Re[2]: new member and question

[Guest guest]

Hi Shireen

We live in London but I'm afraid we can't make it on Sunday, we're having people

round that

day. Shame, it would have been nice to meet you all. Keep us posted

about the next one!

Tessa

ABSM> Hi Tessa

ABSM> Welcome to the group.

ABSM> I know this is short notice - and I have no idea where you live - but we

are

ABSM> having a get-together on Sunday in a hotel near Station in

London.

ABSM> We are meeting at 11:00am for a coffee.

ABSM> Everyone is welcome, if you can come it would be nice to meet you and your

ABSM> family.

ABSM> I think there will be 7 or 8 families coming along. At least 5 of them are

ABSM> under the care of Mr Collin.

ABSM> Take care

ABSM> Shireen

ABSM> London, England.

>> blepharophimosis new member and question

>>

>> Hi all

>> I'm a new member too, pleased to meet you all! My son Bipin

>> is 9 months old and has BPES, as does my husband and his

>> brother, sister and Dad.

>> We just saw Mr Collin at Moorfields and he recommended that

>> he does a sort of interim operation to lift Bipin's lids

>> enough so that they don't cover his pupils so that his

>> eyesight can develop properly. It's not the permanent

>> operation (slings?) that many of you are talking about but

>> would only last a few years so that his eyesight can develop.

>> He described it as putting a stitch inside his lids. Have any

>> of you been through this? any before and after photos?

>> Tessa

ABSM>