Re: CF/GF Diet (stopped diet)

[Guest guest]

In a message dated 8/14/00 11:30:33 PM Eastern Daylight Time,

mrsulu@... writes:

<< My Dr. seems to

think that it is not to his advantage that the diet did not work and

thinks that he may be allergic to other foods. >>

We had a similar experience with casein and gluten several years ago. As far

as I am concerned removing them may work for some , but not for all. Mercury

poisoning can cause the symptoms of autism whether or not you have a problem

with these proteins. We are seeing notable improvement in our soon to be 8

year old daughter with the every 3 hour lipoic acid and captomer (DMSA) (33

1/3 mg of each as she weighs 74 lbs) for 3 days on and 4 days off.

Generally, she has had improved interaction and more spontaneous language.

Her camp counselor reported that she has begun imitating her peers play. We

are very hopeful for continued improvement.

Joe Marciano

[Guest guest]

Kerry,

Nobody really understands why the casein peptides clear quickly (in days)

but the gluten peptides can take VERY long. I have read a study looking at

those with celiac who start a gluten free diet, but it is looking at a

marker I've been studying for many years: beta 2 microglobulin, which is

more associated with autoimmune phenomena. For some unexplained reason, in

these people with celiac, it took eight months for the levels of this

molecule to drop from a pathological level to a normal level after the diet

was begun, and at first, its levels got worse! Why does it take so long?

An equivalent study has not been done to see how this same molecule

responds to change in diet in autism, but there is a possibility it is

relevant to the length of time you saw a lack of response in your

child. We've still plenty to learn!

At 8/15/2000 +000003:19 AM, you wrote:

>Hi Friends,

>

>I started my son on regular food after being CF/GF for 6 months. His

>numbers were high but I saw no change in his development, and saw no

>negative reaction to the milk and wheat products. My Dr. seems to

>think that it is not to his advantage that the diet did not work and

>thinks that he may be allergic to other foods. She also said that

>with his numbers so high that we should see a big change in his

>development after seveal months. Has anyone else had a similar

>experience? Any comments would be appreciated.

>

>Thanks,

>

>Kerry

>

>

>

[Guest guest]

Kerry LoBosco wrote:>

> My Dr. seems to

> think that it is not to his advantage that the diet did not work and

> thinks that he may be allergic to other foods. She also said that

> with his numbers so high that we should see a big change in his

> development after seveal months. Has anyone else had a similar

> experience? Any comments would be appreciated.

>

>

Kerry,

Did you do blood testing for food allergy? We were surprised to find out

that my daughter was highly reactive to turkey-a seemingly harmless food

that we fed her ALL the time. If we hadn't tested and just remove gluten

and casien we would not have had the success we've had with the diet.

Lynette

[Guest guest]

We've been on the GFCF diet for 19 months now. We are not going back for a

while because we know with older kids it can take up to 2 years to see

results!

Barb

Re: [ ] CF/GF Diet (stopped diet)

>Kerry,

>

>Nobody really understands why the casein peptides clear quickly (in days)

>but the gluten peptides can take VERY long. I have read a study looking at

>those with celiac who start a gluten free diet, but it is looking at a

>marker I've been studying for many years: beta 2 microglobulin, which is

>more associated with autoimmune phenomena. For some unexplained reason, in

>these people with celiac, it took eight months for the levels of this

>molecule to drop from a pathological level to a normal level after the diet

>was begun, and at first, its levels got worse! Why does it take so long?

>

>An equivalent study has not been done to see how this same molecule

>responds to change in diet in autism, but there is a possibility it is

>relevant to the length of time you saw a lack of response in your

>child. We've still plenty to learn!

>

>

>

>At 8/15/2000 +000003:19 AM, you wrote:

>>Hi Friends,

>>

>>I started my son on regular food after being CF/GF for 6 months. His

>>numbers were high but I saw no change in his development, and saw no

>>negative reaction to the milk and wheat products. My Dr. seems to

>>think that it is not to his advantage that the diet did not work and

>>thinks that he may be allergic to other foods. She also said that

>>with his numbers so high that we should see a big change in his

>>development after seveal months. Has anyone else had a similar

>>experience? Any comments would be appreciated.

>>

>>Thanks,

>>

>>Kerry

>>

>>

>>

[Guest guest]

I too did not see much change with my son at first. I stopped the

diet and then three weeks later, I noticed the changes.

I was looking for verbalizaion & developmental issues to improve.

I did not notice the " little things " ...ie: brushing his teeth, trying

to dress himself, etc.

We went back on the diet with an enzyme (Vidocase). Two weeks later,

my son is speaking in full sentences!!!!

One of my friends who is doing the diet told me that it takes over 8

months for milk to leave a child's system.

Do you have a DAN doctor?

-- In egroups, " Kerry LoBosco " <mrsulu@w...>

wrote:

> Hi Friends,

>

> I started my son on regular food after being CF/GF for 6 months.

His

> numbers were high but I saw no change in his development, and saw

no

> negative reaction to the milk and wheat products. My Dr. seems to

> think that it is not to his advantage that the diet did not work

and

> thinks that he may be allergic to other foods. She also said that

> with his numbers so high that we should see a big change in his

> development after seveal months. Has anyone else had a similar

> experience? Any comments would be appreciated.

>

> Thanks,

>

> Kerry