Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 All my life I felt like I was the only person in this entire world who had ths problem,and now my son. I found this website and saw all the pictures of this beautiful children and all i could do is cry. Its so nice to know that i'm not the only one. I have had many operations in my life to fix it and the doctors did i good job but i was so teased as a kid while i was going thru this in the early 80's. Maybe my son could meet someone like us besides me to with this again thank you Quote Link to comment Share on other sites More sharing options...
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