Re: Eating Prog at OSH or elsewhere

[Guest guest]

Dear All:

We are considering the eating program headed by Dr. Lienscheid at

OSU/Children's Hospital, Columbus, OH. Our nine year old daughter has had

severe eating issues for years. Her diet now consists mainly of milk mixed

with Pediasure(only from a certain sippy cup), juices, popcorn, fruit

roll-ups etc. We were concerned for a long time that she could not chew and

swallow, but she now is eating popcorn & fruit-rollups-chewing & swallowing,

so that is not the problem.

We have done all kinds of OT/Oral desensitization, asked every doctor we have

seen and noone has been even remotely been able to help us. Our daughter is

thin (but I was too at her age) but it growing tall. I would be willing to

accept her eating some items normally but her diet is so limited. I really

don't know what more we can do except something drastic like this.

Autism is difficult enough without this eating disorder thing. What is

totally frustrating is that when she was really little, pre-autism, she ate

everything-meat, vegetables, fruit - both table food & baby food. Then,

along with what words she had, she lost her wanting to eat too. I would like

to slap every doctor we had seen asking what we could to about this and they

would tell us not to worry, she would eat when she was hungry. WRONG!!

Sorry to be so long and not exactly on topic. Any info about this program or

another that you know of would be very helpful. I would like to find out

also for those who have done this type of program if the outcome remained

months after your child went through the program.

Thanks all,

Jill

(jillplato@...)

PS We live in Illinois

[Guest guest]

In a message dated 07/25/2000 9:20:54 PM Eastern Daylight Time,

jillplato@... writes:

<< Autism is difficult enough without this eating disorder thing. What is

totally frustrating is that when she was really little, pre-autism, she ate

everything-meat, vegetables, fruit - both table food & baby food. Then,

along with what words she had, she lost her wanting to eat too. I would

like

to slap every doctor we had seen asking what we could to about this and they

would tell us not to worry, she would eat when she was hungry. WRONG!!

Sorry to be so long and not exactly on topic. Any info about this program

or

another that you know of would be very helpful. I would like to find out

also for those who have done this type of program if the outcome remained

months after your child went through the program.

Thanks all,

Jill >>

Oh...Ditto for my little guy, Jill. Ate all kinds of wonderful foods before

autism. His eating was the first thing to go after his initial regression

via his immunizations (while sick and not eating well in the first place! -

But his doctor didn't seem too concerned THEN and he still isn't to this

day!!!) Any information you get, I would be thrilled if you could remember

to pass it on!

[Guest guest]

In a message dated 7/25/00 8:20:53 PM Central Daylight Time,

jillplato@... writes:

<< Autism is difficult enough without this eating disorder thing. What is

totally frustrating is that when she was really little, pre-autism, she ate

everything-meat, vegetables, fruit - both table food & baby food. Then,

along with what words she had, she lost her wanting to eat too. I would

like

to slap every doctor we had seen asking what we could to about this and they

would tell us not to worry, she would eat when she was hungry. WRONG!! >>

You could be describing our son and what we were told by folks too. He was a

very good eater until he became ill shortly after turning 2 and then would

only eat cheerios -- absolutely nothing else. We jumped through many hoops

to address this problem and now he is eating a very good diet. He's still

kind of picky but will eat many veggies, meat, fish, fruits and grains.

Since you're posting this on the autism treatment list, I'm assuming you've

found that you're daughter is metals toxic. I can tell you that I think that

played a huge roll in my son's eating difficulties because during the fourth

round of DMSA, he suddenly began trying new foods. That week, he tried eight

new foods and most of them stayed in his diet long afterwards. He actually

went through the kitchen trying out new foods. This was a huge thing for him

because it had taken us two years of intensive Son-Rise work focusing on

eating to get him to even try two new foods. That work involved playing with

food, making him comfortable being around food, eating it in front of him,

and adding minute bits to other things he'd eat to dessensitize him.

Shepard on this list can tell you about the many hours our volunteers spent

eating in front of Curtis trying to make food look good. She was one of the

only ones that didn't get fat that year .

Other things I think helped alot was addressing his gut problems by doing a

comprehensive digestive stool analysis and treating the pathogenic bacteria

that had infested his gut. We also had done some things to lessen his

sensory overload like Sensory Integration therapy, trigeminal stimulation,

rubbing with tactile gloves, brushing and deep pressure. As he became less

sensative and more open to trying new things, our eating in front of him,

making it look really good, offering but not demanding he eat finally paid

off.

Gaylen

[Guest guest]

What is the program? It took a year but my 5.5 year old boy is eating foods

I never would have believed possible, all achieved via ABA. It took some

strong arming in some places but now he is much better off than I could have

imagined.

Heidi

Re: [ ] Eating Prog at OSH or elsewhere

> Dear All:

>

> We are considering the eating program headed by Dr. Lienscheid at

> OSU/Children's Hospital, Columbus, OH. Our nine year old daughter has had

> severe eating issues for years. Her diet now consists mainly of milk

mixed

> with Pediasure(only from a certain sippy cup), juices, popcorn, fruit

> roll-ups etc. We were concerned for a long time that she could not chew

and

> swallow, but she now is eating popcorn & fruit-rollups-chewing &

swallowing,

> so that is not the problem.

>

> We have done all kinds of OT/Oral desensitization, asked every doctor we

have

> seen and noone has been even remotely been able to help us. Our daughter

is

> thin (but I was too at her age) but it growing tall. I would be willing

to

> accept her eating some items normally but her diet is so limited. I

really

> don't know what more we can do except something drastic like this.

>

> Autism is difficult enough without this eating disorder thing. What is

> totally frustrating is that when she was really little, pre-autism, she

ate

> everything-meat, vegetables, fruit - both table food & baby food. Then,

> along with what words she had, she lost her wanting to eat too. I would

like

> to slap every doctor we had seen asking what we could to about this and

they

> would tell us not to worry, she would eat when she was hungry. WRONG!!

>

> Sorry to be so long and not exactly on topic. Any info about this program

or

> another that you know of would be very helpful. I would like to find out

> also for those who have done this type of program if the outcome remained

> months after your child went through the program.

>

> Thanks all,

>

> Jill

> (jillplato@...)

>

> PS We live in Illinois

>

>

>

>

[Guest guest]

Contact my friend at handle institute. AND

on the tables, food preferences, selectivity and anorexed behavior is a sign

of mercury poisining.

www.handle.org

her personal email

judith@...

Kathy

Re: [ ] Eating Prog at OSH or elsewhere

>Dear All:

>

>We are considering the eating program headed by Dr. Lienscheid at

>OSU/Children's Hospital, Columbus, OH. Our nine year old daughter has had

>severe eating issues for years. Her diet now consists mainly of milk mixed

>with Pediasure(only from a certain sippy cup), juices, popcorn, fruit

>roll-ups etc. We were concerned for a long time that she could not chew

and

>swallow, but she now is eating popcorn & fruit-rollups-chewing &

swallowing,

>so that is not the problem.

>

>We have done all kinds of OT/Oral desensitization, asked every doctor we

have

>seen and noone has been even remotely been able to help us. Our daughter

is

>thin (but I was too at her age) but it growing tall. I would be willing to

>accept her eating some items normally but her diet is so limited. I really

>don't know what more we can do except something drastic like this.

>

>Autism is difficult enough without this eating disorder thing. What is

>totally frustrating is that when she was really little, pre-autism, she ate

>everything-meat, vegetables, fruit - both table food & baby food. Then,

>along with what words she had, she lost her wanting to eat too. I would

like

>to slap every doctor we had seen asking what we could to about this and

they

>would tell us not to worry, she would eat when she was hungry. WRONG!!

>

>Sorry to be so long and not exactly on topic. Any info about this program

or

>another that you know of would be very helpful. I would like to find out

>also for those who have done this type of program if the outcome remained

>months after your child went through the program.

>

>Thanks all,

>

>Jill

>(jillplato@...)

>

>PS We live in Illinois

>

>

>

>