Guest guest Posted January 23, 2005 Report Share Posted January 23, 2005 Thank you for all your response. However, now I have even more concerns. I have always liked Kenleys eye dr however he has never mentioned this syndrome in all the times he has seen kenley. It was not until going to the genetics clinic that we were told of this. Of course Kenley has teh eye problems as well as lung probs, thin brittle hair, small teeth. The list goes on. My question now is how do we go about finding a dr that knows what they are doing in this area. Quote Link to comment Share on other sites More sharing options...
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