Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Dear all of you, I'm the father of a 20 mounths years old called Caterina. She has the bleptarophimosis but any of our relatives are affected so it was a shock for us !!! We live in Milan (Italy). She had a first surgery 6 mounths ago for the ephicantus inversus and now 3 different doctors told us that in about 1 year we have to effort a second step for the elevator muscle suspension. Our fear is referred to how to choise the best doctor on this relativelt rare operation. I saw that some of you are fron England. Do you have for exeample in London a good doctor to suggest us ? Someone that did a lot of this surgery ? On the books some doctor told that is better to do this surgery with a partial anesthesia in order to permit to fix in the proper way the lenght of the silicon (or other material) " belt " in order to avoid to have eyes partially open everytime. Any expeience on that fact ? We really appreciate your help. Is quite better to know that other people are in the same boat of us. It seems that we are the only one in Milan with this problem (on a total of 2 million people !!) Best regards from Francesco, Olga and for sure Caterina Quote Link to comment Share on other sites More sharing options...
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