New to BPES Group. Just had our first Son with BPES.

[Guest guest]

Josiah was born 1/17/2007. My wife, , and I (Sam) are well at

home coping with first baby syndrome - lack of sleep, crying, feeding,

clothing and more crying.

I've heard of this group because I have BPES. I had had my surgeries

at a young age, but never knew what this condition was called until I

found this group several years ago. (Actually it never ocurred to me

to ask my Optha. I simply assumed it had no name.)

Anyway, now we have little Josiah. I knew that BPES could be passed

on, and during my wife's pregnancy I kept praying and hoping that he

would get my wife's beautiful eyes.

At the hospital my mother came in to see the baby and I asked her if

his eyes were like mine when I was born. I only intended to get a feel

for whether it was possible that it was not like mine. My mom seemed

irritated, and said that it looked fine, then she left the room. Later

I found out she left to go and cry. I was the only child out of 4 to

get BPES and our family does not have a history of it. A mother's

heart was broken twice.

My wife and I had talked about BPES before we got married. She is a

gentle yet strong woman. She had said that if our child did get BPES

we would get through it together. She also said that because I have it,

I would be able to help our child cope with it. (God had prepared the

right woman for me!)

Well, anyways, and I are here to learn. We live in Northern

Virginia, right out side of Washington DC. We want to begin searching

for doctors and hospitals.

Thanks for reading.

Sam and .