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Now, that's relaxed! Nice photo, Al.

[ ] Photo

> Hope everyone is doing well. I finally uploaded a picture of myself

> in the " files " section.

>

> It will need to be moved to the photos folder. I tried to do that but

> was unsuccessful.

>

> Have a great Sunday everyone.

>

> Al

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I try...;)

Thanks !

Love and hugs,

Alan

> Now, that's relaxed! Nice photo, Al.

>

>

>

>

> [ ] Photo

>

>

> > Hope everyone is doing well. I finally uploaded a picture of

myself

> > in the " files " section.

> >

> > It will need to be moved to the photos folder. I tried to do that

but

> > was unsuccessful.

> >

> > Have a great Sunday everyone.

> >

> > Al

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  • 1 year later...

Hello everyone

I have posted a photo of my beautiful daughter Evie who is now 8.

The photo was taken just a few months before she had surgery to lift

her lids. I don't have any current photos whicb i can load onto the

computer but will get my digital camera out in the next week and post

a current one to show the difference.

Evie does okay with curious stares which she sometimes still gets but

on the whole is a confident girl, loves school, is learning to play

the guitar,attends drama classes - and thinks Avril Levigne rocks!!

She has been offered further surgery to help reduce the wide bridge

of her nose and open her eyes up a bit more but so far she's happy as

she is - we'll see what happens when she gets to be a self conscious

teenager!

We are currently waiting for the results of genetic testing as Evie

is displayed signs of early onset puberty which may or may not have

implications in later life.

It's good to know that we're not alone in this - at times it has been

hard to deal with other people's atttitudes (usually based on the

fact that they think she has Down's syndrome)but as Evie has got

older it has got easier as she can speak out for herself now.

Love Shena

PS sorry this is so long

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