Guest guest Posted December 21, 2004 Report Share Posted December 21, 2004 Dear Group My Dauther nna is 8 months old and born with Blepharophimosis, Ptosis, Epicanthus Inversus Syndrome . She will be having surgery at Yale New Haven Childrens Hospital in April. The doctors tell me she will need to have 3 surgery's. My husband also has this genetic defect as well and his eyes look ok due to plastic surgery he had as a child. My biggest concern is in conversation with with her doctor he told me that thier really has not been much research done on this Blepharophimosis, Ptosis, Epicanthus Inversus Syndrome . I find this really hard to believe. I am looking for any information and support we can find. I really do not want her to go through this surgery and it not be a success. Below is all my information please feel free to contact me in any way. I am really at my wits end and I could really use some support. Thank You Carla Howell CARLAHWLL@... 20 Jasmine Lane Wolcott, CT 06716 203-879-9011 Quote Link to comment Share on other sites More sharing options...
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