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Hi everybody,

My name is Jeroen, I live in Belgium, I'm 29 years old and I have

BPES. I have two children, Jens 4 years old who also has BPES and

Tiebe two years old who is not affected. I got to know of this group

while searching the internet for information about surgery, since our

son is about to undergo surgery whitin this year. I'd like to get in

contact and share information with other people who know about BPES.

Greetings,

Jeroen

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