Re: Re: SO SAD --How is she doing after surgery?

December 17, 2004

Hi ,

You are doing a great job with the positive

reinforcement with . Yes, it is quite heart

breaking to hear her say she doesn't like her eyes,

but advise her that this is only a temporary

situation. Maybe get her more involved with the

massaging to help fade them away. Be open and honest

and allow her to express her feelings.

And most important, you have to believe that she will

be fine. Kids live by example so continue to show her

that positive attitude.

Time heals all wounds....with a little help with of a

massage, this will past soon.

Sending you a cyber-hug too! :-)

Min

--- <Noonnaanay@...> wrote:

>

> Yesterday and I were in the bathroom and she

> asked me if she could look at her eyes in the

> mirror. I lifted her up so she can see them and she

> just stares and looks at herself kind of funny. I

> asked her do you like your eyes and she said no:( I

> asked her why, and she said she just didn't. I told

> her that I thought they were very pretty and took

> her around to the family and asked a couple of them

> what they thought. Ofcourse they all said she had

> pretty eyes. It just broke my heart though. Her

> scars are pretty bad. You can't see it very well in

> the pics but especially her left eye is prety jagged

> and bumpy looking. I know thats why she doesn't like

> them. And of course they are still real red. Grrr

> what do I do? I feel so helpless

>

> From: minnielin202 [mailto: minnielin202@...]

> blepharophimosis

> Date: Thu, 16 Dec 2004 20:53:37 -0000

> Subject: blepharophimosis Re: --How is she

> doing after surgery?

>

> <html><body>

>

> <tt>

>

> Hi ,

> Just looked at 's photo and she looks great!

> Yes, keep up with

> the massage and the cream.

>

> Please continue to post more pics! These are very

> helpful.

> Have a great Christmas!

> Min

>

>

> > > >

> > > > Just posted a couple of more pictures of

>

> > > about 1 week after

> > > > surgery.

> > > > Thanks

> > > >

> > >

> > > </tt>

> > >

> > >

> > > <tt>

> > >

December 17, 2004

I think this is good advice, keep telling her how this will go away and how wonderful she will be able to see and also how beautiful she is. I feel for you, I don't know how I will explain it to Lily when she has surgeries when she is older, right now it hurts me when she has stitches, scars, but she has no idea. It will be harder when she is older. She is now only 4 months.

You are doing wonderfully with her. Do you have BPES? I do, and I remember very little about my surgeries. I know that I was teased by kids and adults asked me strange questions, but it's more just a feeling, I don't remember specific times. My mom remembers but she hadn't told me much until my daughter was born. I do remember that I always felt very loved by my parents, and they made me believe that I was beautiful. You are doing the same for your little girl. Best wishes to you

Bethmin lin <minnielin202@...> wrote:

Hi ,You are doing a great job with the positivereinforcement with . Yes, it is quite heartbreaking to hear her say she doesn't like her eyes,but advise her that this is only a temporarysituation. Maybe get her more involved with themassaging to help fade them away. Be open and honestand allow her to express her feelings.And most important, you have to believe that she willbe fine. Kids live by example so continue to show herthat positive attitude.Time heals all wounds....with a little help with of amassage, this will past soon.Sending you a cyber-hug too! :-)Min--- wrote:> > > Yesterday and I were in the bathroom and she> asked me if she could look at her eyes in the> mirror. I lifted her up so she can see them

and she> just stares and looks at herself kind of funny. I> asked her do you like your eyes and she said no:( I> asked her why, and she said she just didn't. I told> her that I thought they were very pretty and took> her around to the family and asked a couple of them> what they thought. Ofcourse they all said she had> pretty eyes. It just broke my heart though. Her> scars are pretty bad. You can't see it very well in> the pics but especially her left eye is prety jagged> and bumpy looking. I know thats why she doesn't like> them. And of course they are still real red. Grrr> what do I do? I feel so helpless> > > > > > > From: minnielin202 [mailto: minnielin202@...]> blepharophimosis > Date: Thu, 16 Dec 2004 20:53:37

-0000> Subject: blepharophimosis Re: --How is she> doing after surgery?> > > > > > > > Hi ,> Just looked at 's photo and she looks great! > Yes, keep up with > the massage and the cream.> > Please continue to post more pics! These are very> helpful.> Have a great Christmas!> Min> > > > > > > > > > > Just posted a couple of more pictures of> > > > about 1 week after > > > > surgery.> > > > Thanks> > > > > > > > > > > > > > > > > > > > > > > > > > > >

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