Will my next baby have BPES?

[Guest guest]

Hi all,

I haven't posted much here but when I have, I just get overwhelmed

with the response - it has helped so much since Halle's diagnosis of

bleph in November. Halle is now 10mos old and doing wonderfully!

My question is not directly related to Halle this time. I've always

wanted to have 4 children...just something I've told people even when

I was a little girl. My son is now 9, my daughter is 6 and Halle is

10mos. Halle was the first to have bleph - in our family, and in

this province!

So my question is this....does this mean that either myself or my

husband now carry this gene permanently? Or was it a one time thing?

I know that Halle has this and will have 50-50 chance of passing it

on to her children. But what about another child that I would have?

In all honesty, it would not affect my decision one way or another

but I know it would my husbands. The geneticist we saw in November

mentioned testing on me and my husband...what are they testing for?

To see if we carry this gene? Is that something they can find out?

I had emailed all these questions to the geneticist hoping for

answers but she merely told me that we would discuss it all at our

next appointment in April. Well, I'm not getting any younger and am

anxious to start trying.

Any words of wisdom here? I hate not knowing the answers to these

questions !@#%$@ If any of you can help me, I would really

appreciate it!!!

Hugs to you all!

Donna