Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Maybe I'm missing something here, but I don't remember anyone being that unfriendly to you here. Yes, a few people wrote to disagree with your protocol. Why is that a problem? I've seen this happen on so many lists, and I think it's because we are all writing here and not talking. If we had the benefit of seeing each other, along with body language and facial expression, we'd all be great friends and there would be no problems. But because we must rely on the written word and it's great limitations, somebody writes something that someone else misunderstands, and it escalates into something nasty. Then eventually somebody says " I'm going to take my toys and go home! " or something to that effect. Ok, so some people misunderstand the all caps thing. Personally, unless someone writes the whole message in all caps, I don't consider it yelling, just emphasis. So if an apology is what you want, here goes. If anything I've written here or anywhere else has offended you, I'm sorry. Please stay. We want to hear about your childs success and how you are helping your son. > Well, we have been using 1/3 of a capsule ( an itsy bitsy capsule ) > of Twinlabs Melatonin. It's a 3mg cap and it doesn't take a lot to > knock Cam out at night, LOL, so we use a very small amount. > > Cam is thriving and in fact has shown some truly fabulous effects of > the first round but as I have unceremoniusly been yelled at ( talk > about bad list etiquette )for daring to talk about a non SR dosing of > DMSA, I shall no longer post any details nor any further questions to > this group. It apparently infuriates those of you who are less > tolerant of differences in methodology. > > If anyone wishes to know how we are doing you can email me > personally. I think bad manners has been adequately reflected in more > than just saying thank you or how old is your child here lately. > > Suffice it to say we are having a very nice week after the first > round and looking forweard to rounds two etc. I would wish you all > the best of luck regardless of your path to success and will leave > saying that I expected better manners from this list as I know that > when I have said something badly or perhaps poorly might be a better > word, I have always followed up with an apology to that person even > if that comment I intially made was not intended to hurt. Once I > found out I had hurt someone I was horrified and said so. I expected > at least as much and have received nothing from anyone here. > That in itself is very bad etiquette, wouldn't you say.... actually, > I would call it plain old rude. > Jeannie G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Jeannie, Your original post on the subject asked list members for their opinions. My response was meant to convey my opinion on the topic, not to criticize you. I'm sorry if your feelings were hurt. Thanks for sharing. Kathy [ ] melatonin and mercury and a comment > >Well, we have been using 1/3 of a capsule ( an itsy bitsy capsule ) >of Twinlabs Melatonin. It's a 3mg cap and it doesn't take a lot to >knock Cam out at night, LOL, so we use a very small amount. > >Cam is thriving and in fact has shown some truly fabulous effects of >the first round but as I have unceremoniusly been yelled at ( talk >about bad list etiquette )for daring to talk about a non SR dosing of >DMSA, I shall no longer post any details nor any further questions to >this group. It apparently infuriates those of you who are less >tolerant of differences in methodology. > >If anyone wishes to know how we are doing you can email me >personally. I think bad manners has been adequately reflected in more >than just saying thank you or how old is your child here lately. > >Suffice it to say we are having a very nice week after the first >round and looking forweard to rounds two etc. I would wish you all >the best of luck regardless of your path to success and will leave >saying that I expected better manners from this list as I know that >when I have said something badly or perhaps poorly might be a better >word, I have always followed up with an apology to that person even >if that comment I intially made was not intended to hurt. Once I >found out I had hurt someone I was horrified and said so. I expected >at least as much and have received nothing from anyone here. >That in itself is very bad etiquette, wouldn't you say.... actually, >I would call it plain old rude. >Jeannie G. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Jeannie, I for one would really appreciate it if you would remain active on this list. I think we all benefit from hearing about a variety of options and this list does seem to be a bit one-sided towards one particular protocol of chelation I think because many are uncomfortable speaking up if they are doing differently. I do know many have e-mailed me privately about using different protocols. Even if folks do not agree with another's methods, it is still very helpful to hear about all aspects folks are going through and what they are doing to help their kiddos. Given that many parents are probably metals toxic themselves or at least stressed in dealing with such a challenge with their children, folk's responses may seem more brittle than actually meant. Perhaps everyone could keep that in mind and try to be more respectful and open even if you don't agree with what is being said? Also, to prevent future folks from feeling attacked, try to maintain the attitude that we all want what is best for our children and perhaps each has a different road which would be successful in each individual case. You can give advice and suggestions but only the parent truly knows and understands their individual child. Gaylen PS I'm really happy to hear that chelation is going well for you guys and would appreciate hearing your experiences even if you don't choose to share with the group . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 I do not follow the every 4 hour schedule. We even use DMPS and melatonin. We are doing great and my kids have normalized neurologically. I use the melatonin too. I have been slamed from time to time, I acknowledge I do not know everything, but I do know what works for us and we are down to once a day dosing and chelating with DMSA on weekends only and DMPS every 2-3 weeks. We are great and there are no signs of mercury SLAMMING IN OUR BRAINS. In fact, the opposite seems to have occured. My kids have normalized and I am feeling much better. So, I hope you keep posting as others read your posts and either do not reply or do not even post on elist. Beverly > Well, we have been using 1/3 of a capsule ( an itsy bitsy capsule ) > of Twinlabs Melatonin. It's a 3mg cap and it doesn't take a lot to > knock Cam out at night, LOL, so we use a very small amount. > > Cam is thriving and in fact has shown some truly fabulous effects of > the first round but as I have unceremoniusly been yelled at ( talk > about bad list etiquette )for daring to talk about a non SR dosing of > DMSA, I shall no longer post any details nor any further questions to > this group. It apparently infuriates those of you who are less > tolerant of differences in methodology. > > If anyone wishes to know how we are doing you can email me > personally. I think bad manners has been adequately reflected in more > than just saying thank you or how old is your child here lately. > > Suffice it to say we are having a very nice week after the first > round and looking forweard to rounds two etc. I would wish you all > the best of luck regardless of your path to success and will leave > saying that I expected better manners from this list as I know that > when I have said something badly or perhaps poorly might be a better > word, I have always followed up with an apology to that person even > if that comment I intially made was not intended to hurt. Once I > found out I had hurt someone I was horrified and said so. I expected > at least as much and have received nothing from anyone here. > That in itself is very bad etiquette, wouldn't you say.... actually, > I would call it plain old rude. > Jeannie G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 > Given that many parents are probably metals > toxic themselves or at least stressed in dealing with such a challenge with > their children, folk's responses may seem more brittle than actually meant. I think Gaylen hit the nail on the head here. I have friends on other lists who give short, to the point, responses that probably sound sort of hostile to strangers. I read them and think, a miracle that she finds the time to read the emails from all these lists and respond at all, let alone with on-target responses. Yet I know that carefully worded and well thought-out, tactful posts would be better received by more people, including those who don't know the poster. Also, in an infamous encounter that I had with someone on another list a few months ago, I thought it was probably significant that she and I were both doing chelation trials of ourselves right about then. Circulating toxic metals probably doesn't do much for ones charm and compassion. Personally, I try to state my experience and opinion without judging anyone else's choices. (Well, to be honest, I may judge them, but hopefully in private and only in my own thoughts!) But I no longer have the time to write as carefully as I once did, and it has been a long time since I routinely read all the posts on a topic before offering my own comments. Mistakes happen. Tone can be misinterpreted. But information is shared, and that's what is most important. I love the internet, for the info on these lists gets 99% of the credit for anything I have done to help my children. Lorilyn Quote Link to comment Share on other sites More sharing options...
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