Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 I've been reading the posts since my daughter was born in March 2005. She did not open her eyes at all until she was about a week old. We took her to a Pediatric Opth. and he didn't tell us much except that she had blepharophimosis which was a fancy word for small eye openings. I immediately went home and starting searching on the internet and have learned a lot since then. We took her back when she was 5mths and I went with a copy of an article on BPES and asked " Does she have this " . Of course he said yes, but he actually recommends no treatment until she is 12 or 13 yrs old. He basically said as long as she can learn to tilt her head back, which she can, she will be fine. As of now, her vision seems fine. She does open one eye more that the other. I'd like to get a second opinion and would be willing to take her anywhere there is a MD who specializes in BPES, or is more familiar with it. We live in East TN. Is there anyone in the group who has a MD in TN, KY, GA, NC, or SC? I have learned a lot from this group, read the posts almost every day. I appreciate your support you all have for each other. It is really difficult to deal with this some days. She is the first in our family. She is a beautiful little girl, so happy and developing fine. She is our little miracle as it took us 3 years to have her! I just want to do all that I can for her. Thanks a lot! Quote Link to comment Share on other sites More sharing options...
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