Guest guest Posted January 22, 2005 Report Share Posted January 22, 2005 Hello all. We are still reeling from all that is going on. Kenley, a very very cute little 3 year old girl, was given to us by God by way of DHR. Her mother and father were,are, both drug addicts. We knew from day one that something was not right. At 6mnths they tested kenley for E.D. HOwever the test came back and we were told not to worry everything was fine. However at 3 years when she went back they still didn't like how her eyes looked. The Drs now think she MAY have this syndrome. We are confussed because kenleys eyes look a little like many of the pics however the effects do not seem to be as several as some of the pics. On the other hand there is nothing normal about this childs eyes. EVery part of her eye has failed to form right or not form at all. At age 3 kenley's glass prescription is already at a +6. We had to have the lenses in her glasses cut special by nikon so they could get them thick enough and still fit in toddlers frames. We dont really know what is coming next because they THINK this may be the problem. We are just sort of lost out here in " waiting to see land " . Does this normally cause such hugh problems with the eyes themselves are is this seperate and something else we have to look forward to finding the cause of? God Bless each of you and may HE bless you and all of your children. Quote Link to comment Share on other sites More sharing options...
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