Re: Re: Poor result from sling surgery

[Guest guest]

Beth,

I'll save the name for future use.

Thanks.

Annette

--https://home.comcast.net/~agarrett0 0/

-------------- Original message -------------- I don't know if you consider DC too far away, but our surgeon is Dr. Gavaris, in Virginia and DC. >> Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette>

[Guest guest]

Yes, Dr. Katowitz is one of the top. We met with him. We ended up going with one of his colleagues Dr. in Utah, another senior member of the community. Also, we met with Dr. Collin in London. Dr. Collin went to school with Dr. and also recommended him to us, since we are in the US. Which made us feel more confident about our decision.

Pam

[Guest guest]

Beth,

Taken out of the context of our conversation, Dr. Sherman's comment may sound negative, but I didn't take it that way. I think he was trying to express that the kids can look better after surgery, but it is very difficult to get symetric results and they will never look 100% normal. Josh also had a severe case that restricted his vision. He can see now, but still tilts his head quite a bit, which is not the optimal outcome.

Annette

--https://home.comcast.net/~agarrett00/

-------------- Original message -------------- I am sorry to intrude but this comment from your doctor shocked me, "no one is ever happy with the outcome". That seems very negative from someone who is being entrusted with the well-being of a child. I also have to say, many people (including me) focus too much on what the young children look like. For some with mild BPES, it may only be an issue of cosmetics, but for others like me and my daughter, we couldn't see before surgery. >> Kim,> Who did you see in Atlanta? Dr. Sherman discussed Rowan's case generically. I knew who he was talking about, but he wouldn't give names of course. He did say that no one is ever happy with the outcome. It never looks great. We are limited now in who we can see because Josh is on Medicaid as a foster child. I may get to adopt him, in which case he can switch to Capital Health Plan and have more options.> > I think I'm working Saturday - FAMU homecoming, but I would like to get together with you.> > Annette> > --> https://home.comcast.net/~agarrett0 > 0/> > -------------- Original message -------------- > > Hi Annette:> > I've just now read through all my e-mails that accumulated for the last week and a half. Our situation is so similiar. Rowan saw Dr. Sherman on Tuesday and gave me another surgeon's name to consider seeing in AL (as well as the oculoplastic surgeon from PA who he says is the best in the country), although I think I may be done with "second" opinions at this point. I really liked the doctor we saw in Atlanta. Are you still interested in getting together soon? I'm available Saturday morning if you're free.> > Kim> > -------------- Original message -------------- > Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette> > > > > > >

[Guest guest]

Beth:

Dr. Sherman, a pediatric ophthalmologist, has made the same comment to us a couple of times, but he was actually relaying to us what oculoplastic surgeons have told him about outcomes of the sling surgery for BPES patients specifically. And frankly I told him it just wasn't true in most cases. Most parents care more that their children's vision is not compromised more than their appearance. I'm sure some surgeons come into contact with a few parents who may not be easily satisfied and might expect a perfect outcome. The parents and folks I've heard from on this web-site don't seem to fit that description!! In our case the surgeon, whom we really like, admits there's a undercorrection on the right eye, but there's some debate as to whether or not it's enough of an undercorrection to go back and re-do. I keep going back and forth and haven't decided yet whether or not we should have the right eyelid operated on again.

Kim

Tallahassee, FL

-------------- Original message --------------

Beth,

Taken out of the context of our conversation, Dr. Sherman's comment may sound negative, but I didn't take it that way. I think he was trying to express that the kids can look better after surgery, but it is very difficult to get symetric results and they will never look 100% normal. Josh also had a severe case that restricted his vision. He can see now, but still tilts his head quite a bit, which is not the optimal outcome.

Annette

--https://home.comcast.net/~agarrett00/

-------------- Original message -------------- I am sorry to intrude but this comment from your doctor shocked me, "no one is ever happy with the outcome". That seems very negative from someone who is being entrusted with the well-being of a child. I also have to say, many people (including me) focus too much on what the young children look like. For some with mild BPES, it may only be an issue of cosmetics, but for others like me and my daughter, we couldn't see before surgery. >> Kim,> Who did you see in Atlanta? Dr. Sherman discussed Rowan's case generically. I knew who he was talking about, but he wouldn't give names of course. He did say that no one is ever happy with the outcome. It never looks great. We are limited now in who we can see because Josh is on Medicaid as a foster child. I may get to adopt him, in which case he can switch to Capital Health Plan and have more options.> > I think I'm working Saturday - FAMU homecoming, but I would like to get together with you.> > Annette> > --> https://home.comcast.net/~agarrett0 > 0/> > -------------- Original message -------------- > > Hi Annette:> > I've just now read through all my e-mails that accumulated for the last week and a half. Our situation is so similiar. Rowan saw Dr. Sherman on Tuesday and gave me another surgeon's name to consider seeing in AL (as well as the oculoplastic surgeon from PA who he says is the best in the country), although I think I may be done with "second" opinions at this point. I really liked the doctor we saw in Atlanta. Are you still interested in getting together soon? I'm available Saturday morning if you're free.> > Kim> > -------------- Original message -------------- > Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette> > > > > > >

[Guest guest]

Dr. performed Gwyneth's initial sling surgery at 9 months, then the epicanthal fold at 3 years, then a touch up / clean up of the fold and a slight extension to the outside of the eyes at 3 3/4 years.

Gwyneth had a very severe case.

[Guest guest]

Dr. Katowitz is very well known, but I can only comment on Dr. , because he did my daughter's surgeries. We are very happy so far.

I also know Dr. Olitsky. I met him when my daughter was born in Buffalo, where he used to practice.

Pam

[Guest guest]

Dr. Katowitz out of Children's Hospital of Philly. Ring a bell? Would anyone concur that he is outstanding?

-------------- Original message -------------- Just curious, who is the surgeon in PA that he recommended to you, if you don't mind sharing.thank you>> Hi Annette:> > I've just now read through all my e-mails that accumulated for the last week and a half. Our situation is so similiar. Rowan saw Dr. Sherman on Tuesday and gave me another surgeon's name to consider seeing in AL (as well as the oculoplastic surgeon from PA who he says is the best in the country), although I think I may be done with "second" opinions at this point. I really liked the doctor we saw in Atlanta. Are you still interested in getting together soon? I'm available Saturday morning if you're free.> > Kim> > -------------- Original message -------------- > Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette> > > > > >

[Guest guest]

Hi hope you don't mind my comments... had surgery with Dr. Katowitz this

past August. The outcome though good did not produce symetrical eyes. At first

it was somewhat disturbing to look at but over time the results have softened

making the difference less noticeable. Dr. Olitsky (in kansas?) is a family

friend who did tell me that getting " perfect " results in ptosis surgery is very

difficult in a sleeping child that is laying down. Dr. Katowitz did recognize

the difference and said we will have to wait and see if we should do a

correction. We think we will just wait to see if she needs surgery in the

future. With that being said, CHOP made the experience much easier to deal

with.

Best,

Nina Asadoorian

Dr. Katowitz out of Children's Hospital of Philly. Ring a bell? Would anyone concur that he is outstanding?

-------------- Original message -------------- Just curious, who is the surgeon in PA that he recommended to you, if you don't mind sharing.thank you>> Hi Annette:> > I've just now read through all my e-mails that accumulated for the last week and a half. Our situation is so similiar. Rowan saw Dr. Sherman on Tuesday and gave me another surgeon's name to consider seeing in AL (as well as the oculoplastic surgeon from PA who he says is the best in the country), although I think I may be done with "second" opinions at this point. I really liked the doctor we saw in Atlanta. Are you still interested in getting together soon? I'm available Saturday morning if you're free.> > Kim> > -------------- Original message -------------- > Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette> > > > > >

[Guest guest]

Pam:

What surgeries has he performed for you and where do you live?--thanks

-------------- Original message --------------

Yes, Dr. Katowitz is one of the top. We met with him. We ended up going with one of his colleagues Dr. in Utah, another senior member of the community. Also, we met with Dr. Collin in London. Dr. Collin went to school with Dr. and also recommended him to us, since we are in the US. Which made us feel more confident about our decision.

Pam

[Guest guest]

Hi Pam,

I am not sure if you are asking me but if you were, had both ptosis and

epicanthus surgery at the same time. They also created a crease in her lids.

she definetly has an easier time looking up.

Nina

Pam:

What surgeries has he performed for you and where do you live?--thanks

-------------- Original message --------------

Yes, Dr. Katowitz is one of the top. We met with him. We ended up going with one of his colleagues Dr. in Utah, another senior member of the community. Also, we met with Dr. Collin in London. Dr. Collin went to school with Dr. and also recommended him to us, since we are in the US. Which made us feel more confident about our decision.

Pam

[Guest guest]

Beth, i couldn't agree more! I am shocked a dr. would say that too ....and by the way ...I couldn;t be happier with the outcome of my boys, beside some scaring ....they can see, their eyes have come along way..they are sooo open now compared to the wAy they were born , and they are beautiful. bethgordon03 <bethgordon03@...> wrote:

I am sorry to intrude but this comment from your doctor shocked me, "no one is ever happy with the outcome". That seems very negative from someone who is being entrusted with the well-being of a child. I also have to say, many people (including me) focus too much on what the young children look like. For some with mild BPES, it may only be an issue of cosmetics, but for others like me and my daughter, we couldn't see before surgery. >> Kim,> Who did you see in Atlanta? Dr. Sherman discussed Rowan's case generically. I knew who he was talking about, but he wouldn't give names of course. He did say that no one is ever happy with the outcome. It never looks great. We are limited now in who we can see because Josh

is on Medicaid as a foster child. I may get to adopt him, in which case he can switch to Capital Health Plan and have more options.> > I think I'm working Saturday - FAMU homecoming, but I would like to get together with you.> > Annette> > --> https://home.comcast.net/~agarrett0 > 0/> > -------------- Original message -------------- > > Hi Annette:> > I've just now read through all my e-mails that accumulated for the last week and a half. Our situation is so similiar. Rowan saw Dr. Sherman on Tuesday and gave me another surgeon's name to consider seeing in AL (as well as the oculoplastic surgeon from PA who he says is the best in the country), although I think I may be done with "second" opinions at this point. I really liked the doctor we saw in Atlanta. Are you still

interested in getting together soon? I'm available Saturday morning if you're free.> > Kim> > -------------- Original message -------------- > Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette> > > > > > >

[Guest guest]

Our babies eye dr has said the same thing to us about it being very hard to get both eyes eactly the same...Which blew my mind ...because my sons who totally had 4 lifts always came out even. But Ardiana's didn't as most of you know and her right eye will be redone next Friday. I assume it is very difficult to be a surgeondoing this type of operation, they try their best...I look at it like this ...the are human too. Hope all is well Hugs Sharon nma420@... wrote:

Hi hope you don't mind my comments... had surgery with Dr. Katowitz this past August. The outcome though good did not produce symetrical eyes. At first it was somewhat disturbing to look at but over time the results have softened making the difference less noticeable. Dr. Olitsky (in kansas?) is a family friend who did tell me that getting "perfect" results in ptosis surgery is very difficult in a sleeping child that is laying down. Dr. Katowitz did recognize the difference and said we will have to wait and see if we should do a correction. We think we will just wait to see if she needs surgery in the future. With that being said, CHOP made the experience much easier to deal with.Best,Nina AsadoorianFrom: kimsdaniel@...To: blepharophimosis Subject: Re: blepharophimosis Re: Poor result from sling surgeryDate: Fri, 21 Oct 2005 16:18:51 +0000

Dr. Katowitz out of Children's Hospital of Philly. Ring a bell? Would anyone concur that he is outstanding?

-------------- Original message -------------- Just curious, who is the surgeon in PA that he recommended to you, if you don't mind sharing.thank you>> Hi Annette:> > I've just now read through all my e-mails that accumulated for the last week and a half. Our situation is so similiar. Rowan saw Dr. Sherman on Tuesday and gave me another surgeon's name to consider seeing in AL (as well as the oculoplastic surgeon from PA who he says is the best in the country), although I think I may be done with "second" opinions at this point. I really liked the doctor we saw in Atlanta. Are you still interested in getting together soon? I'm available Saturday morning if you're free.> > Kim> > --------------

Original message -------------- > Hi all.> I took Josh back to Dr. Sherman (Tallahassee, FL) today for a re-> check. I was concerned that we didn't get a good result from our first > sling surgery in July. Dr. Sherman agreed with me. Josh can see, but > still tilts his head. The good news was that both eyes are equal, so > no patching necessary. We are set to go back to Shands in January, so > maybe we'll see how soon he needs another surgery. > > If you had a good result with a surgeon anywhere in the SouthEast US, > please give me a name.> > Annette> > > > > >

[Guest guest]

Um, I have to chime in here too. I am THRILLED with

my child's outcome after one surgery. I know doctors

are humane, but his comment sounded like an excuse. I

have a lot more respect for doctors who will say,

" This is not what I hoped for either. Let's explore

our options. "

Praying for you!

April

--- bethgordon03 <bethgordon03@...> wrote:

> I am sorry to intrude but this comment from your

> doctor shocked me,

> " no one is ever happy with the outcome " . That seems

> very negative

> from someone who is being entrusted with the

> well-being of a child.

>

> I also have to say, many people (including me) focus

> too much on what

> the young children look like. For some with mild

> BPES, it may only be

> an issue of cosmetics, but for others like me and my

> daughter, we

> couldn't see before surgery.

>

>

>

>

> >

> > Kim,

> > Who did you see in Atlanta? Dr. Sherman discussed

> Rowan's case

> generically. I knew who he was talking about, but

> he wouldn't give

> names of course. He did say that no one is ever

> happy with the

> outcome. It never looks great. We are limited now

> in who we can see

> because Josh is on Medicaid as a foster child. I

> may get to adopt

> him, in which case he can switch to Capital Health

> Plan and have more

> options.

> >

> > I think I'm working Saturday - FAMU homecoming,

> but I would like to

> get together with you.

> >

> > Annette

> >

> > --

> > https://home.comcast.net/~agarrett0

> > 0/

> >

> > -------------- Original message --------------

> >

> > Hi Annette:

> >

> > I've just now read through all my e-mails that

> accumulated for the

> last week and a half. Our situation is so similiar.

> Rowan saw Dr.

> Sherman on Tuesday and gave me another surgeon's

> name to consider

> seeing in AL (as well as the oculoplastic surgeon

> from PA who he says

> is the best in the country), although I think I may

> be done

> with " second " opinions at this point. I really

> liked the doctor we

> saw in Atlanta. Are you still interested in getting

> together soon?

> I'm available Saturday morning if you're free.

> >

> > Kim

> >

> > -------------- Original message --------------

> > Hi all.

> > I took Josh back to Dr. Sherman (Tallahassee, FL)

> today for a re-

> > check. I was concerned that we didn't get a good

> result from our

> first

> > sling surgery in July. Dr. Sherman agreed with

> me. Josh can see,

> but

> > still tilts his head. The good news was that both

> eyes are equal,

> so

> > no patching necessary. We are set to go back to

> Shands in January,

> so

> > maybe we'll see how soon he needs another surgery.

>

> >

> > If you had a good result with a surgeon anywhere

> in the SouthEast

> US,

> > please give me a name.

> >

> > Annette

> >

> >

> >

> >

> >

> >

> >