Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 When you have a 100 mg capsule of DMSA, how do you get a 30 mg dose out of it? If you open the capsule do you alter the action of it? Can you give the granules in a liquid or will it change the absorption or action? These are questions I need to know so we can get started. Our pharmacy only has the 100mg capsules. Thank you! I would suggest you go to a compounding pharmacist and have him/her make up the dose for you. My understanding is that it's really critical to keep the dosage amounts even, and short of counting the little tiny granules yourself and putting them into capsules, I don't know of any other was to do it. (Cary, NC) persistentC@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2000 Report Share Posted September 10, 2000 When you have a 100 mg capsule of DMSA, how do you get a 30 mg dose out of it? If you open the capsule do you alter the action of it? Can you give the granules in a liquid or will it change the absorption or action? These are questions I need to know so we can get started. Our pharmacy only has the 100mg capsules. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 I used to split a dose by eye balling it, but now just dose once a day. If you want to give multiple smaller doses, I would approximate 1/3 or 33 mg, (very close dosing as pharmacy standards are not 100%, but closer to 95%). If you feel uncomfortable doing this and do not mind paying extra for exact(approx) dosing, you need to go to a Compounding Pharmacy, and they will measure 30mg and dose it so long as that is what the doctor's Rx calls for. Best Wishes, Beverly --- In egroups, " SHARON SEKOSKY " <sekosky6@h...> wrote: > When you have a 100 mg capsule of DMSA, how do you get a 30 mg dose out of it? > If you open the capsule do you alter the action of it? Can you give the granules in a liquid or will it change the absorption or action? > These are questions I need to know so we can get started. Our pharmacy only has the 100mg capsules. > Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 -I HAVE OPENED THE CAPSULES MANY TIMES, AND I USE THE DRUG AS A MOUTH WASH BEFORE SWOLLOWING THE DRUG. THIS IS TO GET THE MERCURY OUT OF MY JAWS. GO TO HTTP://WWW.EGROUPS.COM/MESSAGES/GOVINFO/1 THIS WILL GET YOU AND ALL TO GOVERNMENT INFOMATION THAT YOUR DOCTOR CAN NOT IGNORE ANY MORE. ROBERT -- In egroups, " s " <persistentC@b...> wrote: > When you have a 100 mg capsule of DMSA, how do you get a 30 mg dose > out of it? > If you open the capsule do you alter the action of it? Can you give > the granules in a liquid or will it change the absorption or action? > These are questions I need to know so we can get started. Our pharmacy > only has the 100mg capsules. > Thank you! > > > I would suggest you go to a compounding pharmacist and have him/her > make up the dose for you. My understanding is that it's really > critical to keep the dosage amounts even, and short of counting the > little tiny granules yourself and putting them into capsules, I don't > know of any other was to do it. > > (Cary, NC) > persistentC@b... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2000 Report Share Posted September 11, 2000 > > When you have a 100 mg capsule of DMSA, how do you get a 30 mg dose > > out of it? > > If you open the capsule do you alter the action of it? Can you give > > the granules in a liquid or will it change the absorption or action? > > These are questions I need to know so we can get started. Our > pharmacy > > only has the 100mg capsules. > > Thank you! > > > > > > I would suggest you go to a compounding pharmacist and have him/her > > make up the dose for you. My understanding is that it's really > > critical to keep the dosage amounts even, and short of counting the > > little tiny granules yourself and putting them into capsules, I > don't > > know of any other was to do it. > > > > (Cary, NC) > > persistentC@b... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2000 Report Share Posted September 22, 2000 I understand that Kirkman Labs plans to sell DMSA and DMSA with ALA without a prescription. It comes in 25mg capsules. They may also offer only mixtures. They are being very careful to assure that the buyers are aware of the correct usage and are trying to limit sales ONLY to people who will follow the correct protocol. PLEASE, PLEASE PLEASE: If you use DMSA without an Rx, DO NOT USE IT INCORRECTLY. ALL THE FDA NEEDS TO PULL THIS PRODUCT OFF THE MARKET IS FOR ONE IDIOT PARENT TO HARM THEIR CHILD. WE CANNOT AFFORD FOR THE FDA TO RESTRICT SALES OF THIS PRODUCT. PLEASE exercise great care in using DMSA (and ALA) without a prescription. Bob FisherKalamazoo, Michigan"Never doubt that a small group of thoughtful, committed citizens can change the world; it's the only thing that ever does" Margaret Mead Hello,I would like to know if I heard right.I attended the DAN! In San Diego Sept 16-17. My husband says he heard that Kirkman was going to have a DMSA chelating product out VERY SOON!!Is this true? If not, maybe there is something similar he over heard. An either event I would Love to hear about this ASAP, so would about 1000 of my e-group friends. Anxiously waiting your response,Ca. RE: DMSADate: 9/22/00 8:33:33 AM Pacific Daylight TimeFrom: kirsales@... (Sales-Kirkman Laboratories)Reply-to: sales@...We are, but it will require a parental consent form that will be availablenext week. You can keep watching our internet to see when it will be ready. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2000 Report Share Posted September 23, 2000 Let us know when they do, I am interested, but cautious [ ] Re: DMSA I understand that Kirkman Labs plans to sell DMSA and DMSA with ALA without a prescription. It comes in 25mg capsules. They may also offer only mixtures. They are being very careful to assure that the buyers are aware of the correct usage and are trying to limit sales ONLY to people who will follow the correct protocol. PLEASE, PLEASE PLEASE: If you use DMSA without an Rx, DO NOT USE IT INCORRECTLY. ALL THE FDA NEEDS TO PULL THIS PRODUCT OFF THE MARKET IS FOR ONE IDIOT PARENT TO HARM THEIR CHILD. WE CANNOT AFFORD FOR THE FDA TO RESTRICT SALES OF THIS PRODUCT. PLEASE exercise great care in using DMSA (and ALA) without a prescription. Bob FisherKalamazoo, Michigan " Never doubt that a small group of thoughtful, committed citizens can change the world; it's the only thing that ever does " Margaret Mead Hello,I would like to know if I heard right.I attended the DAN! In San Diego Sept 16-17. My husband says he heard that Kirkman was going to have a DMSA chelating product out VERY SOON!!Is this true? If not, maybe there is something similar he over heard. An either event I would Love to hear about this ASAP, so would about 1000 of my e-group friends. Anxiously waiting your response,Ca. RE: DMSADate: 9/22/00 8:33:33 AM Pacific Daylight TimeFrom: kirsales@... (Sales-Kirkman Laboratories)Reply-to: sales@...We are, but it will require a parental consent form that will be availablenext week. You can keep watching our internet to see when it will be ready. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 In a message dated 9/22/00 5:34:47 PM Central Daylight Time, bob@... writes: << I understand that Kirkman Labs plans to sell DMSA and DMSA with ALA without a prescription. It comes in 25mg capsules. They may also offer only mixtures. >> Hard to believe they could do that legally since it now requires a RX, doesn't it? That scares me for two reasons. The first, most obvious, is that a bunch of parents will go nuts for it, automatically assume their kids could benefit from chelation without first checking for metals toxicity and start feeding it to their kids without a doctor's oversight, making some of the kids ill. You really need to have your kid monitored when on this. It is not like a simple vitamin. The second is that if it becomes an over-the-counter drug, then insurance will stop paying for it as a prescription. This stuff is pretty expensive. At $1 a pill or so, I'd rather pay the $15 insurance co-pay a month. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 I can't imagine how anyone, considering the risks that could associated with doing chelation improperly, would do this without the guidance of a qualified physician. This really seems too large a task to take on one's own. I would be terrified to make an error with my son's already compromised system. Re: [ ] Re: DMSA bob@... > writes: > > << I understand that Kirkman Labs plans to sell DMSA and DMSA with ALA > without a prescription. It comes in 25mg capsules. They may also offer only > mixtures. >> > > Hard to believe they could do that legally since it now requires a RX, > doesn't it? That scares me for two reasons. The first, most obvious, is > that a bunch of parents will go nuts for it, automatically assume their kids > could benefit from chelation without first checking for metals toxicity and > start feeding it to their kids without a doctor's oversight, making some of > the kids ill. You really need to have your kid monitored when on this. It > is not like a simple vitamin. The second is that if it becomes an > over-the-counter drug, then insurance will stop paying for it as a > prescription. This stuff is pretty expensive. At $1 a pill or so, I'd > rather pay the $15 insurance co-pay a month. > Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2000 Report Share Posted September 24, 2000 Gaylen, As somone in the UK trying to get my son chelated, by a hospital, I am very happy that Kirkmans's are making DMSA available.. $70 per month is NOT expensive by any stretch. Some of my son's previous drugs have been $70 per pill! I am sure Kirkman will be responsible about this, maybe they should seek a request from a physician? Celia Re: [ ] Re: DMSA > >In a message dated 9/22/00 5:34:47 PM Central Daylight Time, bob@... >writes: > ><< I understand that Kirkman Labs plans to sell DMSA and DMSA with ALA >without a prescription. It comes in 25mg capsules. They may also offer only >mixtures. >> > >Hard to believe they could do that legally since it now requires a RX, >doesn't it? That scares me for two reasons. The first, most obvious, is >that a bunch of parents will go nuts for it, automatically assume their kids >could benefit from chelation without first checking for metals toxicity and >start feeding it to their kids without a doctor's oversight, making some of >the kids ill. You really need to have your kid monitored when on this. It >is not like a simple vitamin. The second is that if it becomes an >over-the-counter drug, then insurance will stop paying for it as a >prescription. This stuff is pretty expensive. At $1 a pill or so, I'd >rather pay the $15 insurance co-pay a month. >Gaylen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/24/00 5:32:41 PM Central Daylight Time, C.Forrest@... writes: << As somone in the UK trying to get my son chelated, by a hospital, I am very happy that Kirkmans's are making DMSA available.. $70 per month is NOT expensive by any stretch. Some of my son's previous drugs have been $70 per pill! I am sure Kirkman will be responsible about this, maybe they should seek a request from a physician? >> Ouch -- $70 a pill!!! After reading the post by the Kirkman rep, it does sound like they've thought this through and are doing it responsibly. My only concern is that kids be monitored for kidney and liver problems and folks don't go hog wild in thinking that DMSA is the new cure for autism. The PDR lists some possible negative side effects with DMSA and it's always a good idea to have a doc to go to if that happens though I know that's not always feasible. Out of curiosity, a question for the Kirkman rep (, I think it was?), what are you using to flavor the DMSA? will it be available without flavoring? Also, what is the vegetable source for the caps? Are there any pharmacists on staff that could be considered as compounders so some folks could get reimbursed by insurance if they have a doc's order? Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 My insurance pays for dmsa as chemet. Mixing th ala is what is so off about this whole thing. Is the mix to get around the perscription requirement? Beverly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Can anyone elaborate on the " typical emotional signs " ? Thanks - > Like all my signs are mental during chelation. I sometimes have > slightly increased allergy during it but I doubt it would be easy to notice > for anyone else. > > Emotional signs without physical ones is really quite typical of what > everyone else tells me they experience too. > > Everyone is tired the day afterwards. > > Sometimes urinary frequency will increase - if this goes up a lot then the > dose is too high. > > By the time you get much in the way of externally observable physical > symptoms the behavioral and emotional side effects are pretty wild. > > They aren't necessarily unpleasant - when I use LA only I usually get a > mildly obsessive euphoria. > > Andy Cutler Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 HI, Can anyone tell me if there can be size and smell differences in the DMSA capsules? The first dmsa we ordered was from a different pharmacy then the 2nd bottle. There is a difference in the size of the capsules, the 1st bottle we ordered, the capsules were quite a bit larger, and the smell had alot more "Stink" to them. Can the dmsa vary from different manufactures? I just worry that I have the right stuff! Thanks, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 We have used a number of different pharmacies and have encountered this as well. I asked the pharmacist about it. I was told that different pharmacies use different " inert " substances to mix the DMSA with. Some camoflage the stink better than others. Also, if your dosages were different each time, this would account for the different sizes of capsules. Some pharmacies just use different size capsules. Kirkman's is pretty good at masking the stinky smell I understand. Rhonda > > HI, > Can anyone tell me if there can be size and smell differences in the DMSA capsules? The first dmsa we ordered was from a different pharmacy then the 2nd bottle. There is a difference in the size of the capsules, the 1st bottle we ordered, the capsules were quite a bit larger, and the smell had alot more " Stink " to them. Can the dmsa vary from different manufactures? I just worry that I have the right stuff! > Thanks, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Hi All, Today the girl at the pharmacy showed me how much 50mg of pure DMSA was, which wasn't much at all. My question is, what else are they mixing in the dmsa and if there is so little actual dmsa, how would you know that your getting equal amounts of dmsa each time you give it to your child. Also is the "Stink" smell the dmsa or the other "inert" substances that they are mixing with it? thanks, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2001 Report Share Posted April 18, 2001 Very interesting I buy direct from the laboratories (I live inNew Zealand) the 100mg capsules are very small they have no fillers at all I just splice it up with a razor blade- I had to find a source other than Kirkmans because they put for some reason citric acid in it (amongst other things) and my children do not tolerate citric acid at all - I suggest you look for a compound pharmacist Also the taste is not at all a problem doesn't seem strong at all I just disolve it in 5mls water. I also have the ALA capsules and they are even smaller so a bit difficult but I have not opened or tasted those as yet we have only done two rounds of DMSA so far. Terri [ ] Re: DMSA Hi All, Today the girl at the pharmacy showed me how much 50mg of pure DMSA was, which wasn't much at all. My question is, what else are they mixing in the dmsa and if there is so little actual dmsa, how would you know that your getting equal amounts of dmsa each time you give it to your child. Also is the "Stink" smell the dmsa or the other "inert" substances that they are mixing with it? thanks, Patti ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Bioscreen urinary organic acids in these children demonstrate high citric acid excretion in all cases I have seen. This is seen also in CFS. It is thought to reflect a block in the tricarboxylic acid cycle, in the metabolism of glucose to produce energy. Citric acid should be avoided whenever possible in these children, Robyn Cosford. [ ] Re: DMSA Hi All, Today the girl at the pharmacy showed me how much 50mg of pure DMSA was, which wasn't much at all. My question is, what else are they mixing in the dmsa and if there is so little actual dmsa, how would you know that your getting equal amounts of dmsa each time you give it to your child. Also is the " Stink " smell the dmsa or the other " inert " substances that they are mixing with it? thanks, Patti ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 http:// Also, Andy wrote: >compounding pharmacy " DMSA. " It is easy to tell by the characteristic >odor - you don't need to do lab analysis. Is this that sulfur/egg smell you are referring to? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2001 Report Share Posted July 4, 2001 > >compounding pharmacy " DMSA. " It is easy to tell by the characteristic > >odor - you don't need to do lab analysis. > > Is this that sulfur/egg smell you are referring to? It is hard to describe - it is eggy and vinegary at the same time. It is quite identifiable once you have sniffed it. Any bottle of DMSA capsules will do to let you find out what it smells like. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2001 Report Share Posted September 14, 2001 , Hopefully you are doing the 3-4 hour dosing. The regression should stop a day or two after stopping the cycle and with my son he always gain something. It might be something little but it is always to do w/ motor planning nne > can anyone tell me how long kids regress for? > i started dmsa and ala and as i have heard people say, their kids get > worse and do things they dont usually do. mine are doing that now and > i was really thinking it would help me to know how long i have to > tough this out. can someone tell me any experiences? > thank you > rebecca Quote Link to comment Share on other sites More sharing options...
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