Guest guest Posted September 8, 2005 Report Share Posted September 8, 2005 I am a mother of three daughters ages 6 years, 4 years and 11 months old. My first two do not have BPES but my 11 month old has. No one in mine or her fathers family has never been affected by this syndrome. I am wondering why she was born with this and how it will effect her life? We have seen several specialist that seem to say the same things they all say its just cosmetic and it does not effect her mentally but I have to differ with their advice. She doesnt do things that other children her age are doing, she does wave hi or bye, she holds her chin up to see things and they are all telling I am worring to much. I dont believe I am getting the best advice from these doctors. I just would like to hear from someone that has been through this ordeal. Please email and let me know how you are making it through. Quote Link to comment Share on other sites More sharing options...
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