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Dear Group

My Dauther nna is 8 months old and born with Blepharophimosis,

Ptosis, Epicanthus Inversus Syndrome . She will be having surgery at

Yale New Haven Childrens Hospital in April. The doctors tell me she

will need to have 3 surgery's. My husband also has this genetic

defect as well and his eyes look ok due to plastic surgery he had as

a child. My biggest concern is in conversation with with her doctor

he told me that thier really has not been much research done on this

Blepharophimosis, Ptosis, Epicanthus Inversus Syndrome . I find this

really hard to believe. I am looking for any information and support

we can find. I really do not want her to go through this surgery and

it not be a success. Below is all my information please feel free to

contact me in any way. I am really at my wits end and I could really

use some support.

Thank You

Carla Howell

CARLAHWLL@...

20 Jasmine Lane

Wolcott, CT 06716

203-879-9011

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