surgical procedure for ptosis

[Guest guest]

Hello group:

My 5 month old son was diagnosed with BPES last week. We are certain

that he would have been diagnosed at birth if we had had access to a

geneticist earlier (had to wait 4 months to get in to see Dr.

at Shands in Gainesville, FL).

We are anxiously awaiting our surgical consult with Dr. Segal, a

craniofacial surgeon at Shands, to determine if he is the right

surgeon for the job. We are told our son needs surgery for the

ptosis soon because his right eye doesn't not open very much. His

vision seems to be good in both eyes.

Two questions: I've read through most of the e-mails for information

gathering purposes. I noted that when someone did refer to surgery

for ptosis the procedure was commonly referred to as placement

of " silicone slings " . Is this THE procedure for ptosis as in " the

one and only " option? I'd like to research this procedure before our

surgical consult if necessary.

Also, we have been referred to a cranio-facial surgeon rather than a

ocuplastic surgeon. I didn't see any references to a cranio-facial

surgeon on the web-site? Perhaps the cranio-facial surgeon is

involved if there are no issues with vision???? Any thoughts?

Thanks for sharing your knowledge, opinions, etc.