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Re: Adult with BPES/Memories of Moorfields

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Hi ! You really hit the " nail on the head! " To find out there

are others who " look like me " is a big deal, especially for a child.

I wish I had only known. For many years I just thought I was some

sort of freak of nature. I kept wondering why I didn't look like

anyone else, or even like anyone else in my family.

Finding out that it's a genetic condition really helped. But I wish

I could have met other kids like me when I was a child. Someone who

also knew how it felt to be the ugly duckling in school. My hope is

that other children now won't have to suffer what we went through.

Hugs to you all!

Loka

> > > > >

> > > > > Hi guys! my name is Celine. I'm a 19yr old student from

> Kent,

> > > near

> > > > > London in England, now studying at Warwick. I have

> > > > blepharophimosis. I

> > > > > had two operations, when i was 5 and 6. I am now fine, and

> am

> > > > proud of

> > > > > the uniqueness of my eyes, which people say give me

> a " certain

> > > > > allure " ! I am the first in my family to have the

condition:

> > just

> > > a

> > > > > blip in the genes i'm told! This is all very new for me! I

> > don't

> > > > know

> > > > > anybody else with the condition. I didn't even know this

> group

> > > > > existed! Anyway, i just thought i would say hello. If

> anybody

> > has

> > > > any

> > > > > questions for me, about being a young adult with the

> condition,

> > > > about

> > > > > surgery or anything, that will be fine. Are there any

other

> > > people

> > > > my

> > > > > age in this group, m/f? It would definitely be interesting

> to

> > > have

> > > > a

> > > > > chat!

> > > > > Love celine.

> > > >

> > >

> >

>

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