Guest guest Posted December 21, 2005 Report Share Posted December 21, 2005 Hi to everyone i joined the site a few weeks ago but have been extremely busy and haven't had too much time to write. My little boy is now 16 months old and has BPES. (hope to post some photos in the next few days). Some of you may remember that I was concerned that he wasn't yet walking. He's nearly there and his confidence is is building day by day. He is now very active and wearing us all out!! All the comments I received were gratefully received. I'm sorry we couldn't make it to the meeting on the 18th but we would definitely like to meet up with others so hopefully more meetings will be arranged for next year. We saw the consultant last week and he is pleased with ' progress and quite confident that he won't require any surgery until he is at least 3-4 years. As many of you are under the care of Dr Collin at Moorfields, who seems to be one the most experienced in this field, we were concerned about where his surgery would be carried out (we live in Wolverhampton). Our consultant confirmed that when the time comes he would like to refer us to Dr Collin and this has given us much needed reassurance. Now things are calming down at home I will be in touch more and would like to wish everyone a Merry Christmas and a Happy New Year. Best Wishes Donna, Neil, Georgia & Vann Quote Link to comment Share on other sites More sharing options...
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