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Re: hello..........again

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Hi! I've had a bunch of different kinds of surgeries. I had the sling

twice b/c the first time, I rejected it. (i think, I was very young so

I not totally sure about the reason for that) I've had muscle from my

leg put into my eye, skin behind my ears put under my eye, that skin

lasered to smooth it, and many other procedures. My last operation was

last summer, I had a problem w/ when I looked at something my whole

head would turn to focus on that object so they went in and tightened

some of the muscles to try to correct that. It did and I haven't had

any problems w/ my head turning since.I do have a picture posted but

its not good b/c i was laughing soo my eyes were smaller than they

usually are. I'll try to get some more pics downloaded that show my

eyes better. (I'm away at school and my scanner is at home & all the

pics i have downloaded are far away) Hope everything is well w/ ya!

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Hi ,

Do you have a pic you could share? I can't believe you have had soooo many surgeries? why so many? How old were you when you had the first op? I would think you will be well and truley finished with op's or not? We have a son who is 2 years and 4 months old:) He has had no surgeries as yet, not until he is about 4-5 before, of course keeping a good eye on his vision etc....:)

Leanne NZ

-- blepharophimosis hello..........again

Hey Everyone-

I haven't been on the site in a while so I'm catching up w/ all the

messages. I'm 21 years old and have had around 35 operations relating

to blephs, everything from the sling, to muscle from my leg into my

eye lid. If anyone would like to chat or have any questions feel free

to post a message, or email me. I do have a question, the older I get

i find my vision is getting worst and worst, I know it will gradually

decrease but just if anyone else was having the same problems. Thanks:)

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Leanne-

I have one picture on the photos page but its totally not a good pic

b/c I was laughing so hard my eyes were shut but I will try to get a

better picture on there soon. I was 6 months old when I had my first

surgery and as far as future surgeries, I don't know. I have a

doctor's appointment set up w/ both of my eye doctors for June 21st

and future surgeries if any will be discussed then. At the last appt.

any new surgeries were more cosmetic vs. actually needed. (as a 21 yr

old girl i have a hard time finding the difference sometimes haha)

hope all is well!

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