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we have a daughter with BPES type II

she is 6 months old , we want to know the name of doctors who can

operate this type all over the world .

When can we operate .

we are living in saudi arabia at present but we can travel for this

operation .

can you send us some photos for before and after the operation .

best reagrds

M taher

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Dear M TaherWelcome to our group, which seems to grow every day, and contains people from all of over the world.Mr Collin, who is based in the UK, works at Moorfields Eye Hospital and also works in private practice in Harley Street, London.Here are his contact details:Mr Collin, MA, MB, BChir, FRCS, DO67 Harley Street, London W1G 8QZPhone: 020 7486 2699Fax: 020 7486 8626Email: richard.collin3@...May I suggest that you send an email to him. His secretary is called "". She reads and replies to his correspondence.Many people in this group have had the benefit of Mr Collin's surgery. He is considered to be in the top 5 in the world, for this area. He has also trained many many surgeons.Regarding your other questions:Here are some things you may like to do:1. Look at the photo albums---------------------------Visit the GroupIn the left hand side, you will see a list of linksClick on the link called "Photos". There are several hundred photos of people in this group.It is interesting to see that we are all different. Some people have very mild appearance, and need treatment that is suited to their specific circumstances. Others need surgery at an early age, and of a specific type.2. Look at the database called "BPES List"-------------------------------------------Visit the GroupIn the left hand side, you will see a list of linksClick on the link called "Database". Then click on "BPES List".Here you will see 91 persons listed, along with the type of surgery they had, and some contact details.You may like to talk to a family who live in Bahrain - see the entry for baby "Anushka". I know that her father travels to Saudi Arabia a lot on business. They visited Mr Collin for a consultation, and you might like to hear about their experience and feedback.I hope that this helps. Again, we are all different, so whilst it is comforting and reassuring to look at "before and after" photos, there is no substitute to consulting an expert surgeon

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