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Re: adult with BPES

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Hi, .

Which blood tests are you referring to? When I was taking birth

control pills to regulate my cycle, I took them as directed on the

package. Later, my endocrinologist had me taking a lower-estrogen

pill. Then later, when the " pill " didn't work for me, I was just

taking oral progesterone (Provera) for 12 days each month. And on

day 13 my period would come (most of the time).

When I recently had a blood test to see if indeed I was menopausal,

I was still taking the Provera at the time. But when the test

results were back, my doctor said I didn't have to take them

anymore. In fact, he hasn't prescribed anything, or HRT. He didn't

seem worried, since I really don't have any bad menopause symptoms.

Thanks for your questions...I don't mind at all, if I can be of any

help.

Keep in touch!

Loka

> > > >

> > > > I have a 12 year old daughter with the diagnosis

> > > of " blepharphimosis

> > > > syndrome " . I've never belonged or really understand how to

> use a

> > > > Group, so I was wondering if anyone could give me the

> basics

> > > > (do I save this to favorites to get back here?). Anyways, I

> live

> > > in

> > > > Massachusetts and would like to talk to anyone, anywhere,

> about

> > > > anything they know or have experienced with this

diagnosis.

> > > >

> > > > Also,I've read some postings on this site about the

transnasal

> > > wiring

> > > > proceedure. My daughter had the transnasal wiring when she

was

> > > little

> > > > (she is 12 now and I'm at work so I can't look my records to

> see

> > > what

> > > > age it was done or how long after we became aware of a life

> > > impacting

> > > > side effect). One day she kept covering her ears and

begging

> me

> > > to

> > > > make them stop yelling. At first, I was very confused. We

> were

> > > > alone in the house, nobody was yelling, the windows were all

> shut

> > > so

> > > > it's not like there were neighbors yelling. After I was

able

> to

> > > calm

> > > > her down. I had her keep very quiet and to put up her

finger

> when

> > > > she heard the yelling. Of course the finger went up right

> away

> > > and

> > > > never went down. I strained my ears thinking that maybe a

> light

> > > was

> > > > buzzing, maybe the refridgerator was humming, maybe some

high

> > > > frequency sound was on somewhere in the house. There was

> nothing.

> > > > I was able to understand from her that her ears

only " yelled "

> when

> > > it

> > > > was quiet or at " go sleepy time " . To make along story

short,

> the

> > > > diagnosis was that she had tinitus which resulted from the

> > > loudness

> > > > of the " drilling " during the transnasal surgery. FYI eye

> surgeon

> > > was

> > > > not aware that this could be a side effect. Now tinitus

is

> not

> > > the

> > > > worst thing that someone could have, but it is not the most

> > > pleasant

> > > > thing either. There is no cure for it but there are simple

> things

> > > we

> > > > do to ease it.

> > > >

> > > > I'm not sure if this is a proper question to put on the

> > > Group,

> > > > but my daughter has recently started her menstrual cycle and

> we

> > > are

> > > > having issues. How do I know, if these problems are normal

or

> > > not?

> > > >

> > > >

> > > >

> > >

> >

>

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