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Hi

The group has a section called "Database". In this part of the site you can see listed people who have chosen to share information about themselves.

Roughly one quarter of the members in the group have put their information here.

As you can see this sort of thing works best if more and more participate.

If you'd like to put in as little or as much information about your circumstances - that would be great.

I have made a list of the Australian members of this group. It is quite easy to see people from other parts of the world.

Regards

Shireen

Name

Email

Address & City

State

Country

People in my family with BPES

Year of birth / Gender

Surgery information

Would like to meet others in area

My ID for Messenger

Antonia Collin

nicoleacollinaapt.au

Sydney

NSW

Austraila

Antonia

2005

yes

Ky

kyliedepreciator.au

Sydney

NSW

Australia

Just me.

1986/female

10 and counting

Sure

ally

kaldioptusnet.au

Gold coast

Queensland

Australia

Myself+2 of my sons.

1967 Female

8 opps from the age of 2 to 16.

yes

allygirl

Bridget Armitage

pcarmitageoptusnet.au

Canberra

ACT

Australia

None

2006,Female

Yes

pc_armitage

Robyn Fortune

drtfortune .au

Perth

Western Australia

Australia

Son, Tyler

2006, Male

First surgery planned for mid 2007.

Yes, definitely.

drtfortune

Rob

r.watsonbigpond (DOT) net.au

Sydney

NSW

Australia

Father, aunty, me, son

1961 / Male

Slings, canthoplasties, squints, tear ducts

Yes

kerry bennett

mnmom1325 .au

Sale

Australia

Daughter,husband,father inlaw the list goes on

Daughter 2002 husband 1969

husband had surgury when he was a child didn't work daughter having her first surgery later this year.

yes please

a and Charlie Schneider

mepasbigpond

Melbourne

Australia

Just charlie

2002/male

none yet

yes

charlie

Karolin Demircian

karolin_demircian

2 Close Endeavour Hill, Melbourne

3802

Australia

Myself, daughter 5 yrs son 10mths

1975 Female

Surgery x 3

Yes

Home phone = 613- 9700 7321; work = 0413 936188

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