Re: New Member...

[Guest guest]

In a message dated 9/22/2000 6:17:09 PM Eastern Daylight Time,

mmadkat@... writes:

<<

I am dreadfully upset, is this a normal reaction from the regular

pediatricians or did i just encounter an extremist here?

I am of course changing doctors, but dont want to encounter the same

attitude everywhere.

>>

In my experience, what you got from your ped is the norm. Mixed in with some

patronizing comments, veiled threats, and sarcastic remarks about how the

source of your concerns are no doubt fanatics.

Keep looking

Aurora

[Guest guest]

Kat,

Unfortunately, this is all too " normal " of a reaction from pediatricians. I

am convinced that their bonuses are tied to a 100% vaccination rate.

I am happy to say I have finally found a doctor who is not pushing vaccines

at all. In fact when I took my son for his Kindergarten physical, he simply

asked. When I told him NO, he was fine with it. There are some good ones

out there.

Carol G

[Guest guest]

My girl friend had a baby this year and I cautioned her about vaccines. To

my surprise, her ped. has an office policy of using only mercury free

immunizations. I had the same problem from my peds, and now I treat with a

holistic family MD for everything. Yes, he went to the DAN meeting and is

also chelating us. When we started with him he was interested so another

mom and I encouraged him and he now treats quite a few other kids. In this

changing enviornment we must either travel far or find an open minded Dr. and

foster professional growth. We now live 10min from a DAN Dr. YES!! It can

be discouraging but do not quit. Ask other moms with autistic kids who their

drs are and what they are doing. You'll find someone to work with near your

home. Or, do as many do and travel to a DAN chelating Dr whom you feel good

about. Do not get discouraged. You are far from being alone. I predict

that in the not to distant future, detox and chelation will become a

mainstream treatment. An unfortuate commentary on our enviornment. Beverly

[Guest guest]

Kat

Hold your ground, it is better to have a lifetime of complete neural

normalcy, than a lifetime of sickness and you know what. Get another doctor

and pat yourself on the back. YOU GO GIRL! Be mad, then get even, send him

the mercury paper and other adjuncts, throw it at him and tell him he is an

idiot!

Kathy

[ ] New member...

>

>Hello,

>

>I have been following this list for a few months and have learnt a lot!

>My son is now 3.11 and i am currently trying AIT(Tomatis) for him at the

>Spectrum Center, its been a week since I started, no significant changes

>yet! We are about 6 months into the GFCF diet with some dramatic changes,

>LOTS more words and labelling pictures, more spelling(of course), numbers

>and some meaningful question and answers(mostly single words, and " i want "

>queries). Excellent eye contact, reads social and emotional cues too.

>I sent his hair sample in to Doctors Data Lab for mercury poisoning

testing,

>and am awaiting the results.

>

>I took my 19 mo daughter for her checkup, and the doctor wanted to give

her:

>DTaP,

>MMR,

>Pnemunococcal(sorry for spelling, i am sure my son can do this one!),

>Chicken pox,

>polio,

>HiB

>ALL at the same time After i had told them that i wanted to either break up

>or hold off on her vaccines!!! AND he knows my son' history, and his

adverse

>reaction to MMR, he just refuses to accept a connection!!!

>AND my daughter is allergic to eggs, and MMR has egg products in it!

>AND he did not regard the mercury-vaccine connection as a valid one!!!

>

>I encountered pressure from him, was made to feel like I am risking killing

>my kids and am being irresponsible etc etc, but i dug in my heels and stood

>firm, it was kind of hard to stay calm at that point!

>

>I am dreadfully upset, is this a normal reaction from the regular

>pediatricians or did i just encounter an extremist here?

>I am of course changing doctors, but dont want to encounter the same

>attitude everywhere.

>

>Kat

>

>

>

>

>

>

[Guest guest]

From what I understand, no child who has a reaction to eggs, should receive

the MMR. A pediatrician refused to give the MMR to my brother due to that

allergy.

[ ] New member...

>

> Hello,

>

> I have been following this list for a few months and have learnt a lot!

> My son is now 3.11 and i am currently trying AIT(Tomatis) for him at the

> Spectrum Center, its been a week since I started, no significant changes

> yet! We are about 6 months into the GFCF diet with some dramatic changes,

> LOTS more words and labelling pictures, more spelling(of course), numbers

> and some meaningful question and answers(mostly single words, and " i want "

> queries). Excellent eye contact, reads social and emotional cues too.

> I sent his hair sample in to Doctors Data Lab for mercury poisoning

testing,

> and am awaiting the results.

>

> I took my 19 mo daughter for her checkup, and the doctor wanted to give

her:

> DTaP,

> MMR,

> Pnemunococcal(sorry for spelling, i am sure my son can do this one!),

> Chicken pox,

> polio,

> HiB

> ALL at the same time After i had told them that i wanted to either break

up

> or hold off on her vaccines!!! AND he knows my son' history, and his

adverse

> reaction to MMR, he just refuses to accept a connection!!!

> AND my daughter is allergic to eggs, and MMR has egg products in it!

> AND he did not regard the mercury-vaccine connection as a valid one!!!

>

> I encountered pressure from him, was made to feel like I am risking

killing

> my kids and am being irresponsible etc etc, but i dug in my heels and

stood

> firm, it was kind of hard to stay calm at that point!

>

> I am dreadfully upset, is this a normal reaction from the regular

> pediatricians or did i just encounter an extremist here?

> I am of course changing doctors, but dont want to encounter the same

> attitude everywhere.

>

> Kat

>

>

>

>

>

>

[Guest guest]

Which autism treatment-poisioning paper......I really need one?

[Guest guest]

Kat, et.al.,

I think your reaction from your doctor is pretty typical...if you go into

the appointment inadequately armed.

I really think us parents need to lock-in on the idea that the doctors

are not going to listen to our words, beyond describing our children, and

that we need to take them the actual scientific studies if we expect them

to take these connections seriously. I really think for starters we

should be giving all of our doctors the autism treatment poisoning

paper..not just because of the incredibly strong case for mercury

poisoning that it presents, but it also gives a wonderful summary of all

the physiologic abnormalities in our kids...so many of these docs haven't

followed the research and really don't know anything except....autism is

a brain disorder of genetic origin. They sure are ignorant. We have to

bring them the science to educate them!

I now think of it this way: I'm not going to let a doctor's ignorance

hurt my son since I have some ability to remove that ignorance.

Godd luck to you!

Chris

On Fri, 22 Sep 2000 18:16:42 -0400 " mmadkat " <mmadkat@...>

writes:

> -------------------------- eGroups Sponsor

>

> Hello,

>

> I have been following this list for a few months and have learnt a

> lot!

> My son is now 3.11 and i am currently trying AIT(Tomatis) for him at

> the

> Spectrum Center, its been a week since I started, no significant

> changes

> yet! We are about 6 months into the GFCF diet with some dramatic

> changes,

> LOTS more words and labelling pictures, more spelling(of course),

> numbers

> and some meaningful question and answers(mostly single words, and " i

> want "

> queries). Excellent eye contact, reads social and emotional cues

> too.

> I sent his hair sample in to Doctors Data Lab for mercury poisoning

> testing,

> and am awaiting the results.

>

> I took my 19 mo daughter for her checkup, and the doctor wanted to

> give her:

> DTaP,

> MMR,

> Pnemunococcal(sorry for spelling, i am sure my son can do this

> one!),

> Chicken pox,

> polio,

> HiB

> ALL at the same time After i had told them that i wanted to either

> break up

> or hold off on her vaccines!!! AND he knows my son' history, and his

> adverse

> reaction to MMR, he just refuses to accept a connection!!!

> AND my daughter is allergic to eggs, and MMR has egg products in it!

> AND he did not regard the mercury-vaccine connection as a valid

> one!!!

>

> I encountered pressure from him, was made to feel like I am risking

> killing

> my kids and am being irresponsible etc etc, but i dug in my heels

> and stood

> firm, it was kind of hard to stay calm at that point!

>

> I am dreadfully upset, is this a normal reaction from the regular

> pediatricians or did i just encounter an extremist here?

> I am of course changing doctors, but dont want to encounter the same

> attitude everywhere.

>

> Kat

>

>

>

>

>

>

[Guest guest]

Here's the Mercury - Autism paper and more...

http://www.stas.net/1/mercury/

I just love bringing and sending copies to all the doctor's I know....all 85

pages and more..

Jon's Mom

Re: [ ] New member...

>

> Which autism treatment-poisioning paper......I really need one?

>

>

[Guest guest]

The autism treatment paper is on the website for Autism Research Institute.

It is great for establishing credibility with your doctor, because it is the

result of super research and shows the shocking correlation between autism

and mercury poisoning symptoms. Just an idea . . .

Barb

Re: [ ] New member...

>

>Which autism treatment-poisioning paper......I really need one?

>

>

[Guest guest]

> Hi All,

Howdie Ky,

> My name is Ky, I'm 19 and I live in Sydney

Whereabouts in Sydney? I live in Pennant Hills and work in the CBD.

> and I've just found this

> group and am pretty much floored! I had no idea there were so many

> people out there that could even spell BPES, let alone people who are

> living with it.

There aren't that many of us; I've never accidentally met another

BPES-enhanced person. I think even most ophthalmologists never get to

meet one, although some can spell it. There's a good collection of us

here on this forum, but then again we're kind of evenly spread

throughout the world. There's a handful or so in Oz - you're the 4th I

know of in Syd-er-ney.

> I'm not sure exactly what happens in this group, but I figured I'd

> join anyways.

" Anyways " ? That's American for " anyway " , isn't it? ;-)

People ask questions, help each other, support, organise get-togethers,

share photos, generally hang out; that kind of stuff.

> And I have absolutely no clue what to say, so I'm going to shut up

> before I put my foot in it.

I wish I could show such restraint! (And so do the unfortunates upon

whom I inflict my seemlingly endless drivel)

> Ky

Rob W

[Guest guest]

Welcome to the group, Ky. I live in Colorado in the

U.S. and my husband and I just adopted our son, Micah,

in May from S. Korea. He was born with bleph and had

surgery in Feb. right before he turned 3 yrs old.

This is a wonderful group, glad you found us.

April Eisele, Colorado, USA

Wife to Jon

Mommy to Mira, Micah & Misha

--- Kylie <venom_the_shipper@...> wrote:

> Hi All,

>

> My name is Ky, I'm 19 and I live in Sydney and I've

> just found this

> group and am pretty much floored! I had no idea

> there were so many

> people out there that could even spell BPES, let

> alone people who are

> living with it.

>

> I'm not sure exactly what happens in this group, but

> I figured I'd

> join anyways.

>

> And I have absolutely no clue what to say, so I'm

> going to shut up

> before I put my foot in it.

>

> Ky

>

>

>

>

__________________________________________________

[Guest guest]

Hi Rob, I live in Penrith and I, too, work in the CBD. (Luck us!) Yes, I suppose that Anyways would be an American term, but I picked that one up from my mother! I actually saw a gynecologist in Westmead Children's hospital a few years back that could not only spell BPES (Which admittedly, I have trouble with sometimes!) but she'd also had another patient with it. I've not met anyone else who has this either, but looking at some of the pictures in the group archive was like looking at my baby photos! Now, if someone wants to put pre-op and post-op pics up there, you can pretty much have the chronical of my life up until about 9! Thank you very

much for the warm welcome. Ky Rob <r.watson@...> wrote: > Hi All,Howdie Ky,> My name is Ky, I'm 19 and I live in SydneyWhereabouts in Sydney? I live in Pennant Hills and work in the CBD.> and I've just found this > group and am pretty much floored! I had no idea there were so many > people out there that could even spell BPES, let alone people who are > living with it.There aren't that many of us; I've never accidentally met another BPES-enhanced person. I think even most ophthalmologists never get to meet one, although some can spell it. There's a good collection of us here on this

forum, but then again we're kind of evenly spread throughout the world. There's a handful or so in Oz - you're the 4th I know of in Syd-er-ney.> I'm not sure exactly what happens in this group, but I figured I'd > join anyways."Anyways"? That's American for "anyway", isn't it? ;-)People ask questions, help each other, support, organise get-togethers, share photos, generally hang out; that kind of stuff.> And I have absolutely no clue what to say, so I'm going to shut up > before I put my foot in it. :)I wish I could show such restraint! (And so do the unfortunates upon whom I inflict my seemlingly endless drivel)> KyRob W

[Guest guest]

> Hi Rob,

>

> I live in Penrith and I, too, work in the CBD. (Luck us!)

Hey! Let's do coffee some time; my shout. Give me a call on 931 21928

(work: 175 Pitt St) and name the place.

> I actually saw a gynecologist in Westmead Children's hospital a few

> years back that could not only spell BPES (Which admittedly, I have

> trouble with sometimes!) but she'd also had another patient with it.

I guess the POF issues associated with BPES would give a gyno a better

chance of seeing a case or two. Even the geneticists I've met have been

pretty clueless (till they met me), along with the paediatricians (ha!

don't get me started on those wastes of food!).

> I've not met anyone else who has this either, but looking at some of

> the pictures in the group archive was like looking at my baby photos!

> Now, if someone wants to put pre-op and post-op pics up there, you

> can pretty much have the chronical of my life up until about 9!

Yes, it's interesting how the pattern repeats. I have only one digital

photo of me in total (and I've posted it), and none at all prior to my

first school photo at age 5 or 6, so I don't even know what I looked

like before surgery.

Rob W