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In our state it is the Department of social services- the same people who handle general welfare benefits; different program but same office.. For some I am told it is the department of developmental disabilities . I am told that not all states have supplemental assistance- some states are based on income and some are not.

Missy Feldhaus <itchy10@...> wrote:

Where would you apply for state? I have only known about federal.

MISSYSAHM to some special kids!!!

I am who I am because that's who I am--, 6, Aspergers

All kids are gifted; some just open theirpackages earlier than others.

-- Carr

SSI

In a message dated 6/3/05 3:55:06 A.M. Central Daylight Time, Autism and Aspergers Treatment writes:

My son with asperger's is on SSI and so is my nephew.....Beth In Alabama

** I think you have to have a low income and also the child has to have no money as well to qualify for SSI. We certainly have looked into it and we are not on a high income at all, but we probably could not qualify as we have savings accounts and our kids also do for college, set up since birth from caring relatives. So, that can disqualify us from SSI.

laura in IL

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I was wondering the same thing. We left a dumpy two bedroom tiny apartment when we bought this house 4 years ago. We were paying $900 a month and it included nothing but a dead beat landlord who didn't even come when the bathtub pipe sprung a leak.

Charolette,

are you near Storyland? IS that a good place for 5 and 2 year olds-- with a 5 year old that has these issues? It looks like it is a 4 hour ride from here, could that be possible?

Janedesigns <scottdesigns@...> wrote:

Good Grief 500-600 for a 3 bedroom house?? WHERE??

I own a 3 family in New Hampshire and get $750 for the 1 bedroom on the 3rd floor and $900 for the 2 bedroom on the second floor!! And my rents are WAY BELOW market value!!

Re: SSI

Not only does income and cost of living affect how much one gets, but the source of income. I have one son with aspergers and another low functioning autistic. I live in CA and pay $1250 per month rent for a tiny apartment in a fairly bad neighborhood. I am married, make about $4k per month and have 5 kids. I first applied when I had 4 kids but did not qualify (though I could have elected to have my son on Medi-Cal). I was pregnant so I was told to come back after I had my baby. As soon as I was mobile after my C-section, I applied again and was turned down. Even though my income was less than my rent since I was on disability, it was considered too high because the source of income was government assistance. I was told to come back when I went back to work and he would qualify for about $100 per month. Shortly after returning to work, I got a raise of about $150

per month which again put me over the limit.Where do you live where rent is $500 per month? I searched high and low for a year to get the deal we have. I can't believe rent could be so cheap.> AOL EmailYour income plays into how much you get, however, it is my understanding that even if you do not qualify for the money part, you will qualify for the insurance because of the severe cost associated with the disability. Both of my sons are on SSI, and I am allowed to bring in another $1300 per month in addition to the $1158 per month they get without their checks being affected at all. That's actually not so bad for the area I'm in. (Average rent on a 3 br house is $500-600 per month here-for a good one). But, I was told by my case worker, that if I did make too much at some point per month to qualify for

the checks, I will still have the Medicaid.....Also, getting SSI has opened alot of other resources up to us, like respite services which I desperately needed being a singe mom, with Dad having no contact of visitation by court order...Also, a lot of states supplement in addition to the standard. I checked into that when we were looking for school options all over the US. Alabama does not, but I know California does, and several others where there are higher costs of living. I know if we had moved to California, I was told the boys would get an additional stipend in addition to the $1158, and the amount would be somewhere around $900, and the amount I could bring in would also go up quite a bit in order to keep the payments at those amounts.....> > Beth In Alabama> Mother to , 6, asperger's and> , 4, HFA

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Here is GA a 3bedroom appt runs 850-950.00.

MISSYSAHM to some special kids!!!

I am who I am because that's who I am--, 6, Aspergers

All kids are gifted; some just open theirpackages earlier than others.

-- Carr

Re: SSI

Not only does income and cost of living affect how much one gets, but the source of income. I have one son with aspergers and another low functioning autistic. I live in CA and pay $1250 per month rent for a tiny apartment in a fairly bad neighborhood. I am married, make about $4k per month and have 5 kids. I first applied when I had 4 kids but did not qualify (though I could have elected to have my son on Medi-Cal). I was pregnant so I was told to come back after I had my baby. As soon as I was mobile after my C-section, I applied again and was turned down. Even though my income was less than my rent since I was on disability, it was considered too high because the source of income was government assistance. I was told to come back when I went back to work and he would qualify for about $100 per month. Shortly after returning to work, I got a raise of about $150 per month which again put me over the limit.Where do you live where rent is $500 per month? I searched high and low for a year to get the deal we have. I can't believe rent could be so cheap.> AOL EmailYour income plays into how much you get, however, it is my understanding that even if you do not qualify for the money part, you will qualify for the insurance because of the severe cost associated with the disability. Both of my sons are on SSI, and I am allowed to bring in another $1300 per month in addition to the $1158 per month they get without their checks being affected at all. That's actually not so bad for the area I'm in. (Average rent on a 3 br house is $500-600 per month here-for a good one). But, I was told by my case worker, that if I did make too much at some point per month to qualify for the checks, I will still have the Medicaid.....Also, getting SSI has opened alot of other resources up to us, like respite services which I desperately needed being a singe mom, with Dad having no contact of visitation by court order...Also, a lot of states supplement in addition to the standard. I checked into that when we were looking for school options all over the US. Alabama does not, but I know California does, and several others where there are higher costs of living. I know if we had moved to California, I was told the boys would get an additional stipend in addition to the $1158, and the amount would be somewhere around $900, and the amount I could bring in would also go up quite a bit in order to keep the payments at those amounts.....> > Beth In Alabama> Mother to , 6, asperger's and> , 4, HFA

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Oh, Yea! I lived in Marietta for a while....cost of living much much higher. I am in a small town in Northern Alabama, which is home for me....there is a down side though. We have to drive 1 1/2 to 2 hours to get to any of our specialists......

Beth

Re: SSI

Not only does income and cost of living affect how much one gets, but the source of income. I have one son with aspergers and another low functioning autistic. I live in CA and pay $1250 per month rent for a tiny apartment in a fairly bad neighborhood. I am married, make about $4k per month and have 5 kids. I first applied when I had 4 kids but did not qualify (though I could have elected to have my son on Medi-Cal). I was pregnant so I was told to come back after I had my baby. As soon as I was mobile after my C-section, I applied again and was turned down. Even though my income was less than my rent since I was on disability, it was considered too high because the source of income was government assistance. I was told to come back when I went back to work and he would qualify for about $100 per month. Shortly after returning to work, I got a raise of about $150 per month which again put me over the limit.Where do you live where rent is $500 per month? I searched high and low for a year to get the deal we have. I can't believe rent could be so cheap.> AOL EmailYour income plays into how much you get, however, it is my understanding that even if you do not qualify for the money part, you will qualify for the insurance because of the severe cost associated with the disability. Both of my sons are on SSI, and I am allowed to bring in another $1300 per month in addition to the $1158 per month they get without their checks being affected at all. That's actually not so bad for the area I'm in. (Average rent on a 3 br house is $500-600 per month here-for a good one). But, I was told by my case worker, that if I did make too much at some point per month to qualify for the checks, I will still have the Medicaid.....Also, getting SSI has opened alot of other resources up to us, like respite services which I desperately needed being a singe mom, with Dad having no contact of visitation by court order...Also, a lot of states supplement in addition to the standard. I checked into that when we were looking for school options all over the US. Alabama does not, but I know California does, and several others where there are higher costs of living. I know if we had moved to California, I was told the boys would get an additional stipend in addition to the $1158, and the amount would be somewhere around $900, and the amount I could bring in would also go up quite a bit in order to keep the payments at those amounts.....> > Beth In Alabama> Mother to , 6, asperger's and> , 4, HFA

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Sorry, ..:(

SSI

In a message dated 6/3/05 8:58:06 P.M. Central Daylight Time, Autism and Aspergers Treatment writes:

something to do with his disability, what the doctor had himdiagnosed as having, and my son had LOTS of problems, don'teven think autism was on the list at the time. But it did not have to do with our income, was givenbecause of the diagnosis

** CAROLYN

SSI-- the federal kind from SS, not something from the state, does look at your income, I have called the office and drilled them with questions and they have told me that over and over again. However, there is another factor, the income OR MONEY your child legally has in his name...., and my son has a college trust fund, in his legal name and I am not able to take it out of his name. So, I lose in that respect anyway. ARGHH

love

in IL

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Some states have programs and some do not. Alabama does not. However, I was told for the states that do, when you apply for federal, you apply for state at the same time. I know if we moved to Tennessee for example (only 20 minutes from the Tenn. Line), we would get state assistance as well, just through being on the Federal program....

Beth

SSI

In a message dated 6/3/05 3:55:06 A.M. Central Daylight Time, Autism and Aspergers Treatment writes:

My son with asperger's is on SSI and so is my nephew.....Beth In Alabama

** I think you have to have a low income and also the child has to have no money as well to qualify for SSI. We certainly have looked into it and we are not on a high income at all, but we probably could not qualify as we have savings accounts and our kids also do for college, set up since birth from caring relatives. So, that can disqualify us from SSI.

laura in IL

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I had no idea that there were 2 either. I called the 1-800 number and it was for the federal. They didn't mention anything about state SSI.

MISSYSAHM to some special kids!!!

I am who I am because that's who I am--, 6, Aspergers

All kids are gifted; some just open theirpackages earlier than others.

-- Carr

SSI

In a message dated 6/3/05 3:55:06 A.M. Central Daylight Time, Autism and Aspergers Treatment writes:

My son with asperger's is on SSI and so is my nephew.....Beth In Alabama

** I think you have to have a low income and also the child has to have no money as well to qualify for SSI. We certainly have looked into it and we are not on a high income at all, but we probably could not qualify as we have savings accounts and our kids also do for college, set up since birth from caring relatives. So, that can disqualify us from SSI.

laura in IL

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some states have a state disability program...California's was really

good when I was there. You could go on it 4 weeks before your due date

when pregnant and stay on it until your baby was 8 weeks old. Oregon,

however, requires you be disabled for 6 months before you can even

apply. Try to contact you STATE disability office...not SSA, they may

not know.

Also, I think in Oregon, you have to have paid into the disability

program i.e., be a disabled worker, in order to collect...but I could

be mistaken

-------------------

> I had no idea that there were 2 either. I called the 1-800 number

and it was for the federal. They didn't mention anything about state

SSI.

>

> MISSY

> SAHM to some special kids!!!

>

> I am who I am because that's who I am

> --, 6, Aspergers

>

>

> All kids are gifted; some just open their

> packages earlier than others.

>

> -- Carr

>

> SSI

>

>

> In a message dated 6/3/05 3:55:06 A.M. Central

Daylight Time, Autism and Aspergers Treatment writes:

>

> My son with asperger's is on SSI and so is my

nephew.....

>

> Beth In Alabama

>

>

> ** I think you have to have a low income and also

the child has to have no money as well to qualify for SSI. We

certainly have looked into it and we are not on a high income at all,

but we probably could not qualify as we have savings accounts and our

kids also do for college, set up since birth from caring relatives.

So, that can disqualify us from SSI.

>

> laura in IL

>

>

>

>

----------------------------------------------------------------------

--------

>

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Beth Layne wrote:

> Some states have programs and some do not. Alabama does not. However, I

> was told for the states that do, when you apply for federal, you apply

> for state at the same time. I know if we moved to Tennessee for example

> (only 20 minutes from the Tenn. Line), we would get state assistance as

> well, just through being on the Federal program....

>

> Beth

Here we have both (in NM). You apply for SSd at the Social Security

office, and for SSI at the same place. However, the state administers

the Medicaid part of SSI through one of several HMO's. It's confusing.

And do apply for SSd again if you get denied. And again if need be.

We finally called our US Senator for my dh's SSd, and it was OK'ed in

about 2 weeks. So there's that avenue too.

Annie, who loves ya annie@...

--

The trouble with fulfilling your ambitions is you think you will be

transformed into some sort of archangel and you're not. You still have

to wash your socks. ~ Louis de Bernieres

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cubicmonica wrote:

>

> Where do you live where rent is $500 per month? I searched high and

> low for a year to get the deal we have. I can't believe rent could

> be so cheap.

>

>

That's how much (plus gas and electric) we pay for our place here in

Albuquerque. It's a 2 bedroom, 1 and a half bath townhouse apt. in the

foothills of the Sandia Mountains on the east edge of town. We've lived

here 13 years this month!

Annie, who loves ya annie@...

--

The trouble with fulfilling your ambitions is you think you will be

transformed into some sort of archangel and you're not. You still have

to wash your socks. ~ Louis de Bernieres

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Beth Layne wrote:

> Oh, Yea! I lived in Marietta for a while....cost of living much much

> higher. I am in a small town in Northern Alabama, which is home for

> me....there is a down side though. We have to drive 1 1/2 to 2 hours

> to get to any of our specialists......

>

> Beth

>

Missy said:

>

> Here is GA a 3bedroom appt runs 850-950.00. MISSY SAHM to some

> special kids!!!

Oh, THREE bedrooms! The one next to us runs $725....and has a fireplace

and an enclosed patio. :)

Annie, who loves ya annie@...

--

The trouble with fulfilling your ambitions is you think you will be

transformed into some sort of archangel and you're not. You still have

to wash your socks. ~ Louis de Bernieres

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actually, you appeal the first denial and have a hearing on the second

one...then you get the back pay once you are approved from the time

you first applied.

However, it you drown them with paperwork in the beginning, find out

everything they may want and give it to them, they *sometimes* approve

you right away. DD was approved in 1 mo! No one can believe it, but we

had a neuro-psych eval, and several other things submitted with her

application. It worked!

-------------------

>

>

>

> In a message dated 6/4/05 1:54:41 A.M. Central Daylight Time,

> Autism and Aspergers Treatment writes:

>

> confusion lies. Every state that gets funding from the federal

government

> can disperse it differently. The federal SSd has different regs. .

...

> That is why everyone should apply both for state and federal- they

are often

> in different offices. And I was told to apply for the federal one

twice as

> they often deny the first application.

>

>

> ******** True Jane... your last statement, well that is true too and

many

> friends in many states have told me that they have been denied FED

SSI a few

> times before they were allowed to have it, in fact most people are

denied the

> first time I am told.

>

> in IL

>

>

>

D. Marie Ralstin-

University of Oregon

Graduate Teaching Fellow, Department of Sociology

717 PLC Hall

Eugene, Oregon 97403

541-346-5071

dralstin@...

d.ralstin@...

http://gladstone.uoregon.edu/~dralstin/

Ending a sentence with a preposition is something up with which we

should not put. - Winston Churchill

Not everything that can be counted counts and not everything that

counts can be counted. -Albert Einstein

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I completely agree with this advice. My son is AS, Bipolar, and has learning disability in reading and language arts. I had copies of his IEP paperwork from the school and a letter from the psychiatrist stating that he was bipolar and possibly AS but I had completed the AS eval the same week so I gave them the evaluator's info for them to verify that. SSI had sent a questionaire to us to give to the teacher within a couple of weeks and the teacher got that turned back in right away.

I got the first check in the mail within a month but I haven't received a letter or anything yet. I'd rather have the check than the paperwork (I can photocopy the check) but I'm sure the paperwork will make it here eventually.

Now, my psychiatrist is suggestion I file for SSI myself as I'm bipolar as well (possibly AS too but nobody has ever checked me for that). My counselor says I'm OCPD which makes a lot of sense but it's not on my official diagnosis.

Michele B.

Rockwall, TX"D. Marie. Ralstin-" <dralstin@...> wrote:

actually, you appeal the first denial and have a hearing on the secondone...then you get the back pay once you are approved from the timeyou first applied. However, it you drown them with paperwork in the beginning, find outeverything they may want and give it to them, they *sometimes* approveyou right away. DD was approved in 1 mo! No one can believe it, but wehad a neuro-psych eval, and several other things submitted with herapplication. It worked!__________________________________________________

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We are in Los Angeles and both my kids got their SSI the first time we applied.

I rent a two bedroom duplex with one bath for $1019. and it is in rent control. Back in 1998 I paid $740 and it keeps going up. The owner pays utilities and it is around the corner from the Elementary school.

Everywhere I look online for rentals it is the price we pay for this for only a one bedroom. I do not know when we can move. last summer I filed chapter 7 and want to move but not sure my FICO score.

I get IHSS for taking care of my one son - I am the home health care worker, but Gov Schwarzenegger wants to lower our wages to min wage, and they just went up last November to $8.10 per hour.

The child must get SSI and need protective supervision, the social worker does an intake at the home, first you do one on the phone to see if qualify, then you get paid from the date you signed up. Two years ago I got my back pay in Jan - came after holidays when we needed it and then I had an overpayment on the other kids SSI - still paying that off with my little stuff I do online that makes me about $70 per month, so they want 1/3 of that back and they take out about $69 per month from the other kids check since they count the IHSS against his check, but not the one I do it for.

They also get SSA from their fathers record, so it is confusing, but all we live on and little stuff I sell here and there on ebay.

When I got the IHSS I lost the food stamps and my medical insurance, so now in the Union and have co pays and county facilities for hospitals.

http://www.epinions.com/user-bonniesayers

Bonnie

=============Laha1960@... wrote:

In a message dated 6/4/05 1:54:41 A.M. Central Daylight Time, Autism and Aspergers Treatment writes:

confusion lies. Every state that gets funding from the federal government can disperse it differently. The federal SSd has different regs. . ..That is why everyone should apply both for state and federal- they are often in different offices. And I was told to apply for the federal one twice as they often deny the first application.

******** True Jane... your last statement, well that is true too and many friends in many states have told me that they have been denied FED SSI a few times before they were allowed to have it, in fact most people are denied the first time I am told.

in IL

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It's amazing how different states handle SSI differently. Here the child doesn't need protective supervision and a social worker never comes out.

MISSYSAHM to some special kids!!!

I am who I am because that's who I am--, 6, Aspergers

All kids are gifted; some just open theirpackages earlier than others.

-- Carr

Re: SSI

We are in Los Angeles and both my kids got their SSI the first time we applied.

I rent a two bedroom duplex with one bath for $1019. and it is in rent control. Back in 1998 I paid $740 and it keeps going up. The owner pays utilities and it is around the corner from the Elementary school.

Everywhere I look online for rentals it is the price we pay for this for only a one bedroom. I do not know when we can move. last summer I filed chapter 7 and want to move but not sure my FICO score.

I get IHSS for taking care of my one son - I am the home health care worker, but Gov Schwarzenegger wants to lower our wages to min wage, and they just went up last November to $8.10 per hour.

The child must get SSI and need protective supervision, the social worker does an intake at the home, first you do one on the phone to see if qualify, then you get paid from the date you signed up. Two years ago I got my back pay in Jan - came after holidays when we needed it and then I had an overpayment on the other kids SSI - still paying that off with my little stuff I do online that makes me about $70 per month, so they want 1/3 of that back and they take out about $69 per month from the other kids check since they count the IHSS against his check, but not the one I do it for.

They also get SSA from their fathers record, so it is confusing, but all we live on and little stuff I sell here and there on ebay.

When I got the IHSS I lost the food stamps and my medical insurance, so now in the Union and have co pays and county facilities for hospitals.

http://www.epinions.com/user-bonniesayers

Bonnie

=============Laha1960@... wrote:

In a message dated 6/4/05 1:54:41 A.M. Central Daylight Time, Autism and Aspergers Treatment writes:

confusion lies. Every state that gets funding from the federal government can disperse it differently. The federal SSd has different regs. . ..That is why everyone should apply both for state and federal- they are often in different offices. And I was told to apply for the federal one twice as they often deny the first application.

******** True Jane... your last statement, well that is true too and many friends in many states have told me that they have been denied FED SSI a few times before they were allowed to have it, in fact most people are denied the first time I am told.

in IL

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The program I was referring to is called IHSS - IN home supportive services. Means that you get a home health care worker or the parent or spouse can do it for someone with autism or alzheimers.

You must be receiving SSI to get it though.

I am the home health care worker for my non verbal almost nine year old autistic son. I get paid twice a month and get income tax refunds too. Before learning of that program we were on SSI and assistance from the county.

http://www.dss.cahwnet.gov/cdssweb/In-HomeSup_173.htm

http://www.pai-ca.org/pubs/501301.htm

http://www.pascenter.org/systemschange/

http://www.ssa.gov/disability/

I am a member of this group and it has good files section and links -

ssi4kids/

Bonnie

==========

Missy Feldhaus <itchy10@...> wrote:

It's amazing how different states handle SSI differently. Here the child doesn't need protective supervision and a social worker never comes out.

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Oh ok, thanks for clarifying it.

MISSYSAHM to some special kids!!!

I am who I am because that's who I am--, 6, Aspergers

All kids are gifted; some just open theirpackages earlier than others.

-- Carr

Re: SSI

The program I was referring to is called IHSS - IN home supportive services. Means that you get a home health care worker or the parent or spouse can do it for someone with autism or alzheimers.

You must be receiving SSI to get it though.

I am the home health care worker for my non verbal almost nine year old autistic son. I get paid twice a month and get income tax refunds too. Before learning of that program we were on SSI and assistance from the county.

http://www.dss.cahwnet.gov/cdssweb/In-HomeSup_173.htm

http://www.pai-ca.org/pubs/501301.htm

http://www.pascenter.org/systemschange/

http://www.ssa.gov/disability/

I am a member of this group and it has good files section and links -

ssi4kids/

Bonnie

==========

Missy Feldhaus <itchy10@...> wrote:

It's amazing how different states handle SSI differently. Here the child doesn't need protective supervision and a social worker never comes out.

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Jane, I'm about halfway between you and Storyland. We go every summer when we go camping.

Storyland is perfect for both 5 and 2 year olds and worth the trip. I think that even a child with issues would be ok there. We love it!

Re: SSI

Not only does income and cost of living affect how much one gets, but the source of income. I have one son with aspergers and another low functioning autistic. I live in CA and pay $1250 per month rent for a tiny apartment in a fairly bad neighborhood. I am married, make about $4k per month and have 5 kids. I first applied when I had 4 kids but did not qualify (though I could have elected to have my son on Medi-Cal). I was pregnant so I was told to come back after I had my baby. As soon as I was mobile after my C-section, I applied again and was turned down. Even though my income was less than my rent since I was on disability, it was considered too high because the source of income was government assistance. I was told to come back when I went back to work and he would qualify for about $100 per month. Shortly after returning to work, I got a raise of about $150 per month which again put me over the limit.Where do you live where rent is $500 per month? I searched high and low for a year to get the deal we have. I can't believe rent could be so cheap.> AOL EmailYour income plays into how much you get, however, it is my understanding that even if you do not qualify for the money part, you will qualify for the insurance because of the severe cost associated with the disability. Both of my sons are on SSI, and I am allowed to bring in another $1300 per month in addition to the $1158 per month they get without their checks being affected at all. That's actually not so bad for the area I'm in. (Average rent on a 3 br house is $500-600 per month here-for a good one). But, I was told by my case worker, that if I did make too much at some point per month to qualify for the checks, I will still have the Medicaid.....Also, getting SSI has opened alot of other resources up to us, like respite services which I desperately needed being a singe mom, with Dad having no contact of visitation by court order...Also, a lot of states supplement in addition to the standard. I checked into that when we were looking for school options all over the US. Alabama does not, but I know California does, and several others where there are higher costs of living. I know if we had moved to California, I was told the boys would get an additional stipend in addition to the $1158, and the amount would be somewhere around $900, and the amount I could bring in would also go up quite a bit in order to keep the payments at those amounts.....> > Beth In Alabama> Mother to , 6, asperger's and> , 4, HFA

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Thankyou.

I think we are going to try to go in August. Those swan boats look really fun. What are the good camp grounds near by there? We camp too. It is actually our saving grace when we travel. If Caleb is all overstimulated, he calms down at campgrounds.

Janedesigns <scottdesigns@...> wrote:

Jane, I'm about halfway between you and Storyland. We go every summer when we go camping.

Storyland is perfect for both 5 and 2 year olds and worth the trip. I think that even a child with issues would be ok there. We love it!

Re: SSI

Not only does income and cost of living affect how much one gets, but the source of income. I have one son with aspergers and another low functioning autistic. I live in CA and pay $1250 per month rent for a tiny apartment in a fairly bad neighborhood. I am married, make about $4k per month and have 5 kids. I first applied when I had 4 kids but did not qualify (though I could have elected to have my son on Medi-Cal). I was pregnant so I was told to come back after I had my baby. As soon as I was mobile after my C-section, I applied again and was turned down. Even though my income was less than my rent since I was on disability, it was considered too high because the source of income was government assistance. I was told to come back when I went back to work and he would qualify for about $100 per month. Shortly after returning to work, I got a raise of about $150

per month which again put me over the limit.Where do you live where rent is $500 per month? I searched high and low for a year to get the deal we have. I can't believe rent could be so cheap.> AOL EmailYour income plays into how much you get, however, it is my understanding that even if you do not qualify for the money part, you will qualify for the insurance because of the severe cost associated with the disability. Both of my sons are on SSI, and I am allowed to bring in another $1300 per month in addition to the $1158 per month they get without their checks being affected at all. That's actually not so bad for the area I'm in. (Average rent on a 3 br house is $500-600 per month here-for a good one). But, I was told by my case worker, that if I did make too much at some point per month to qualify for

the checks, I will still have the Medicaid.....Also, getting SSI has opened alot of other resources up to us, like respite services which I desperately needed being a singe mom, with Dad having no contact of visitation by court order...Also, a lot of states supplement in addition to the standard. I checked into that when we were looking for school options all over the US. Alabama does not, but I know California does, and several others where there are higher costs of living. I know if we had moved to California, I was told the boys would get an additional stipend in addition to the $1158, and the amount would be somewhere around $900, and the amount I could bring in would also go up quite a bit in order to keep the payments at those amounts.....> > Beth In Alabama> Mother to , 6, asperger's and> , 4, HFA

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We go to Eastern Slope family campground www.easternslopecamping.com

I have been going there for over 30 years and love it. It's in North Conway about 20 minutes away. It has 2 beaches on the Saco River and a wooden canopy's over every site.

is the same way, much calmer camping. We're going the end of July.

Re: SSI

Not only does income and cost of living affect how much one gets, but the source of income. I have one son with aspergers and another low functioning autistic. I live in CA and pay $1250 per month rent for a tiny apartment in a fairly bad neighborhood. I am married, make about $4k per month and have 5 kids. I first applied when I had 4 kids but did not qualify (though I could have elected to have my son on Medi-Cal). I was pregnant so I was told to come back after I had my baby. As soon as I was mobile after my C-section, I applied again and was turned down. Even though my income was less than my rent since I was on disability, it was considered too high because the source of income was government assistance. I was told to come back when I went back to work and he would qualify for about $100 per month. Shortly after returning to work, I got a raise of about $150 per month which again put me over the limit.Where do you live where rent is $500 per month? I searched high and low for a year to get the deal we have. I can't believe rent could be so cheap.> AOL EmailYour income plays into how much you get, however, it is my understanding that even if you do not qualify for the money part, you will qualify for the insurance because of the severe cost associated with the disability. Both of my sons are on SSI, and I am allowed to bring in another $1300 per month in addition to the $1158 per month they get without their checks being affected at all. That's actually not so bad for the area I'm in. (Average rent on a 3 br house is $500-600 per month here-for a good one). But, I was told by my case worker, that if I did make too much at some point per month to qualify for the checks, I will still have the Medicaid.....Also, getting SSI has opened alot of other resources up to us, like respite services which I desperately needed being a singe mom, with Dad having no contact of visitation by court order...Also, a lot of states supplement in addition to the standard. I checked into that when we were looking for school options all over the US. Alabama does not, but I know California does, and several others where there are higher costs of living. I know if we had moved to California, I was told the boys would get an additional stipend in addition to the $1158, and the amount would be somewhere around $900, and the amount I could bring in would also go up quite a bit in order to keep the payments at those amounts.....> > Beth In Alabama> Mother to , 6, asperger's and> , 4, HFA

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  • 1 month later...
Guest guest

Deb!

Beth here...Call Cliff Hill...He specializes in this kinda case. You need someone who knows. Both my sons have gifted IQs and are on disability. You need HELP, therapies provided, etc...YOU CAN GET IT. As you know, I'm in Bama too!!

Beth In Bama

, 7, aspergers

, 4, HFA

SSI

Hi everyone,

I am looking for advise here. I went to my meeting with the lawyer’s office about our case for SSI. I have a son whom is on the spectrum, 8yrs old. I am a bit disappointed in my lawyer. I have a hearing coming up and just wanted to see if anyone else has some advice for me. This meeting has finaly arrived and this lawyer works in a firm. So the lawyer I will be getting is not the one I met with. I was disappointed. As we talked he asked questions and I asked questions. This lawyer seemed to think it’s going to be difficult because my son is gifted, Highly IQ’d. I will have to take my son with me to this hearing. Further more, the lawyer I met with on this day knew things about Autism, said his daughter was ADHD which is quite different but had a lot of the same traits as my son. Anyway, the lawyer that will be at the hearing, I have never met, have no clue if she even knows what Autism is! I was shocked. I asked if she knew anything about Autism, and he said IM sure she will be calling me and I will talk to her.

I don’t have a lot of confidence here. IM going to court and I do not know if this lawyer believes in us, much less can defend us to get what my son deserves. I explained how important it is for my son to get what he needs now, and where we live, it’s just simply not readily available so we go out of town a lot. Father is deceased but..he does not collect from his SS. Any suggestions on how I can do some home work in a hurry on how to represent myself, take some things with me to prove ourselfs?

--No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.338 / Virus Database: 267.9.4/57 - Release Date: 7/22/2005

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I called Cliff…no return call. I am

nervous I have a hearing coming up on the 18th. Scared It’s going to loose

because of this lawyer. What to do?

I got stuff to tell you ….gimmie a call.

Deb’s J

Re:

SSI

Deb!

Beth here...Call Cliff Hill...He

specializes in this kinda case. You need someone who knows. Both my sons have

gifted IQs and are on disability. You need HELP, therapies provided, etc...YOU

CAN GET IT. As you know, I'm in Bama too!!

Beth In Bama

, 7, aspergers

, 4, HFA

SSI

Hi everyone,

I am looking for

advise here. I went to my meeting with the lawyer’s office about our case for

SSI. I have a son whom is on the spectrum, 8yrs old. I am a bit disappointed in

my lawyer. I have a hearing coming up and just wanted to see if anyone else has

some advice for me. This meeting has finaly arrived and this lawyer works in a

firm. So the lawyer I will be getting is not the one I met with. I was

disappointed. As we talked he asked questions and I asked questions. This

lawyer seemed to think it’s going to be difficult because my son is gifted,

Highly IQ’d. I will have to take my son with me to this hearing. Further more,

the lawyer I met with on this day knew things about Autism, said his daughter

was ADHD which is quite different but had a lot of the same traits as my son.

Anyway, the lawyer that will be at the hearing, I have never met, have no clue

if she even knows what Autism is! I was shocked. I asked if she knew anything

about Autism, and he said IM sure she will be calling me and I will talk to

her.

I don’t have a lot of

confidence here. IM going to court and I do not know if this lawyer believes in

us, much less can defend us to get what my son deserves. I explained how

important it is for my son to get what he needs now, and where we live, it’s

just simply not readily available so we go out of town a lot. Father is

deceased but..he does not collect from his SS. Any suggestions on how I can do

some home work in a hurry on how to represent myself, take some things with me

to prove ourselfs?

--

No virus found in this incoming message.

Checked by AVG Anti-Virus.

Version: 7.0.338 / Virus Database: 267.9.4/57 - Release Date: 7/22/2005

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.338 / Virus Database: 267.9.7/60 - Release Date: 7/28/2005

--

No virus found in this incoming message.

Checked by AVG Anti-Virus.

Version: 7.0.338 / Virus Database: 267.9.7/60 - Release Date: 7/28/2005

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.338 / Virus Database: 267.10.1/64 - Release Date: 8/4/2005

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  • 4 weeks later...

My Steve was diagnosed AS with PDD. When I looked it

up it had the same definition! He is also diagnosed

with a compulsive disorder and ADHD! We have tried all

kids of meds and nothing works. Depakote worked for

the compulsion..but nothing more. He has been off meds

for a year now and is a senior in high school. His

IEP's have allowed him to have special ed classroom

time to avoid the chaos and distraction of main stream

courses.

My question is this: Has anyone successfully been

awarded an SSI benfit and What did you do to get a

favorable award.

We have applied at least 3 times since his diagnosis 5

years ago and keep getting told AS is not a diability.

He is now 17 almost 18 and no job skills, no real

social skills, doesn't stay on task and essentially

not employable without further help. We've been told

the Services for People With Disabilites won't help

unless he's on SSI or other disbility.

Any help is welcome

Thanks

JKernan

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

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  • 6 months later...
Guest guest

I would call back and ask to talk to someone above that person. At 18 your

income no longer counts when applying for SSI. It is all based on what your

daughter has that counts.

Missy- SAHM & Angel to Warrior !!

I am who I am because that's who I am,

--, 6 Aspergers, LKS

All Kids are gifted, some just open their

packages earlier than others

-- Carr

http://www.iditarace4autism.com/index.html Race for Autism

http://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfr\

ench

Stop by and say hi to my Warrior!!

SSI

> Greeting everyone!

>

> I hope everyone is having a great day! I have a question about SSI,

> that I hope someone can answer. My daughter turned 18 last July and I'm

> trying to get her SSI, she more than qualifies, but I keep getting told

> by this idoit that answers the phone that we make to much money. I've

> been told by other parents that our income does not count, once the

> child is 18. Can anyone verify this or point me in the right direction?

>

> Thanks so much!

> Michele

>

>

>

>

>

>

>

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Guest guest

I would call back and ask to talk to someone above that person. At 18 your

income no longer counts when applying for SSI. It is all based on what your

daughter has that counts.

Missy- SAHM & Angel to Warrior !!

I am who I am because that's who I am,

--, 6 Aspergers, LKS

All Kids are gifted, some just open their

packages earlier than others

-- Carr

http://www.iditarace4autism.com/index.html Race for Autism

http://www.caringbridge.org/cb/inputSiteName.do?method=search & siteName=michaelfr\

ench

Stop by and say hi to my Warrior!!

SSI

> Greeting everyone!

>

> I hope everyone is having a great day! I have a question about SSI,

> that I hope someone can answer. My daughter turned 18 last July and I'm

> trying to get her SSI, she more than qualifies, but I keep getting told

> by this idoit that answers the phone that we make to much money. I've

> been told by other parents that our income does not count, once the

> child is 18. Can anyone verify this or point me in the right direction?

>

> Thanks so much!

> Michele

>

>

>

>

>

>

>

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