far apart are you giving the

probiotics from diflucan?

Anger bursts and lots of crying were some of the die-off reactions

for my son.

Madhuri

> > >

> > > > Stop giving her zinc. Stop anything new that was started in

the

> > last

> > > > week or two. What do you give for yeast control? I've heard

> > laughing

> > > > hysterically was yeast related.

> > > >

> > > > a

> >

> >

> >

>

>

>

>

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I tried GSE in the past.

I give the Diflucan pretty close to the threelac. Is this wrong?

There were no anger burst, just running out the door, breathing real

heavy and laughting. She kept falling and getting hurt. She kept

asking me to make it stop. It seemed like she was on speed. When the

G.I. doctor did a fructose test, he said he never saw the stuff run

anyones body as quickly as it did my daughters. He treated her for

bacteria, and then sent me to an alternative G.I. doctor who put her

on Diflucan for yeast.

On Aug 30, 2008, at 10:07 PM, anumandm wrote:

> Laughing hysterically has always been yeast flare-ups for my son.

> Have you tried GSE to control yeast? How far apart are you giving the

> probiotics from diflucan?

>

> Anger bursts and lots of crying were some of the die-off reactions

> for my son.

>

> Madhuri

>

>

> > > >

> > > > > Stop giving her zinc. Stop anything new that was started in

> the

> > > last

> > > > > week or two. What do you give for yeast control? I've heard

> > > laughing

> > > > > hysterically was yeast related.

> > > > >

> > > > > a

> > >

> > >

> > >

> >

> >

> >

> >

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