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Hi Everyone,

I have not written for awhile but thought I would share what

happened to me today. Earlier this year I went to a genetic

counsellor here in Canada and they arranged to have my blood sent to

Belgium for testing.

I was told there was only about a 70% chance that they could tell me

whether I was Type One or Type two. Well luckily enough they were

able to tell me.

It is with mixed emotions that I found out that I am Type Two (no

infertility problems). I have been married for almost 20 years and

only have one child, a 16 year old son with BPES. I have never been

on birth control and we have been through everything trying to have

another child including IVF. When I found out that there was a

chance our problems were caused by the BPES I was so excited

thinking, finally a reason for it. In the back of my mind I was

hoping to find out that I was Type One so there would be a reason

for the infertility but I was wrong, so I am back to square one

wondering, why?

On the other hand I could not be happier because if my son ever has

a daughter with BPES at least I feel better knowing that she will

not have the infertility issues to deal with, as they said if I am

Type Two then so is my son and that it cannot change as it is passed

on through the generations.

Anyway just thought I would share that as I have not heard from too

many people with results from the testing in Belgium.

Take care,

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