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hi to all,

my name's Tamara and my daughter and my husband have both BPES.

We live in Italy, Milan, and it was so difficult find someonelse with

this syndrom here that when I discover this website I was really glad.

my daughter is 3 mounth , my husband (who cames from Czech Republik)

is 32.

Reading your furum I find exactly the same feelings of you.

excuse if my english is not so good.. I hope is understandable!!

Bye to everyone

Tamara

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