Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 yup kathy.... there is a study going on at ucsd school of medicine..dept of neurosciences..it's called metabolism related autism ...they say that your child should be having siezures though?? contact dr ted page on 619 534 4435 and dr arnie millar on 619-534 4839 try arnie first he is the friendliest one :-) they will do a 24 hour uric acid urine test to see if the creatinin is low of normal...... good luck :-) paula reza......... [ ] new therapy? > Has anyone heard of uridine therapy? For kiddos with a mito metabolic basis > for their autism? > Kathy > <!--See my SuperSig: http://proxy.supersig.com/sig?45002326_45002140--> > <HTML><HEAD><TITLE>See my SuperSig: > http://proxy.supersig.com/sig?45002326_45002140</TITLE></HEAD><BODY > BGCOLOR=#FFFFFF><IMG SRC= " http://supersig.com/temp/confetti_n_360.gif " > BORDER=0><BR><IMG SRC= " http://supersig.com/temp/confetti_w1_80.gif " > BORDER=0><IMG SRC= " /temp/45002140_157045583618.gif " BORDER=0><A > HREF= " http://supersig.com/r.php3?url=http://home1.gte.net/jblanco2 & id=450023 > 26_45002140 " ><IMG SRC= " /temp/45002140_157061315664.gif " BORDER=0></A><IMG > SRC= " /temp/45002140_10580_956175606.gif " BORDER=0><IMG > SRC= " http://supersig.com/temp/confetti_e1_80.gif " BORDER=0><BR><IMG > SRC= " http://supersig.com/temp/confetti_s_360.gif " BORDER=0><BR><A > HREF= " http://supersig.com/r.php3?url=http://supersig.com/?45002326_45002140 & > id=45002326_45002140 " ><IMG > SRC= " http://supersig.com/images/sigmaker/button_getyours.gif " ALT= " get your > supersig! " HSPACE=227 VSPACE=2 BORDER=0 ALIGN=LEFT></A><BR></BODY></HTML> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 is this for people only in california? crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 they say the call cannot be completed as dialed, wrong number. Is this only for residents of a certain state. crystal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 a My child does have seizures and also muscle wasting. I will give them a call, thanks so much! KAthy Re: [ ] new therapy? yup kathy.... there is a study going on at ucsd school of medicine..dept of neurosciences..it's called metabolism related autism ...they say that your child should be having siezures though?? contact dr ted page on 619 534 4435 and dr arnie millar on 619-534 4839 try arnie first he is the friendliest one :-) they will do a 24 hour uric acid urine test to see if the creatinin is low of normal...... good luck :-) paula reza......... [ ] new therapy? > Has anyone heard of uridine therapy? For kiddos with a mito metabolic basis > for their autism? > Kathy > <!--See my SuperSig: http://proxy.supersig.com/sig?45002326_45002140--> > <HTML><HEAD><TITLE>See my SuperSig: > http://proxy.supersig.com/sig?45002326_45002140</TITLE></HEAD><BODY > BGCOLOR=#FFFFFF><IMG SRC= " http://supersig.com/temp/confetti_n_360.gif " > BORDER=0><BR><IMG SRC= " http://supersig.com/temp/confetti_w1_80.gif " > BORDER=0><IMG SRC= " /temp/45002140_157045583618.gif " BORDER=0><A > HREF= " http://supersig.com/r.php3?url=http://home1.gte.net/jblanco2 & id=450023 > 26_45002140 " ><IMG SRC= " /temp/45002140_157061315664.gif " BORDER=0></A><IMG > SRC= " /temp/45002140_10580_956175606.gif " BORDER=0><IMG > SRC= " http://supersig.com/temp/confetti_e1_80.gif " BORDER=0><BR><IMG > SRC= " http://supersig.com/temp/confetti_s_360.gif " BORDER=0><BR><A > HREF= " http://supersig.com/r.php3?url=http://supersig.com/?45002326_45002140 & > id=45002326_45002140 " ><IMG > SRC= " http://supersig.com/images/sigmaker/button_getyours.gif " ALT= " get your > supersig! " HSPACE=227 VSPACE=2 BORDER=0 ALIGN=LEFT></A><BR></BODY></HTML> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 a I called Dr Millars phone number (by the way the area code has changed). I would like to know more about the mechanisms of creatinin being low? (andy, amy or bernie or theresa?). fits the muscle wasting and seizures and suspect mito disorder. Of late, he is on the second week of the protocol, and is experiencing some siezure activity (grand mal on Sunday) and also a tongue writhing rhythemic movement at times. His tongue is swollen a bit? Not sure if that is becuase he bit it, but it looks irritated, strawberry like? (strawberry like has been ever since he had a vaccine reaction when he was three years old-but it is more prounounced since chelation?) He is eating very poorly as well? Kathy Re: [ ] new therapy? yup kathy.... there is a study going on at ucsd school of medicine..dept of neurosciences..it's called metabolism related autism ...they say that your child should be having siezures though?? contact dr ted page on 619 534 4435 and dr arnie millar on 619-534 4839 try arnie first he is the friendliest one :-) they will do a 24 hour uric acid urine test to see if the creatinin is low of normal...... good luck :-) paula reza......... [ ] new therapy? > Has anyone heard of uridine therapy? For kiddos with a mito metabolic basis > for their autism? > Kathy > <!--See my SuperSig: http://proxy.supersig.com/sig?45002326_45002140--> > <HTML><HEAD><TITLE>See my SuperSig: > http://proxy.supersig.com/sig?45002326_45002140</TITLE></HEAD><BODY > BGCOLOR=#FFFFFF><IMG SRC= " http://supersig.com/temp/confetti_n_360.gif " > BORDER=0><BR><IMG SRC= " http://supersig.com/temp/confetti_w1_80.gif " > BORDER=0><IMG SRC= " /temp/45002140_157045583618.gif " BORDER=0><A > HREF= " http://supersig.com/r.php3?url=http://home1.gte.net/jblanco2 & id=450023 > 26_45002140 " ><IMG SRC= " /temp/45002140_157061315664.gif " BORDER=0></A><IMG > SRC= " /temp/45002140_10580_956175606.gif " BORDER=0><IMG > SRC= " http://supersig.com/temp/confetti_e1_80.gif " BORDER=0><BR><IMG > SRC= " http://supersig.com/temp/confetti_s_360.gif " BORDER=0><BR><A > HREF= " http://supersig.com/r.php3?url=http://supersig.com/?45002326_45002140 & > id=45002326_45002140 " ><IMG > SRC= " http://supersig.com/images/sigmaker/button_getyours.gif " ALT= " get your > supersig! " HSPACE=227 VSPACE=2 BORDER=0 ALIGN=LEFT></A><BR></BODY></HTML> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 no ...i'm from scotland uk..... paula reza Re: [ ] new therapy? > is this for people only in california? > > > crystal > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 i got it last year ? maybe it changed ... ??? this is their address... 0624 university of california san diego 9500 gillman drive la jolla california 92093 hope it helps paula reza :-) Re: [ ] new therapy? > they say the call cannot be completed as dialed, wrong number. Is this only > for residents of a certain state. > > crystal > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2000 Report Share Posted August 15, 2000 hello kathy ... your child seems to fit the bill....they tell me that they can reverse the autism!! sounds too good to be true huh?? the uridine is only available through teds study... so i hope that it is still running!! (i posted their mailing address to chrystal) my daughter asiya did'nt go further than the creatinin tests....so i can't fill you in further...sorry good luck paula reza [ ] new therapy? > > > > Has anyone heard of uridine therapy? For kiddos with a mito metabolic > basis > > for their autism? > > Kathy > > <!--See my SuperSig: http://proxy.supersig.com/sig?45002326_45002140--> > > <HTML><HEAD><TITLE>See my SuperSig: > > http://proxy.supersig.com/sig?45002326_45002140</TITLE></HEAD><BODY > > BGCOLOR=#FFFFFF><IMG SRC= " http://supersig.com/temp/confetti_n_360.gif " > > BORDER=0><BR><IMG SRC= " http://supersig.com/temp/confetti_w1_80.gif " > > BORDER=0><IMG SRC= " /temp/45002140_157045583618.gif " BORDER=0><A > > > HREF= " http://supersig.com/r.php3?url=http://home1.gte.net/jblanco2 & id=450023 > > 26_45002140 " ><IMG SRC= " /temp/45002140_157061315664.gif " BORDER=0></A><IMG > > SRC= " /temp/45002140_10580_956175606.gif " BORDER=0><IMG > > SRC= " http://supersig.com/temp/confetti_e1_80.gif " BORDER=0><BR><IMG > > SRC= " http://supersig.com/temp/confetti_s_360.gif " BORDER=0><BR><A > > > HREF= " http://supersig.com/r.php3?url=http://supersig.com/?45002326_45002140 & > > id=45002326_45002140 " ><IMG > > SRC= " http://supersig.com/images/sigmaker/button_getyours.gif " ALT= " get > your > > supersig! " HSPACE=227 VSPACE=2 BORDER=0 ALIGN=LEFT></A><BR></BODY></HTML> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 interesting, on many epilepsy lists that I am on, they speak of creatine levels all the time? Could someone give me ahealthy explanation why this is off in autism KAthy Re: [ ] new therapy? >hello kathy ... >your child seems to fit the bill....they tell me that they can reverse the >autism!! sounds too good to be true huh?? >the uridine is only available through teds study... >so i hope that it is still running!! >(i posted their mailing address to chrystal) >my daughter asiya did'nt go further than the creatinin tests....so i can't >fill you in further...sorry >good luck >paula reza > > [ ] new therapy? >> >> >> > Has anyone heard of uridine therapy? For kiddos with a mito metabolic >> basis >> > for their autism? >> > Kathy >> > <!--See my SuperSig: http://proxy.supersig.com/sig?45002326_45002140--> >> > <HTML><HEAD><TITLE>See my SuperSig: >> > http://proxy.supersig.com/sig?45002326_45002140</TITLE></HEAD><BODY >> > BGCOLOR=#FFFFFF><IMG SRC= " http://supersig.com/temp/confetti_n_360.gif " >> > BORDER=0><BR><IMG SRC= " http://supersig.com/temp/confetti_w1_80.gif " >> > BORDER=0><IMG SRC= " /temp/45002140_157045583618.gif " BORDER=0><A >> > >> >HREF= " http://supersig.com/r.php3?url=http://home1.gte.net/jblanco2 & id=45002 3 >> > 26_45002140 " ><IMG SRC= " /temp/45002140_157061315664.gif " >BORDER=0></A><IMG >> > SRC= " /temp/45002140_10580_956175606.gif " BORDER=0><IMG >> > SRC= " http://supersig.com/temp/confetti_e1_80.gif " BORDER=0><BR><IMG >> > SRC= " http://supersig.com/temp/confetti_s_360.gif " BORDER=0><BR><A >> > >> >HREF= " http://supersig.com/r.php3?url=http://supersig.com/?45002326_45002140 & >> > id=45002326_45002140 " ><IMG >> > SRC= " http://supersig.com/images/sigmaker/button_getyours.gif " ALT= " get >> your >> > supersig! " HSPACE=227 VSPACE=2 BORDER=0 >ALIGN=LEFT></A><BR></BODY></HTML> >> > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
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