Guest guest Posted December 13, 2005 Report Share Posted December 13, 2005 Hi I know that people in the USA are thinking about and arranging get togethers. According to our database, the list of people with BPES and their location is below. Please remember that if you want your name added to this list, and you'd like to provide the information about relatives and treatment, then this is something you have to do yourself. It is very easy to do, but if you want help then just contact me. Regards Shireen PS - if this does not come out clearly on your email, then just let me know and I will send it to you directly in another format. Kim Beaver kbeaver@... Tuscumbia Alabama USA Ginny Harper gharper05@... Heber Springs AR USA Crystal Berwick cjberwick@... Clearlake CA USA Kerry fishingmom2@... or mamajoex2@... Riverside CA USA How reneehow@... Palo Alto CA USA Noonnaanay@... CA USA Scopp minsco72@... Milford CT USA Darryl Ytsefan@... Orlando FL USA Ball maryberryprinces@... ft lauderdale Fl usa Loverde Suwanee GA USA Arlene Varela arlenevarela@... Canton GA USA Brock McNatt mcnatt@... Ellijay GA USA Robin nascar9118@... byron GA USA Snellback snellshein@... Wilmette IL USA Hannah Rae angie_huffman@... Shepherdsville Kentucky USA Ruth jricard5@... Billerica MA USA April @... odenton MD USA boydgi@... MI USA McManus juliecheese99@... Midland MI USA Conner goozle71@... St. Louis MO USA deb_barfoot@... Raleigh NC USA Lily lily_bogle@... NC USA DAWN KORBINTAI2LUV@... LAS VEGAS NEVADA USA Aedan Schoen - Rainamint@... New York New York USA Sharon Ancilleri Besilly12000@... Holtsville New York USA Dalia daliaben@... Great Neck NY USA L. Logan llogan2@... Delta OH USA Michele shell3238@... Fairborn OH USA mfeichtner@... OH USA Rae Ann moesgirl35@... Cincinnati Ohio USA Amy Hinchman mamahinch@... West Mifflin PA USA Leindecker Rozrabbit@... Lenhartsville PA USA Nina asadoorian nma420@... PA USA Rob Hall rnhall180@... Round Rock TX USA Beth Gordon bethgordon03@... Purcellville VA USA Loretta son annaloretta17692@... WA USA Harry dawn@... Maple Valley WA USA Mulvaney chatthisway Rochester Washington USA Mason bnbbrethouwer@... Madison WI USA Quote Link to comment Share on other sites More sharing options...
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