Re: hey everyone just wanted to let

[Guest guest]

Hi Angel,

I am so glad that ie is doing better. I remember how scary it was when

we went thru that.....praying all the way to the hospital.

It's disheartening to hear that the paramedic was inept, & that although he

had been reported on before that steps weren't taken to have him retrained

before he got his hands on ie. It is good to hear that others are not

allowing this mistreatment to continue & are reporting it.

I hope that ie continues to do well.

~Sandy O.

[Guest guest]

Hi Angel,

I am so glad that ie is doing better. I remember how scary it was when

we went thru that.....praying all the way to the hospital.

It's disheartening to hear that the paramedic was inept, & that although he

had been reported on before that steps weren't taken to have him retrained

before he got his hands on ie. It is good to hear that others are not

allowing this mistreatment to continue & are reporting it.

I hope that ie continues to do well.

~Sandy O.

[Guest guest]

good news all. my son was hospitalized twice with croup but quickly grew out

of it. but now we are battling allergies:(

kerrie

[Guest guest]

good news all. my son was hospitalized twice with croup but quickly grew out

of it. but now we are battling allergies:(

kerrie

[Guest guest]

Angel,

My heart goes out to you, as Sara has had croup a number of times, as well, and I know that feeling of panic. It seems since Sara had her tonsils removed, she has done better, but every time she gets a cold, I so hope it is not the kind that will bring on croup. I'm glad ie is better, but so sorry you had to go through what you did.

Marcia

Mom to Sara (DS) and 6 and Lucas 10

[Guest guest]

Angel,

Gosh that sounds just too scarey for words. Glad ie is doing much better. Croup is very frightening.

Keep well ie - thank goodness you are home safe and sound!

CarolynMum to on, , Emma (Ds) and Nicki (Ds)

[Guest guest]

carolyn thank you frankie is doing much better and it was the scariest thing i have ever had to deal with and never want that to happen again..... how are your precious girls ,,they are to cute for words ... thanks again ,,,angel

Angel 28 mom to 3 amanda (10) samantha (8) and frankie(4 ds) & dh frank 29

-- Re: hey everyone just wanted to let

Angel,

Gosh that sounds just too scarey for words. Glad ie is doing much better. Croup is very frightening.

Keep well ie - thank goodness you are home safe and sound!

CarolynMum to on, , Emma (Ds) and Nicki (Ds)http://DSyndrome.com/Multiples

[Guest guest]

Hi Angel and all,

I am so please to hear that ie is doing better. Nicki gets croup and we have ended up in hospital twice with her turning blue. I tried to get the doctors to give me a script for the steroid so I can have it on hand and give it to her when it all hits the fan (so to speak!). They refused ....I don't know why.

Emma has just had a set of tubes inserted and her ears cleared of massive amounts of glue and grime. She has been hysterical ever since (one week now). I can only summise that she is hearing all these new sounds and it's freaking her right out. I wish she could tell me what she is feeling but she just needs oodles of cuddles and kisses and reassurance. I am so angry at her ENT specialist for letting this glue ear condition continue for so long. I sure have learned my lesson to keep an accurate diary and remind myself when checkups are due and not rely on the doctors to send me a check up reminder.

Nicki is doing so well......she has a wonderful sense of humour and her language is coming along. She is teaching Emma a few new words. Emma takes more notice of Nicki than anyone - Nicki is her favourite teacher. Nicki was 'reading' my book on nutrition yesterday, babbling away like she was reading every word. SHe suddenly looked up and saw me watching her. She got this adorable look on her face like she'd been caught! Emma was sitting beside her saying "Ohhhh" like she was understanding every word Nicki was reading. I just left them to it. It was hilarious!

on and are just great. They are very aware of what Ds is all about. They blame every bit of naughty behaviour on Ds which I try to discourage. When I get upset at Emma's antics, on gives me a hug and says "It's alright Mum....Emma has Down syndrome and that's why she's doing what she's doing". He is VERY worried about Emma starting school next year. He's not sure if her teacher and classmates will be as patient as we are. As they are in a Montessori primary school, on and are in the classroom right next door and have loads of contact with Emma's class which I think is wonderful. I have to remind on that she'll be fine and that he has to trust that she will cope and not to worry. He stays awake at night fretting for her. on is a deep fellow for a 9 year old (actually for any age).

Wow - what a long email! Better dash and do some work!

CarolynMum to on, , Emma (Ds) and Nicki (Ds)www.geocities.com/nz_mom/sykesfamily.html

[Guest guest]

God bless america

hi carolyn, poor nicki and poor mommy i hope i dont have to go through this twice seeing my baby turn blue once was enough to last me a life time thank you ,,,,the hospital told me to ask my dr if i would get a script of the treatment for the neb , but with all thats going on i totaly forgot ,, plus they said if i had to use it i would have to do it right before going to the hospital ,cause sometimes it will work then it can make the croup worse when it wares off,,,,,and i know the tube thing to samantha is on her second pair but one fell out at 7 months time but the other one is still in but now that one ear seems to be filling up again , the tv has to be louder the radio has to be louder you have to talk louder for her to hear you so i think we might be looking at another set of tubes and she already has scar tissue on her eardrum ,, do you think emma might have a ear infection , when samie first got the eartubes in she got an enfection , but in the two years she has had only 2 ear infections which is great for her ,,, it could be that she is not used to the noise or an ear infection ....and i know what you mean about letting it go so long to samie used to have tons of ear infections and the dr would only give her antibiotics and thats it for 6 yrs of her life so i finaly said forget this and switched dr's exspecialy cause of frankie well right aways we got an appointment with the ear dr and then she got her tubes and was doing so much better there dr now is great she was refered from flower city downsyndrome a group we have here.... and nikki pretending to read had to be so precious , and talk about protective you son and my daughters should get together , frankie used to have his own room but then the girls started to sleep next to his bed all the time and his room is small so i just moved his bed in there room so they could sleep in there beds yeah right they still have to sleep next to his bed they love frankie so much and they have to be there for him always thank god i stopped them from doing everything for him though he would have never learned things on his own ,,,,,, now if only i could get them two to be nice to eachother everything would be great sister rivelry i tell ya... got a love them though ...... i wish i could meet your girls they are just to precious your whole family is precious and i would love to meat you all your a great mom and may god allways bless you...... ok theres my book for the month.... take care and give all the kids hugs and kisses for me......angel

Angel 28 mom to 3 amanda (10) samantha (8) and frankie(4 ds) & dh frank 29

-- Re: hey everyone just wanted to let

Hi Angel and all,

I am so please to hear that ie is doing better. Nicki gets croup and we have ended up in hospital twice with her turning blue. I tried to get the doctors to give me a script for the steroid so I can have it on hand and give it to her when it all hits the fan (so to speak!). They refused ....I don't know why.

Emma has just had a set of tubes inserted and her ears cleared of massive amounts of glue and grime. She has been hysterical ever since (one week now). I can only summise that she is hearing all these new sounds and it's freaking her right out. I wish she could tell me what she is feeling but she just needs oodles of cuddles and kisses and reassurance. I am so angry at her ENT specialist for letting this glue ear condition continue for so long. I sure have learned my lesson to keep an accurate diary and remind myself when checkups are due and not rely on the doctors to send me a check up reminder.

Nicki is doing so well......she has a wonderful sense of humour and her language is coming along. She is teaching Emma a few new words. Emma takes more notice of Nicki than anyone - Nicki is her favourite teacher. Nicki was 'reading' my book on nutrition yesterday, babbling away like she was reading every word. SHe suddenly looked up and saw me watching her. She got this adorable look on her face like she'd been caught! Emma was sitting beside her saying "Ohhhh" like she was understanding every word Nicki was reading. I just left them to it. It was hilarious!

on and are just great. They are very aware of what Ds is all about. They blame every bit of naughty behaviour on Ds which I try to discourage. When I get upset at Emma's antics, on gives me a hug and says "It's alright Mum....Emma has Down syndrome and that's why she's doing what she's doing". He is VERY worried about Emma starting school next year. He's not sure if her teacher and classmates will be as patient as we are. As they are in a Montessori primary school, on and are in the classroom right next door and have loads of contact with Emma's class which I think is wonderful. I have to remind on that she'll be fine and that he has to trust that she will cope and not to worry. He stays awake at night fretting for her. on is a deep fellow for a 9 year old (actually for any age).

Wow - what a long email! Better dash and do some work!

CarolynMum to on, , Emma (Ds) and Nicki (Ds)www.geocities.com/nz_mom/sykesfamily.htmlhttp://DSyndrome.com/Multiples