Guest guest Posted November 11, 2005 Report Share Posted November 11, 2005 Hi Maree Thanks for your viewpoint. I will be waiting till my daughter is older, probably late teens before finding out which type she is. Firstly because I have enough to deal with at the moment and secondly because I really feel it is an issue that she has to be involved with from the start. Her name is Kirsten and she is the first and only member of our family to have BPES. P.S I visited NZ in 2000 (time flies!) as I have a very good friend in Auckland. It is a stunning country P > > > > > > > > > > > > My medical records show I do have congential > > Blepharophimosis > > > but > > > > > > unsure whether this is type 1 or type 2. Will have to take > > > > > the next > > > > > > step and find this out. Any ideas how I can do this. Can > > > > > I do this > > > > > > through my local doctor. Thank you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2005 Report Share Posted November 12, 2005 Glad you liked NZ - I agree it is an awesome country but then I`m biased........ Maree > > > > > > > > > > > > > > My medical records show I do have congential > > > Blepharophimosis > > > > but > > > > > > > unsure whether this is type 1 or type 2. Will have to > take > > > > > > the next > > > > > > > step and find this out. Any ideas how I can do this. > Can > > > > > > I do this > > > > > > > through my local doctor. Thank you. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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