Re[2]: new member and question

[Guest guest]

Hi and

thanks to you both for your messages. it sounds like it definitely

worked for and Kirsten. Bipin doesn't seem to be affected by

lack of vision at all at the moment and he's extremely mobile! And the

opthometrist said his sight is fine so far. But his Dad's vision is

bad, especially in the eye that had the lower lid so it seems clear that he

needs the

temporary thing done to make sure that his vision develops normally.

We're still not at all sure whether or not he should have the

permanent ops done when he's 5, but we've got a few years to decide on

that. I wonder what the difference is between the procedure that Dr

Collin does with tissue from the leg at 4 or 5 (my husband had the same thing

done by Dr Collin 25 years ago!), and the YV canthoplasty that they

seem to do at an earlier age in the States?

sorry we can't make it on Sunday. hope to meet you at the next one.

Tessa

TL> Hi Tessa

TL> Welcome to the group.My Name is and my Daughter is just over 2

and has had the temperary slings Mr Collin has sugested.I have to agree with him

was 9mths old when she had hers

TL> done and wasnt doing much because of lack of vision,within days of the op

she was like a different child looking around and starting to move.Her before

and after photos are under .I have

TL> been told she wont have anymore ops until she is between 5 and 7 and these

will be the main ones.

TL> Hope you can make the meeting Sunday more the merrier.

TL>

TL> tessa_mackenzie <tessamackenzie@...> wrote:

TL> Hi all

TL> I'm a new member too, pleased to meet you all! My son Bipin is 9 months

TL> old and has BPES, as does my husband and his brother, sister and Dad.

TL> We just saw Mr Collin at Moorfields and he recommended that he does a

TL> sort of interim operation to lift Bipin's lids enough so that they

TL> don't cover his pupils so that his eyesight can develop properly. It's

TL> not the permanent operation (slings?) that many of you are talking

TL> about but would only last a few years so that his eyesight can develop.

TL> He described it as putting a stitch inside his lids. Have any of you

TL> been through this? any before and after photos?

TL> Tessa

TL>