SSI

[Guest guest]

I thought it was 21. Go in person to your local Social Security office and when the receptionist tries to stop you from seeing a counselor....ask them if they are denying you the right to apply; that got me in and we qualified. Good Luck. Marilyn Pylesmommadanelover <mommachief@...> wrote: Greeting everyone!I hope everyone is having a great day! I have a question about SSI, that I hope someone can answer. My daughter turned 18 last July and I'm trying to get her SSI, she more than qualifies, but I keep getting told by this idoit that answers the phone that we make to much money. I've been told by other parents that our income does not count, once the child is 18. Can anyone verify this or point me in the right direction?Thanks so

much!Michele

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[Guest guest]

I thought it was 21. Go in person to your local Social Security office and when the receptionist tries to stop you from seeing a counselor....ask them if they are denying you the right to apply; that got me in and we qualified. Good Luck. Marilyn Pylesmommadanelover <mommachief@...> wrote: Greeting everyone!I hope everyone is having a great day! I have a question about SSI, that I hope someone can answer. My daughter turned 18 last July and I'm trying to get her SSI, she more than qualifies, but I keep getting told by this idoit that answers the phone that we make to much money. I've been told by other parents that our income does not count, once the child is 18. Can anyone verify this or point me in the right direction?Thanks so

much!Michele

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[Guest guest]

Valarie, that's an interesting point. I am sure you can tie it in. I have been

denied twice for ssi for , due to income guidelines. I was recently

diagnosed cvid myself and am testing my ten year old. Blue cross had told me

that ivig is only covered 80%? I would have to pay the remaining balance?

Does anyone or youself know where I can turn or what to do? Should I apply for

ssi myself? Over the phone they do a screening and won't give me an appointment

because I don't qualify income wise?? Any advice? As for your delema with the

funds I would certaintly tie it into their pid and asthma. I am sure your pid's

doctor would help too, if need be. Best of luck to you Dawn cvid, mother to

hypogammaglobulimia, acid reflux, asthma, develop. delay

osdbmom <osdbmom@...> wrote: I was wondering if anyone else on this board

is recieving SSI. I am

not trying to be nosy, but my boys were just approved for it, after 3

yrs of trying. They went backwards with the payments and its been put

into an account for them, the backpay I mean. But, we can only take it

out for use of things related to their qualifying condition.....being

asthma and PID. I am wondering what things other kids may have been

approved of.....I can think of several, being new furnace and central

air, mattress and pillow covers, air purifier..........I wonder if a

dishwasher would fly? LOL hey, need the heat to kill the germs!!LOL

Just out of curiousity, and if you would rather respond privately to

me, thats fine. thanks.

valarie

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

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To search group archives go to: /messages

[Guest guest]

Does anyone or youself know where I can turn or what to do? Should

I apply for ssi myself?

I would check with your state/county. We applied for medical

assistance through the state for Ana, they have several programs and

because I applied for just her they won't look at assets etc (not that

we have any!!! Just a thought.

Ana 13mo

[Guest guest]

Does anyone or youself know where I can turn or what to do? Should

I apply for ssi myself?

I would check with your state/county. We applied for medical

assistance through the state for Ana, they have several programs and

because I applied for just her they won't look at assets etc (not that

we have any!!! Just a thought.

Ana 13mo

[Guest guest]

In a message dated 3/15/2006 9:46:58 P.M. Eastern Standard Time,

writes:

But, we can only take it

out for use of things related to their qualifying condition.....being

asthma and PID.

Hi ,

I live in NY but that shouldn't matter because SSI is a federal program. I

don't know why they told you it had to be used (the money that is) for things

related to their " condidtion " . It needs to be used for the child for whom

the check is administered, but not the actual condition. In other words, room

and board is fine, food, clothing, recreation, etc. are all acceptable uses

of the money. Each year we have to fill out a form for my son stating what

the money was used for and all of the catagories are listed right on the

official SSI form. We just deposit our son's check into our regular account

and

it gets used to pay bills, repairs, gas, food, etc. etc. etc.. Then when I

fill out the form I just check off the things on the list that would be

appropriate for , including clothing, school supplies, room and board,

food,

recreation and medical bills (including gas mileage, car repairs, co-pays and

such). So I would say that ALL of the things you listed would be completely

appropriate uses of the money.

Take Care and God Bless,

Mommy to:

Annette 16 yo, selective antibody deficiency, cp, devlopmental delays,

g-tube, IVIG x 5 years, starting Sub Q this week!

10yo, previous B and T cell deficiencies, IVIG x 1 year (off now over

2 years), daily prophylaxis, brain tumor survivor, hearing impaired, seizure

disorder, learning disabled, and one heck of a " WWF wrestler " !

Trayvon 7yo, Ivemark Syndrome, severe congenital heart defects, asplenia,

malrotated intestines, microcephalic, migraines, severe reflux and losing teeth

by the day!

Marriela 3yo, Micro premie (26 weeker, 1 lb, 12oz), NICU x 4 months, severe

asthma, devlopmental delays, mild cp, reflux, and gives us a serious run for

our money every single day!

and last but not least,

Cody 6 months, resolving reflux, chronic congestion and a very happy baby.

God has a serious sense of humor now doesn't he! LOLOLOLOL

_www.caringbridge.com/ny/my2angels_

(http://www.caringbridge.com/ny/my2angels)

[Guest guest]

In a message dated 3/15/2006 9:46:58 P.M. Eastern Standard Time,

writes:

But, we can only take it

out for use of things related to their qualifying condition.....being

asthma and PID.

Hi ,

I live in NY but that shouldn't matter because SSI is a federal program. I

don't know why they told you it had to be used (the money that is) for things

related to their " condidtion " . It needs to be used for the child for whom

the check is administered, but not the actual condition. In other words, room

and board is fine, food, clothing, recreation, etc. are all acceptable uses

of the money. Each year we have to fill out a form for my son stating what

the money was used for and all of the catagories are listed right on the

official SSI form. We just deposit our son's check into our regular account

and

it gets used to pay bills, repairs, gas, food, etc. etc. etc.. Then when I

fill out the form I just check off the things on the list that would be

appropriate for , including clothing, school supplies, room and board,

food,

recreation and medical bills (including gas mileage, car repairs, co-pays and

such). So I would say that ALL of the things you listed would be completely

appropriate uses of the money.

Take Care and God Bless,

Mommy to:

Annette 16 yo, selective antibody deficiency, cp, devlopmental delays,

g-tube, IVIG x 5 years, starting Sub Q this week!

10yo, previous B and T cell deficiencies, IVIG x 1 year (off now over

2 years), daily prophylaxis, brain tumor survivor, hearing impaired, seizure

disorder, learning disabled, and one heck of a " WWF wrestler " !

Trayvon 7yo, Ivemark Syndrome, severe congenital heart defects, asplenia,

malrotated intestines, microcephalic, migraines, severe reflux and losing teeth

by the day!

Marriela 3yo, Micro premie (26 weeker, 1 lb, 12oz), NICU x 4 months, severe

asthma, devlopmental delays, mild cp, reflux, and gives us a serious run for

our money every single day!

and last but not least,

Cody 6 months, resolving reflux, chronic congestion and a very happy baby.

God has a serious sense of humor now doesn't he! LOLOLOLOL

_www.caringbridge.com/ny/my2angels_

(http://www.caringbridge.com/ny/my2angels)

[Guest guest]

In a message dated 4/26/2006 10:08:26 P.M. Eastern Standard Time, ljdragan@... writes:

My son's councelor suggested that I look into getting my son on SSI. Does anyone know if it possible for someone with AS to get on SSI???

Yes, My sons official diagnosis is AS with ADHD and OCD and we applied in November .. where approved March 17th and received our first check for him on Monday..

I really don't know what to do...to cover him under my insurance at work would cost $400 per month. My work insurance will not pay for counseling visits. Counseling is a big must for my son. I would also have to pay $100 co-pay per month on his meds. Plus co-pays for Dr visits.

I would definatly apply for him then, You can fill out the information online for the most part .. that's what I did.. did all the work up online and after that it was about 20 minutes in the Social Security office and then 6 months of waiting.. they called me once in that 6 months for more information.. but that was it..

I LOVE SOMEONE WITH AUTISMApril Is Autism Awareness Monthwww.autismwalk.org

[Guest guest]

Hi , it is possible for them to get ssi. But be warned my son is in the final stages of getting approved and its been almost a year process. We were told by our family lawyer that every claim is denied twice until it is taken to court and then it is awarded. You do not need a lawyer to get ssi though we have done it on our own. Social security has a listing of childhood impairments that are allowed at their web site and autism/AS are listed specifically.Although you do have to keep apeeling until you get to court,the web site says if their condition is listed ,they are pretty much guaranteed to get it.It is listed in childhood impairments under developmental disabilities I believe. Hope this helpsspeckledssy <ljdragan@...> wrote: My 13 yr old son has dx of AS, OCD, ODD, and Mood Disorder. I have had him covered under MC Plus in MO. We do not qualify for medicaid because I 'make too much money'. MO has a program (MC Plus) for low income families that will cover kids medical, eye, dental, counceling, etc... for a monthly premium. I was recently notified by the case worker at Department of Family Services that we may not qualify for MC Plus anymore. The Governor of MO has changed several laws that deal with medicaid and MC Plus. My son's councelor suggested that I look into getting my son on SSI. Does anyone know if it possible for someone with AS to get on SSI??? I really don't know what to do...to cover him under my insurance at work would cost $400 per month. My work insurance will not pay for counseling visits. Counseling is a big must for my son. I would also have to pay $100 co-pay per month on his meds. Plus co-pays for

Dr visits.His father is court ordered to provide his medical insurance, but doesn't do it. On the other hand, he is also court ordered to pay childsupport and doesn't do that either.Sorry to have written so much......any ideas?????Lori

[Guest guest]

yes he may qualify for ssi you can get an application on line or call the 800 # then make an appointment at your local office if you make too much to qualify for the ssi they have a program that gives you medical benefits (like medicaid) without the monthly income provided by ssi apply tomarrow as it may take a couple of month

SSI

My 13 yr old son has dx of AS, OCD, ODD, and Mood Disorder. I have had him covered under MC Plus in MO. We do not qualify for medicaid because I 'make too much money'. MO has a program (MC Plus) for low income families that will cover kids medical, eye, dental, counceling, etc... for a monthly premium. I was recently notified by the case worker at Department of Family Services that we may not qualify for MC Plus anymore. The Governor of MO has changed several laws that deal with medicaid and MC Plus. My son's councelor suggested that I look into getting my son on SSI. Does anyone know if it possible for someone with AS to get on SSI??? I really don't know what to do...to cover him under my insurance at work would cost $400 per month. My work insurance will not pay for counseling visits. Counseling is a big must for my son. I would also have to pay $100 co-pay per month on his meds. Plus co-pays for Dr visits.His father is court ordered to provide his medical insurance, but doesn't do it. On the other hand, he is also court ordered to pay childsupport and doesn't do that either.Sorry to have written so much......any ideas?????Lori

[Guest guest]

yes it is possible! I have twin boys who are 2 recently diagnosed with autism and we applied before they had an official diagnosis and they are now recieving ssi. It does go on ur income so if it changes occasionally then your benefits may change but it is a big help. Good Luck!speckledssy <ljdragan@...> wrote: My 13 yr old son has dx of AS, OCD, ODD, and Mood Disorder. I have had him covered under MC Plus in MO. We do not qualify for medicaid because I 'make too much money'. MO has a program (MC Plus) for low income families that will cover kids medical, eye, dental, counceling, etc... for a monthly premium. I was recently notified by the case worker at Department of Family Services that we may not qualify for MC Plus anymore. The Governor of MO has changed several laws that deal

with medicaid and MC Plus. My son's councelor suggested that I look into getting my son on SSI. Does anyone know if it possible for someone with AS to get on SSI??? I really don't know what to do...to cover him under my insurance at work would cost $400 per month. My work insurance will not pay for counseling visits. Counseling is a big must for my son. I would also have to pay $100 co-pay per month on his meds. Plus co-pays for Dr visits.His father is court ordered to provide his medical insurance, but doesn't do it. On the other hand, he is also court ordered to pay childsupport and doesn't do that either.Sorry to have written so much......any ideas?????Lori M. Anguiano

goes everywhere you do. Get it on your phone.

[Guest guest]

My 7 year old with AS is on SSI, and my 5 year old as well...

Beth in Alabama

SSI

My 13 yr old son has dx of AS, OCD, ODD, and Mood Disorder. I have

had him covered under MC Plus in MO. We do not qualify for medicaid

because I 'make too much money'. MO has a program (MC Plus) for low

income families that will cover kids medical, eye, dental,

counceling, etc... for a monthly premium. I was recently notified

by the case worker at Department of Family Services that we may not

qualify for MC Plus anymore. The Governor of MO has changed several

laws that deal with medicaid and MC Plus.

My son's councelor suggested that I look into getting my son on

SSI. Does anyone know if it possible for someone with AS to get on

SSI???

I really don't know what to do...to cover him under my insurance at

work would cost $400 per month. My work insurance will not pay for

counseling visits. Counseling is a big must for my son. I would

also have to pay $100 co-pay per month on his meds. Plus co-pays

for Dr visits.

His father is court ordered to provide his medical insurance, but

doesn't do it. On the other hand, he is also court ordered to pay

childsupport and doesn't do that either.

Sorry to have written so much......any ideas?????

Lori

[Guest guest]

When you apply for your Son who has Aspergars Syndrome tell them Autism dont elaborate just say he has autism and have your doctor write a letter stating he has Autism and is being seen for that AS is a form of autism but getting benefits such as SSI i ve learned through talking to people in disabilty just state Autism as AS falls under Autism Spectrum gets your foot in the door with help and medicaid will follow once hes on SSI. Hope it works good luck blessings in Fl

[Guest guest]

have you tried looking in your local Yellow Pages for a disability advocate? Also there is a waiver, not sure of the name, that is sometimes available for medicaid. GOOD LUCK!Beth Layne <blayne@...> wrote: My 7 year old with AS is on SSI, and my 5 year old as well...Beth in Alabama-----Original Message-----From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of speckledssySent: Tuesday, April 25, 2006 10:31 PMAutism and Aspergers Treatment Subject: SSIMy 13 yr old son has dx of AS, OCD, ODD, and Mood Disorder. I have had him covered under MC Plus in MO. We do not qualify for medicaid because I 'make too much money'. MO has a program (MC Plus) for low income

families that will cover kids medical, eye, dental, counceling, etc... for a monthly premium. I was recently notified by the case worker at Department of Family Services that we may not qualify for MC Plus anymore. The Governor of MO has changed several laws that deal with medicaid and MC Plus. My son's councelor suggested that I look into getting my son on SSI. Does anyone know if it possible for someone with AS to get on SSI??? I really don't know what to do...to cover him under my insurance at work would cost $400 per month. My work insurance will not pay for counseling visits. Counseling is a big must for my son. I would also have to pay $100 co-pay per month on his meds. Plus co-pays for Dr visits.His father is court ordered to provide his medical insurance, but doesn't do it. On the other hand, he is also court ordered to pay

childsupport and doesn't do that either.Sorry to have written so much......any ideas?????Lori

[Guest guest]

my son got ssi medicad wen he was 3 he just has Autism he doesn't talk also...you have to make under 2,000 for one parent and 2 parents 3,000... maybe u can try lowering ur income ...i don't know what ur income is but if its under 2,000.. maybe u can try later again ... i hope this well help a little.. Roxanne

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[Guest guest]

My son has AS and he received SSI of anywhere between $60-$200 a month, depending on what the records showed. They asked for paystubs for a certian time limit and based it on that. At the time that my son got SSI, I was a single mom. I'm remarried now and they count the new husband's income and because of that, now my son is ineligible for SSI because we make too much money. It was a wonderful help while it lasted. Don't get me started on Dad's who don't support their children. My son's Dad gets SSI himself of $366 a month to live on and because of that, my son only gets $76 a month in child support WHEN he gets it. Go figure. Oh well, I'm glad to have a husband that cares enough about my son to take care of him!! Good luck on getting SSI. You have to go to the local Social Security office and they will tell you what documents

you'll need to bring for the paperwork. I was required to bring documents stating my son has AS, the divorce decree, paystubs from work, and other things like that. Much luck! Meshel (rhymes with seashell)speckledssy <ljdragan@...> wrote: My 13 yr old son has dx of AS, OCD, ODD, and Mood Disorder. I have had him covered under MC Plus in MO. We do not qualify for medicaid because I 'make too much money'. MO has a program (MC Plus) for low income families that will cover kids medical, eye, dental, counceling, etc... for a monthly premium. I was recently notified by the case worker at Department of Family Services that we may not qualify for MC Plus anymore. The Governor of MO has changed several

laws that deal with medicaid and MC Plus. My son's councelor suggested that I look into getting my son on SSI. Does anyone know if it possible for someone with AS to get on SSI??? I really don't know what to do...to cover him under my insurance at work would cost $400 per month. My work insurance will not pay for counseling visits. Counseling is a big must for my son. I would also have to pay $100 co-pay per month on his meds. Plus co-pays for Dr visits.His father is court ordered to provide his medical insurance, but doesn't do it. On the other hand, he is also court ordered to pay childsupport and doesn't do that either.Sorry to have written so much......any ideas?????Lori

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[Guest guest]

In a message dated 4/29/2006 9:20:30 P.M. Eastern Standard Time, Laha1960@... writes:

WEll, we have a lower income, and I work only during tax season and make little. I am sure that we would not qualify though financially, and many DO NOT.

One reason is that we have a bank account and we have owned stocks that we inherited. We also have a college fund in our son's name which has been contributed to since birth by my parents. This can not be taken out of my son's name now.

So, there are many things to look at, just because my son has Anxiety, severe ADHD and Aspergers and OCD, does not mean he would be qualified to get SSI.

LAura in IL

Right and I understand that, I was just answering the question as asked in regards to my experience.. though, again from my experience the lady at SSI said there are some assets they can exclude when figuring out your eligibility

I LOVE SOMEONE WITH AUTISMApril Is Autism Awareness MonthWalking For

[Guest guest]

I have been fighting SSI for almost 3 years now. But after my last little "thing" in Oct my lawyer seems to think it may be a go this time!!! Went to primary yesterday and he said time may be running out to fix shoulder. Trying to get me into ortho quick. I need SSI as State only gives you 200 a mnthe to work with, everything is going up and with the basics (rent, car insurence, taxes, phone, TV, ect) I go into the hole.

Gail

Re: I agree

Yes --I agree that to get on SSD when you are disabled is and can be a terrible and humiliating chore. I experienced this with my husband. WE hired legal help and finally 6 months before he died the money came through. The stress he went through was awful--I am sure it may have hastened his death because of the worry he endured for months. I have a friend who also had great difficulty with getting on disability.

Some offices will tend to be more helpful--also I dated an SS worker and he trained people--so if you get a not fully trained person you can have lots of troubles--I did once.

It is a disgrace what sick and injured people have to go through to just survive and as we all know many do not survive without the funds they deserve .

Adele

[Guest guest]

Are you sure that they are saying that you no longer qualify because you paid

back the money in full? It could just be that your income no longer meets the

guidelines? I would call to get clarification for sure, as it doesn't sound

quite right. My kids received SSI for many years, and at least once a year

probably I had to pay back some amount of overpayment because you only HAVE to

report your income yearly and that's what I did but to avoid overpayments, I

should have reported changes immediately, which I didn't do....and paying back

the overpayment never changed their status. What did was a large increase in our

income that finally disqualified them....b ut as I said, this was after many

years and many overpayments.

in MD, Mom to Angel, Caitlyn, & all uniquely-abled

[Guest guest]

Hi. I can't tell you how it is when they are 18 but in my dd's case, we applied 2.5 years ago and are just supposed to (in May) get our first appeal of the original denial. It took them 8 months to give that original denial and everyone I have talked to says they always deny on the first application. Then you have to go on from there. So we are over two years into this and have yet to see any result from it. BTW, my dd has Aspergers, Bi polar disorder, ADHD and ODD diagnosis'. We have an attorney handling it for us now because it is SO long and drawn out and SO much paperwork and so many hoops to jump through that it was overwhelming for me and I am a college graduate who has worked in the insurance industry and healthcare industry for years! My aunt suggested that we hire a SS disability attorney that will work on contingency. I said but then they take 20-25% from the settlement and she pointed out that we are more likely to get

something with an attorney who specializes in SSI handling all the paperwork etc as they know what to do to get the desired response etc. She also said, well right now you have nothing and 25% of nothing is nothing so wouldn't it be better to have 75% of something? That was a good point as far as I was concerned as we have 6 kids, two with disabilities, I have my own business to run as well as the kids and the normal family/school activities. I felt this was important enough to have someone give it their undivided attention. I do not mean to sound discouraging, just wanted to let you know that it can take a LONG time to see any results. I had heard some things that indicated that somewhat when I first applied but it had not really sunk in that in all probability, it would be YEARS before we had any result. I was really in a position where I needed that money because of changes I had made in our lives to care for my dd and it

took alot of improvising to get through it. We still live paycheck to paycheck but at least there are paychecks now! Also with a federal hiring freeze, in most areas, you have half as many people handling the work of all of the positions. For example in my area of the midwest, there were originally 6 judges that handled these cases for appeal/ hearings etc. One died, and two more retired. That left 6. I was told our case would be delayed and come up probably by December 2007, well now it is going to be May (hopefully) 2008 when they get to it! Good luck and God bless! I truly hope your sons case goes much more quickly and smoothly! quline12 <quline12@...> wrote: My 18 year old son is applying for SSI and I was wondering if there were any other parents who have applied before that are familar with the process that could give me some info or advice. the sent us an appt for a psyc. eval. __________________________________________________

[Guest guest]

Not for someone this age but make sure to take all medical records with

you!

>

>

> My 18 year old son is applying for SSI and I was wondering if there

> were any other parents who have applied before that are familar with

> the process that could give me some info or advice. the sent us an

> appt for a psyc. eval.

>

[Guest guest]

Hi, I have 2 boys, 20 & 12. They both recieve SSI. If you need some help let me know. The physical evaluation is normal. I went through that also. Kerriquline12 <quline12@...> wrote: My 18 year old son is applying for SSI and I was wondering if there were any other parents who have applied before that are familar with the process that could give me some info or advice. the sent us an appt for a psyc. eval. __________________________________________________

[Guest guest]

My son will turn 18 soon. He has been receiving SSI/medicaid for years. I called to make an appointmet to change it to his name and his agent called me back and did all the paperwork over the phone super easy YEA

[Guest guest]

As long as you have a diagnosis before age 22, a person is easily eligible for SSD, and sometimes a combination of SSD and SSI.

What a Godsend, especially if you're the caregiver, or supporting parent, they may even give you some SSD.

Francine

In a message dated 5/15/2008 2:11:33 A.M. Eastern Daylight Time, Laha1960@... writes:

HII see the topic coming up on this list and others from time to time.I am told that SSI is tough to get AND if your child is under 18, the parent or PARENTS must have a lower income and low assets, and the child needs this as well.If the child is over 18, they look at the child's assets and income. Of course a CHILD at 18 is an adult.My findings are that SSI is hard to get, and yes, you need to save records. I have saved every doctor report, every IEP, and every evaluation since my son was THREE.He is now 19.I have never applied for SSI for him ever.If I should need to do so, now that he is an adult, I have so much, a HUGE bag full of things. We should not have a hard time, and he has no income. He is in college, and he is working on a college degree, Should he need medical care, I plan to apply. For now, we have insurnace, but my husband pays over $500 a month for our premiums for his work coverage, AND we pay out over 200-300 a month for our co pays for my son for his visits, medical care, and MAINLY MEDICATIONS for his disability. He has ADHD and Aspergers, so his meds are geared on those symptoms.My worry is that he will need the medical help someday.I know we would be denied the first time, and we were told just prior to turning 18, make sure we apply for him for SSI, so that he gets it and gets in on it right at the start of adulthood. However, because he is in college and we currently can and do pay for his medical and insurance, and he is a doing fine as a student, I did not want to rock the boat.I am not sure if they would take him as a college student, but they might.One thing we had against us when he was under 18 is that he had money in his name, which we could not move, a Minor Trust, for college set up since birth from my parents, and my dad made sure that it would not be able to be touched until turned 18.So, that would have been held against him, and also our incomes would have been over the limit. When he was very young, we had a time we had VERY low incomes, my husband was working one job for one part of one year at $4 an hour several years ago, and I did not have a job, and had who was 6 and a baby then. So, we could have qualified income wise, but I knew that money was in his name and that would have disqualified him as I called SS on the phone and was told this.SO, there are many factors to consider and they do look at more than just the disability issues. in IL

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epiousian = the expression of agapequite a bit more than enoughWondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food.

[Guest guest]

Francine – I hear you but I don’t

know what the answers are. My daughter has applied and applied and keeps

getting turned down for one reason or another. First because her husband

had a job and they made too much money. She works from home when she can

because she home schools.

Her husband was laid off 6 months ago as a

construction superintendent and they tried again, but because they had a

vehicle free and clear in their name they counted it as an asset and declined

them again.

Guess you have to be both unemployed or

divorced, and be on foot before you qualify.

It hurts because she doesn’t want

the money, just wants to get him the services he needs.

Thanks for listening and being there.

Meemaw to Brenden (xyy, adhd,

mild to moderate autism, Sensory integration Dysfunction – you name it.)

From:

Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of sunrose101@...

Sent: Thursday, May 15, 2008 5:51

PM

To:

Autism and Aspergers Treatment

Subject: Re:

SSI

As long as you have a diagnosis before

age 22, a person is easily eligible for SSD, and sometimes a combination of SSD

and SSI.

What a Godsend, especially if you're the

caregiver, or supporting parent, they may even give you some SSD.

Francine

In a message dated 5/15/2008 2:11:33

A.M. Eastern Daylight Time, Laha1960aol writes:

HI

I see the topic coming up on this list and others from time to time.

I am told that SSI is tough to get AND if your child is under 18, the parent or

PARENTS must have a lower income and low assets, and the child needs this as

well.

If the child is over 18, they look at the child's assets and income. Of course

a CHILD at 18 is an adult.

My findings are that SSI is hard to get, and yes, you need to save records. I

have saved every doctor report, every IEP, and every evaluation since my son

was THREE.

He is now 19.

I have never applied for SSI for him ever.

If I should need to do so, now that he is an adult, I have so much, a

HUGE bag full of things. We should not have a hard time, and he has no income.

He is in college, and he is working on a college degree, Should he need medical

care, I plan to apply. For now, we have insurnace, but my husband pays over

$500 a month for our premiums for his work coverage, AND we pay out over

200-300 a month for our co pays for my son for his visits, medical care, and

MAINLY MEDICATIONS for his disability. He has ADHD and Aspergers, so his meds

are geared on those symptoms.

My worry is that he will need the medical help someday.

I know we would be denied the first time, and we were told just prior to

turning 18, make sure we apply for him for SSI, so that he gets it and gets in

on it right at the start of adulthood. However, because he is in college and we

currently can and do pay for his medical and insurance, and he is a doing fine

as a student, I did not want to rock the boat.

I am not sure if they would take him as a college student, but they might.

One thing we had against us when he was under 18 is that he had money in his

name, which we could not move, a Minor Trust, for college set up since birth

from my parents, and my dad made sure that it would not be able to be touched

until turned 18.

So, that would have been held against him, and also our incomes would have been

over the limit. When he was very young, we had a time we had VERY low incomes,

my husband was working one job for one part of one year at $4 an hour several

years ago, and I did not have a job, and had who was 6 and a baby then.

So, we could have qualified income wise, but I knew that money was in his name

and that would have disqualified him as I called SS on the phone and was told

this.

SO, there are many factors to consider and they do look at more than just the

disability issues.

in IL

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