BPES does not discriminate....

[Guest guest]

It's been a long time that I've visited this group and recently I

have been catching up on the postings. I just love this group and

love how supportive all the members can be. Both my daughter and I

have BPES, along with my father and 2 older sisters. We wish that

this group existed during our time! I do feel fortunate that it

exists for my daughter.

Some of the postings I've read so far is a bit disturbing. There

are couple of postings where BPES is described to be

a " disability " . Another posting wrote if it is related to Asians or

even to orphans. Other postings go as far if BPES is related to the

child's weight!

I would like to say from experience, that BPES does not

discriminate. It is not an Asian, nor an orphan thing. It is not a

disability. It is not a cause for low weights in children.

Children with BPES are normal children. My daughter and your

daugthers and sons are normal kids. And BPES is really nothing. If

we emphasize too much on the negative, then we are teaching our

children the wrong thing.

What BPES is a genetic anomaly. BPES means small eyes. BPES means

droopy eyelids. And BPES does not mean our kids will live unhappy,

unhealthy lives. I grew up happily with my small eyes and so will

my daughter. BPES is cosmetic.

I love how there are photos that show different races across the

world. From US, Singapore, to Europe, to Australia. These photos

and families are our tools to teach our children with bleph that

they are not alone and that they WILL be ok. Perhaps what was once

a " rare " disorder is no longer true. The growth of this group shows

how we are not alone.

So please believe in the positive of BPES and show your kids the

beauty they possess in those little eyes!

Merry Christmas to everyone in this group!