Re: Re[2]: new member and question

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i was told ...not sure this is fact ..that the leg tissue isn;t done any longer in the US they have new better methods ? anyone know this to be fact or fiction ? Tessa Mackenzie <tessamackenzie@...> wrote: Hi and thanks to you both for your messages. it sounds like it definitelyworked for and Kirsten. Bipin doesn't seem to be affected bylack of vision at all at the moment and he's extremely mobile! And theopthometrist said his sight is fine so far. But his Dad's vision isbad, especially in the eye that had the lower lid so it seems clear that he needs thetemporary thing done to make sure that his vision develops normally.We're still not at all sure whether or not he should have thepermanent ops done when he's 5, but we've got a few years to decide onthat. I wonder

what the difference is between the procedure that DrCollin does with tissue from the leg at 4 or 5 (my husband had the same thingdone by Dr Collin 25 years ago!), and the YV canthoplasty that theyseem to do at an earlier age in the States?sorry we can't make it on Sunday. hope to meet you at the next one.TessaTL> Hi Tessa TL> Welcome to the group.My Name is and my Daughter is just over 2 and has had the temperary slings Mr Collin has sugested.I have to agree with him was 9mths old when she had hersTL> done and wasnt doing much because of lack of vision,within days of the op she was like a different child looking around and starting to move.Her before and after photos are under .I haveTL> been told she wont have anymore ops until she is between 5 and 7 and these will be the main ones. TL> Hope you can make the meeting Sunday more the

merrier. TL> TL> tessa_mackenzie <tessamackenzie@...> wrote:TL> Hi allTL> I'm a new member too, pleased to meet you all! My son Bipin is 9 months TL> old and has BPES, as does my husband and his brother, sister and Dad. TL> We just saw Mr Collin at Moorfields and he recommended that he does a TL> sort of interim operation to lift Bipin's lids enough so that they TL> don't cover his pupils so that his eyesight can develop properly. It's TL> not the permanent operation (slings?) that many of you are talking TL> about but would only last a few years so that his eyesight can develop. TL> He described it as putting a stitch inside his lids. Have any of you TL> been through this? any before and after photos?TL> TessaTL>