Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Thank you Shireen! You are always so helpful. April --- Andy Bowles & Shireen Mohandes <andy.bowles@...> wrote: > Hi April > > Estimates > ---------- > I have done some research on numbers and have > discussed it with 3 doctors. > They all say that my estimate is " reasonable " . That > doesn't mean that it is > correct - because none of them knew ... But I talked > them thru my > calculations and they thought that the assumptions > and final calculation was > reasonable. > > I think it is around 1 in 150,000. > > By the way - there is no race or geographical bias > (ie - it is prevalent all > around the world). I know that in some cases it is > so mild that it is > undiagnosed. > > Ptosis > ------ > If you take a look at this article: > http://www.emedicine.com/ent/topic97.htm > > You will see that that for Ptosis (the " P " part of B > P E S) there are many > possible ways of getting ptosis. > Also - take a look at the section called " clinical " , > you will see a > reference to " unilateral ptosis " . > > Although I am not a medically trained person, based > on what I have read, and > the photos I have seen, it is possible to have > Ptosis in one eye. > If you are interested in seeing photos of somebody > with just ptosis (ie not > BPES syndrome), then take a look here: > http://www.plasticsurgery4u.com/procedure_folder/eyelid_recon_folder/eyelid_ > ptosis.html > Please note that this is not an endorsement in any > way. It is simply an > apparently useful site. > > However, I have never heard of anyone having BPES in > just one eye. Has > anyone else? > > I hope this helps April. > Regards > Shireen > > > > [mailto:blepharophimosis ] On > Behalf Of april Eisele > > Sent: 18 October 2005 16:36 > > blepharophimosis > > Subject: blepharophimosis Questions > > > > Does anyone know how many people (worldwide or > > otherwise) are estimated to have BPES? I know you > can look > > up statistics on other things that say " incidence > is 1 in > > every 1,000 live births " , etc. Is there a > statistic like > > this for BPES? My husband asked me I have no > idea. > > > > Also, this may sound a little crazy, but with BPES > are both > > eyes always effected? Or is it possible that the > ptosis > > would only effect one eye? Anyone know? > > > > Thanks! Have a great day! > > April > > > > > > __________________________________ Music Unlimited Access over 1 million songs. Try it free. http://music./unlimited/ Quote Link to comment Share on other sites More sharing options...
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