Guest guest Posted January 23, 2007 Report Share Posted January 23, 2007 Josiah was born 1/17/2007. My wife, , and I (Sam) are well at home coping with first baby syndrome - lack of sleep, crying, feeding, clothing and more crying. I've heard of this group because I have BPES. I had had my surgeries at a young age, but never knew what this condition was called until I found this group several years ago. (Actually it never ocurred to me to ask my Optha. I simply assumed it had no name.) Anyway, now we have little Josiah. I knew that BPES could be passed on, and during my wife's pregnancy I kept praying and hoping that he would get my wife's beautiful eyes. At the hospital my mother came in to see the baby and I asked her if his eyes were like mine when I was born. I only intended to get a feel for whether it was possible that it was not like mine. My mom seemed irritated, and said that it looked fine, then she left the room. Later I found out she left to go and cry. I was the only child out of 4 to get BPES and our family does not have a history of it. A mother's heart was broken twice. My wife and I had talked about BPES before we got married. She is a gentle yet strong woman. She had said that if our child did get BPES we would get through it together. She also said that because I have it, I would be able to help our child cope with it. (God had prepared the right woman for me!) Well, anyways, and I are here to learn. We live in Northern Virginia, right out side of Washington DC. We want to begin searching for doctors and hospitals. Thanks for reading. Sam and . Quote Link to comment Share on other sites More sharing options...
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