BPES - Support in Australia

[Guest guest]

Hi there

My 3 week old daughter has just been diagnosed with BPES. I discovered

your website when researching the condition on the internet. Are there

any other members living in Australia that can offer some advice on

doctors , specialists , cosmetic surgeons etc ?

Most people I talk to have never heard of BPES , so I feel like my

husband and I need to get as much information that will help us ask

better questions of the specialists and what we can expect in our

newborn baby, and in the years to come...

Any advice would be most appreciated.

Regards

Catharine