All about tapes

[Guest guest]

Hello everyone, thank you so much for saying all those nice things about Naomi.

I wish our

children could also enjoy this moral support. Maybe when they are older we could

get

them to help each other out on the net too : )

I'm glad that people think the tapes are a good idea. Do mention it to your

doctors so that

other kids with ptosis could consider as a temporary non-invasive solution too.

For those of you who are interested, here's the low-down. We started out using

Steristrips

(3M) and they are great for young babies because they were easy to take off and

so gentle

on the skin. However, steristrips are costly so we switched to Micropore. It

stays on better

especially in the water but very slightly less gentle on the skin compared to

steristrips.

Place the tape (choose a width suitable for your child's lids) just above the

eye-lashes and

pull upwards till you create a crease on the lid. Better to fold the top of the

tape first so

that you do not need to scratch to remove it later.

I did not remove the tape all the time because I didn't want to keep bothering

the eyelid

skin. So when Naomi needed to nap, I loosened the tapes and when she awoke I

stuck it

onto her forehead again. Sometimes I even put a horizontal strip across to

secure it so

that I don't have to peel off the tape entirely when the top part becomes

non-sticky. When

I have time I'll scan and replace some of the photos of her on the net now with

ones that

show this a bit better.

Min, I am from Malaysia and Ern is from Singapore. We are both ethnically

Chinese.

Probably because of that, Ern didn't think much of Naomi's small eyes at first

because his

are small too, you know...the typical Chinese type (joke at our expense!).

However, being a

mom I suspected something was not right, so despite him giving me his medical

opinion, I

sought another. I'm glad we live in Singapore because she was diagnosed that

very day I

went to the paed opthal. I cried as I taped her eyes for the first time that

day. I really didn't

want her to see me crying since it would be the first time in her life being

able to see me

properly. She smiled as the tapes pulled her lids up! So I realised she was

happy with the

tapes and since then tapes have been part and parcel of our lives. Chloe her

older sister

who was less than 2 then started to tape all her dollies' eyes!

Well, I hope this helps. Do take care everyone and , I'm confident that

's

scars will fade with time. Kids rejuvenate so well. She's such a beautiful

child! Tell her we

are very proud of her for being so brave.