Guest guest Posted October 20, 2005 Report Share Posted October 20, 2005 Hi all My name is Parsons. I have a 3 year old daughter, Kirsten who has BPES. She is the first person in our family to be affected.We live in Harrogate in the UK and she sees Mr Collin in London for her eye checks. She has had one surgery so far at the age of 2 to lift her lids as her vision was being affected. Her right eye was becoming weaker than her left. Since her surgery 10 months ago her eye sight is now equal in each eye, but she still has assessments every 3 months. Her next surgery for the medial canthi is scheduled for next spring. Kirsten is a very sociable and charming little girl who loves nursery school. She has an older brother, who dotes on her. My concern with her is that her speech is very delayed. All her other milestones are age appropriate and she otherwise behaves like a typical 3 year old. She has picked up Makaton sign language quickly and it has been particularly useful. Have any other parents got a similar problem? I have always wondered if the speech delay is in any way linked to BPES. I have found this group site to be a fabulous relief and a source of support that I have been looking for since Kirsten was born. I have been sitting for a number of hours looking through photos and messages and can relate to all in some way. Regards Quote Link to comment Share on other sites More sharing options...
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