Guest guest Posted October 31, 2005 Report Share Posted October 31, 2005 My daughter Grace, who is 8 months old, has been diagnosed with blepharophimosis. It came as a total surprise as no one else in the family has the condition. We have seen a wonderful doctor at our local hospital who is keen to do her best for us. We are still waiting for an appointment to see the genetics team but are seeing the eye specailist every 3 months. Grace is a very happy baby and is a delight to us all. She is however slightly behind in her development (she is not yet sitting up although she does have the strength to hold her self up.) It is very encouraging to read of people in similar situations and to see the children as they grow older. The pictures of children before and after surgery are also interesting. We are going to see the eye specialist again tommorrow and I am hoping to find out more about surgery and aiding Grace's development Quote Link to comment Share on other sites More sharing options...
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