SSI

[Guest guest]

my sons were both approved the very first time i applied i was shocked but i had everything saved also. i think sometimes they just dotn get what is a disablity that would hinder them from getting work and being able to live on their own.they told my friend whose son is almost compltetly deaf and is declared legally deaf and is pdd and has mood behaviors and that they told my friend he should still be able to work and earn his way so they deneid him a time or 2 b4 they approved him. i think it also depends on who does the evals just like with insurances the kids dr tells the parent what the kid needs the inusrance co dr tells them no he dont even though they never even met the kid. i mean who knows best the dr who been taking care of

them since birth or the insurace co who never met the kid ugh . i never had a probelm with ssi and getting apporved my problem now is they didnt take down my info over 3 yrs ago and now say i have to pay back the over payment and i filed hardship in dec and called last month and found out they say they never got the app. so i filed another but i made a COPY b4 i sent it as proof i filled it out. now waiting on this one .. one pice of advice for anyone here is make copies of everything u send in and fill out so u have proof.good luck i think u should apply it will help you guys a lot .Vickie WwW.SparkleTags.Com----- Original Message ----From: "Laha1960@..." <Laha1960@...>Autism and Aspergers Treatment Sent: Thursday, May 15, 2008 2:10:51 AMSubject: SSIHI

I see the topic coming up on this list and others from time to time.

I am told that SSI is tough to get AND if your child is under 18, the parent or PARENTS must have a lower income and low assets, and the child needs this as well.

If the child is over 18, they look at the child's assets and income. Of course a CHILD at 18 is an adult.

My findings are that SSI is hard to get, and yes, you need to save records. I have saved every doctor report, every IEP, and every evaluation since my son was THREE.

He is now 19.

I have never applied for SSI for him ever.

If I should need to do so, now that he is an adult, I have so much, a HUGE bag full of things. We should not have a hard time, and he has no income. He is in college, and he is working on a college degree, Should he need medical care, I plan to apply. For now, we have insurnace, but my husband pays over $500 a month for our premiums for his work coverage, AND we pay out over 200-300 a month for our co pays for my son for his visits, medical care, and MAINLY MEDICATIONS for his disability. He has ADHD and Aspergers, so his meds are geared on those symptoms.

My worry is that he will need the medical help someday.

I know we would be denied the first time, and we were told just prior to turning 18, make sure we apply for him for SSI, so that he gets it and gets in on it right at the start of adulthood. However, because he is in college and we currently can and do pay for his medical and insurance, and he is a doing fine as a student, I did not want to rock the boat.

I am not sure if they would take him as a college student, but they might.

One thing we had against us when he was under 18 is that he had money in his name, which we could not move, a Minor Trust, for college set up since birth from my parents, and my dad made sure that it would not be able to be touched until turned 18.

So, that would have been held against him, and also our incomes would have been over the limit. When he was very young, we had a time we had VERY low incomes, my husband was working one job for one part of one year at $4 an hour several years ago, and I did not have a job, and had who was 6 and a baby then. So, we could have qualified income wise, but I knew that money was in his name and that would have disqualified him as I called SS on the phone and was told this.

SO, there are many factors to consider and they do look at more than just the disability issues.

in ILPlan your next roadtrip with MapQuest.com: America's #1 Mapping Site.

[Guest guest]

I believe it all has to do with proof. If you are receiving services, therapy etc. have records. I had no problem

We have been attending therapy and keeping drs appointments. Keep all school records. I know someone who has tried to get SSI for her son, but never did anythig after the Dx . Of course she was turned down. SSI is a federal program. It should not matter what state you live in

Autism and Aspergers Treatment From: craftymom121164@...Date: Thu, 15 May 2008 12:04:29 +0000Subject: Re: SSI

I was able to get it for my son and on the first try. I live in michigan don't know if it help by living here or not. But my son's DR. helped me to get it. It’s easy to add contacts from Facebook and other social sites through Windows Live™ Messenger. Learn How.

[Guest guest]

Find the local Leagal Aide services & ask for a meeting to see if you can

qualify for their services. 

How old is your child?

If she is still young enough,you can get a TEFRA Waiver for the Medicaid.

Does she have any other needs that can qualify her besides the immuno issues. 

Just use the search engine & google in TEFRA WAIVER.

Mom to Blake 16

Severe Combined ImmunoDeficiency with Complete T-Cell Dysfuntion, Swhachman

Diamond Bodine Syndrome, Pancreatic Insuffieciency, Asperger's Syndrome

http:/www3.caringbridge.org/sc/blakester

The Greatest Adventure of My Lifetime....just come & see for yourself!!!!

 

 

" Children are like butterflies in the wind.

Soem fly higher than others, BUT each one flies the best they can!!!!

From: Lorri <llkraft@...>

Subject: SSI

Date: Wednesday, August 20, 2008, 11:37 PM

I am trying to get SSI for my daughter . She will go off our

insurance in March and needs some type of medical coverage. She doesn't

have the energy to work full time and we have been turned down now twice. I

am appealing it to a judge hearing next. My question is we live in

Washington state and was wondering if anyone knows a good attorney for this

or the steps to look for a attorney to try to get some help.

Thank You

(CVID 18 years old)

Lorri Kraft

[Guest guest]

Hi Lorri, we have spoken years ago. I moved from WA state 2 years ago. I lived

in Bellingham at the time. Wa is good about some things but we found SS

determinations to be a nightmare. It took 3 + years from the time we applied to

get a hearing and then we got a positive determination and yet we were turned

down for SSI due to my income on Social Security. Also your daughter will not

be eligible for Medicare for 2 years so it is not an answer for health insurance

in the near future.

There are several other avenues I would suggest.

First, keep on the track of SS for her for the future. You must have had to

apply for her before she turned 18 for her to qualify as a child and not have to

earn income to qualify. ( I can explain more if you do not understand)

Second. She should be eligible for Basic Health Plan but I am not sure what kind

of care she can get under the plan, I would call the state to get specifics,

or if she is in school she could get insurance through you until in most cases

she finishes college. Just do not allow your policy to drop.

From what I know about Wa state they do not use the TEFRA or Beckett

Waiver to provide insurance for kids. It is up to each state to set up the

guidelines and from what I remember she would not be eligible at 18 even it they

do have it now.

If you go to your local CSO in WA ( DSHS office) they can help you apply to see

if she qualifies under her own income for state Medicaid. It pays for most care,

has a spend down and they will also help you with the Social Security filing.

But basically getting healthcare for our sick teens is a nightmare. I am in the

same boat now with 2 children. My daughter is 18 and we have applied back in Feb

for her before she turned 18. she was denied. We have appealed but nothing. Even

if they approve her she will not get medicare for 2 years. She has not graduated

from high school so here in OK she can get medicaid until she is 19.

My son on the other hand has PtID (he is 12) and has been approved for SS by a

judge was declared disabled back to birth. I am told the determination means

NOTHING because my SSDI income is too high so now that my daughter has moved out

my income is too high (by 27cents) and he would lose his medicaid except that I

reduced my child support to stay in the guidelines for now. I will have to leave

OK and somewhere else or move back up to Wa in the summer next year again in

hopes that I can keep coverage for him because the income guidelines are higher

in Wa state. I am at 185% of the poverty level here and do not qualify .>$24,000

per year. I have never been so poor in my life but am stuck in a horrible catch

22 so I cannot return to work part time or make any more money to live on

because of healthcare.

I wish I had better news for you but either your private insurance, Medicaid, or

Basic Health Plan are you best bets in WA state. SS has nothing to offer from

what I know at this time. I have asked SS about why if he is determined by a

judge to be disabled that he is not eligible for Medicare and they told me that

it is ALL based on income and I will even have to reapply and go through the

process when he gets older for him to get benefits. I am praying all of this is

wrong but I have spent 4 year learning and working on it.

OH Yeah you might call IDF since I did hear somewhere that they may have some

advocates available to help with some of the questions you are asking. Good Luck

I would be happy to talk to you further if I can help.

BARBIE

SSI

groups (DOT) com

Date: Wednesday, August 20, 2008, 11:37 PM

I am trying to get SSI for my daughter . She will go off our

insurance in March and needs some type of medical coverage. She doesn't

have the energy to work full time and we have been turned down now twice. I

am appealing it to a judge hearing next. My question is we live in

Washington state and was wondering if anyone knows a good attorney for this

or the steps to look for a attorney to try to get some help.

Thank You

(CVID 18 years old)

Lorri Kraft

[Guest guest]

from Dale, Mom to Katy, CVID, grown and married

Lorri,

I've found A.C.C.E.S.S to be very helpful. They exist to help people

get the social services they need and have gone to bat with the IDF to

get the definition of disability changed regarding PIDD. They should be

able to talk you through this and I believe will provide lawyers at no

fee to you to deal with disability (I may be wrong on that).

to all -- sorry for my lurker status. Got my hands full with counseling

right now. But, I'm reading the posts. If I think I can help and no

one else answers - I'll chime in. But, you girls are doing great and

giving great advice -- so I'm just lurking!!!

In His service,

dale

Lorri wrote:

>

>

>

>

> I am trying to get SSI for my daughter . She will go off our

> insurance in March and needs some type of medical coverage. She doesn't

> have the energy to work full time and we have been turned down now twice. I

> am appealing it to a judge hearing next. My question is we live in

> Washington state and was wondering if anyone knows a good attorney for this

> or the steps to look for a attorney to try to get some help.

>

> Thank You

>

> (CVID 18 years old)

>

> Lorri Kraft

>

>

[Guest guest]

from Dale --

see, I've got my mind on something else already.

A.C.C.E.S.S. can be reached at

206-340-4505

Sorry about that.

In His service,

dale

[Guest guest]

(35/DS) gets Social Security surivors benefits rather than SSI, but

we've run into things just as bizzare. For example, I once received a letter

from them stating she would be reviewed to see if the condition upon which

her benefits were based still existed.

It's a beuracracy. It's supposed to be stupid. :^)

granny

On Fri, Dec 5, 2008 at 10:30 AM, FireRose <FireRose@...> wrote:

> Jess did her first annual review last month. Turns out, we didn't need

> the

> itemized records I kept on her expenditures-just whether she spent funds on

> housing & food or " other. " (I'm going to keep doing the itemized records

> based on they seem to want something a little different every time I talk

> to

> them!)

>

> As it turned out, she is getting an increase. At the office, they said that

> was due to her " share " of expenditures being higher than the original

> calculation, but on the form we just got, it says its due to not getting

> free food and shelter anymore. (?)

>

> Are others seeing this same kind of reasoning in the payment amounts? And

> does such an increase affect her continuing dependent status on our taxes?

>

> Even with an increase, she'd have to spend more than she gets in SSI for a

> comparable living arrangement and eats, let alone buying anything else.

>

> Judi

>

>

[Guest guest]

It's succeeding beautifully! ; )

They told me that they would be reviewing Jess every 3 years to see if she

still has a qualifying condition and just shrugged when I asked if they

thought the ds would go away.

Judi

_____

From: [mailto: ] On Behalf

Of Gem Bordages

Sent: Friday, December 05, 2008 3:13 PM

Subject: Re: SSI

..

It's a beuracracy. It's supposed to be stupid. :^)

granny

[Guest guest]

LOL

And when I read these and chuckle with a smile on my

face... I see a wonderful lady in a white sweatshirt with

sunglasses and a lovely young lady in pink. Kiersten

--- Gem Bordages <gem.bordages@...> wrote:

> (35/DS) gets Social Security surivors benefits

> rather than SSI, but

> we've run into things just as bizzare. For example, I

> once received a letter

> from them stating she would be reviewed to see if the

> condition upon which

> her benefits were based still existed.

>

> It's a beuracracy. It's supposed to be stupid. :^)

>

> granny

>

> On Fri, Dec 5, 2008 at 10:30 AM, FireRose

> <FireRose@...> wrote:

>

> > Jess did her first annual review last month. Turns

> out, we didn't need

> > the

> > itemized records I kept on her expenditures-just

> whether she spent funds on

> > housing & food or " other. " (I'm going to keep doing the

> itemized records

> > based on they seem to want something a little different

> every time I talk

> > to

> > them!)

> >

> > As it turned out, she is getting an increase. At the

> office, they said that

> > was due to her " share " of expenditures being higher

> than the original

> > calculation, but on the form we just got, it says its

> due to not getting

> > free food and shelter anymore. (?)

> >

> > Are others seeing this same kind of reasoning in the

> payment amounts? And

> > does such an increase affect her continuing dependent

> status on our taxes?

> >

> > Even with an increase, she'd have to spend more than

> she gets in SSI for a

> > comparable living arrangement and eats, let alone

> buying anything else.

> >

> > Judi

> >

> >

[Guest guest]

ROFL... tears are present... I needed a good laugh today.

K

--- FireRose <FireRose@...> wrote:

> It's succeeding beautifully! ; )

>

>

>

> They told me that they would be reviewing Jess every 3

> years to see if she

> still has a qualifying condition and just shrugged when I

> asked if they

> thought the ds would go away.

>

>

>

> Judi

>

>

>

> _____

>

> From:

> [mailto: ] On Behalf

> Of Gem Bordages

> Sent: Friday, December 05, 2008 3:13 PM

>

> Subject: Re: SSI

>

>

>

> .

>

> It's a beuracracy. It's supposed to be stupid. :^)

>

> granny

>

>

>

>

>

>

>

[Guest guest]

Seems to be a widespread problem - that is social security bureaucrats

stupidity.

We use to get a yearly review form asking loads of irrelevant questions -

ie

Is the condition likely to improve within the next 6 months

How long will it likely be before the condition improves

When are you able to return to work (as in normal every day full time

employment)

Can you return to work now on part time hours

And a lot of other irrelevant type questions -

I was at a meeting many years ago regarding transitioning from school to day

programs, just happened a person from Centrelink (social security dept) was

there and made the mistake of coming over to our group for a chat! As I had

just received one of these stupid forms I had a little bit to say - he

very nicely took details and phoned the next day after checking records.

The result was no more yearly reviews, okay have to have a 5 yearly review

which I can accept but it is more relevant with questions as to assets etc.

- no doubt if you accumulate too much they will reduce the amount of

benefits - understandably.

If your Social Security department is anything like ours, they are

overworked, highly stressed and put up with a lot of abuse from the general

public, we were only talking about their job the other night and the group

of people I was with all agreed - no one would like to do their job.

Keep smiling

Jan, mother of Trent 24yo w/DS from the LandDownUnder

From: [mailto: ] On Behalf

Of Kiersten

Sent: Saturday, 6 December 2008 10:02 AM

Subject: Re: SSI

LOL

And when I read these and chuckle with a smile on my

face... I see a wonderful lady in a white sweatshirt with

sunglasses and a lovely young lady in pink. Kiersten

--- Gem Bordages <gem.bordages@... <mailto:gem.bordages%40gmail.com> >

wrote:

> (35/DS) gets Social Security surivors benefits

> rather than SSI, but

> we've run into things just as bizzare. For example, I

> once received a letter

> from them stating she would be reviewed to see if the

> condition upon which

> her benefits were based still existed.

>

> It's a beuracracy. It's supposed to be stupid. :^)

>

> granny

>

> On Fri, Dec 5, 2008 at 10:30 AM, FireRose

> <FireRose@... <mailto:FireRose%40hughes.net> > wrote:

>

> > Jess did her first annual review last month. Turns

> out, we didn't need

> > the

> > itemized records I kept on her expenditures-just

> whether she spent funds on

> > housing & food or " other. " (I'm going to keep doing the

> itemized records

> > based on they seem to want something a little different

> every time I talk

> > to

> > them!)

> >

> > As it turned out, she is getting an increase. At the

> office, they said that

> > was due to her " share " of expenditures being higher

> than the original

> > calculation, but on the form we just got, it says its

> due to not getting

> > free food and shelter anymore. (?)

> >

> > Are others seeing this same kind of reasoning in the

> payment amounts? And

> > does such an increase affect her continuing dependent

> status on our taxes?

> >

> > Even with an increase, she'd have to spend more than

> she gets in SSI for a

> > comparable living arrangement and eats, let alone

> buying anything else.

> >

> > Judi

> >

> >

[Guest guest]

ROFLMAO

Aussie Leis- mum to , Natasha, and Liliana

I am extraordinarily patient, provided I get my own way in the end.

Margaret Thatcher

Gem Bordages wrote:

>

> It's a beuracracy. It's supposed to be stupid. :^)

>

> granny

>

>

>

[Guest guest]

You wrote:

As it turned out, she is getting an increase. At the office, they said that

was due to her " share " of expenditures being higher than the original

calculation, but on the form we just got, it says its due to not getting

free food and shelter anymore. (?)

Here is what I have learned. I'm just a mom.

If her 'share' of expenses is 'too low,' she could be denied the higher amount.

I've heard of people whose house is paid for not having enough 'shared household

expenses' to qualify for the larger amount. We are almost in that category, but

the taxes and insurance for our home, utilities, and food was enough to meet the

minimum threshold...so our son qualifies for the larger amount.

If her 'share' of expenses is 'too high,' she could be denied the higher amount.

If you have a large house payment and household expenses that when 'shared' is

greater than the 'whole check' she would receive....then you would be

subsidising her.....and she would not qualify for the larger amount.

No, it doesn't make sense! Why should people on either end of the spectrum not

get the full amount?

When our son started receiving SSI, he got the lower amount. The first 3

months, he paid us a share for living expenses. I took in the records to show

that to the SS office. They saw that he was paying his way, verified what his

share would be, and started paying him the larger amount.

Hope this helps someone.

Shirley, mom to Josiah, now 19yo

[Guest guest]

When started receiving SSI I knew our house payment would be to high for

him to qualify. I told them we were charging him $300.00 a month, as room and

board. On paper I had it broke down, each of the utilities, food, laundry and

the remainder for his room. I did not take in any receipts and when they asked

about our mortgage. I told him it would be to high for to pay his share of

it. We were charging him his share of expenses but on a room and board basis. He

was fine with that and we had no problems.

Tena mom to 19

Re: SSI

You wrote:

As it turned out, she is getting an increase. At the office, they said that

was due to her " share " of expenditures being higher than the original

calculation, but on the form we just got, it says its due to not getting

free food and shelter anymore. (?)

Here is what I have learned. I'm just a mom.

If her 'share' of expenses is 'too low,' she could be denied the higher

amount. I've heard of people whose house is paid for not having enough 'shared

household expenses' to qualify for the larger amount. We are almost in that

category, but the taxes and insurance for our home, utilities, and food was

enough to meet the minimum threshold...so our son qualifies for the larger

amount.

If her 'share' of expenses is 'too high,' she could be denied the higher

amount. If you have a large house payment and household expenses that when

'shared' is greater than the 'whole check' she would receive....then you would

be subsidising her.....and she would not qualify for the larger amount.

No, it doesn't make sense! Why should people on either end of the spectrum

not get the full amount?

When our son started receiving SSI, he got the lower amount. The first 3

months, he paid us a share for living expenses. I took in the records to show

that to the SS office. They saw that he was paying his way, verified what his

share would be, and started paying him the larger amount.

Hope this helps someone.

Shirley, mom to Josiah, now 19yo

[Guest guest]

Okay :-) I get confused on all of this a LOT!!

Have a good day,

H.

RE: SSI

Same idea… I was just trying to point out that you were not paying his tuition

ith HBSSP funding. Thanks…

From: IPADDUnite [mailto:IPADDUnite ] On Behalf

f sunshinebeaches3@...

ent: Thursday, April 07, 2011 11:32 AM

o: IPADDUnite

ubject: Re: SSI

harlotte, I do not attend the classes with , he goes with his transition

eam from school and took one vocational class. I used his SSI money to pay the

uition for the class last fall. I don't pay myself anything to do things with

nd for .

ary H.

-----Original Message-----

rom: Charlotte Cronin <fsn@...

<mailto:fsn%40familysupportnetwork.org>

o: IPADDUnite <IPADDUnite <mailto:IPADDUnite%40>

ent: Thu, Apr 7, 2011 11:24 am

ubject: RE: SSI

These are the topics that make me want to go out and howl at the moon. We fought

nd we fought and we fought….

Respite: There is no specific rate for “respite†in either the Children’s

or

ult Home-Based Support Services programs (HBSSP). People can use their funding

pay personal support workers to provide respite. Those PSW’s may be hired

rectly by the individual or provided by an agency. I can imagine a situation

ere an agency is providing PSW’s for the individual and calling it respite.

Adults and children in either program MAY access respite through other funding

reams such as grant funded respite (which is on the chopping block in this

ar’s budget) just like anybody else.

Recreation: This one is just a huge personal disappointment. Yes, technically,

ecial recreation associations (SRA’s) may provide services. But, they have to

ovide the same 80(?) hours of training to their workers that DT does. This

del does not work for them because so many of their workers are volunteers or

udents. They can’t invest in 80 hours of training for someone they know is

ly going to be there for the summer or a year or so. I do not know of any

A’s that are currently using Home-Based $$ to fund their participants.

College: This is another effort that I (and many others) fought hard on. Is

ere a more wonderful opportunity for people with disabilities to learn

ongside their peers? The state says that the Feds say that they won’t pay for

rvices that haven’t YET been provided (tuition, gasp!). So the college would

ve to agree to accept Medicaid reimbursement, track the students attendance,

d then bill the state afterwards. So the state never developed a service

finition for this or a rate.

I am assuming that H. below is paying herself to be ’ psw and then

ing her salary to pay his tuition.

Now I will go grump about other things.

Charlotte

Oh, once again, here is the FAQ on the HBSSP that we’ve posted on our website.

m dismayed to see that it was last updated over a year ago. But, it is pretty

ch up to date. Go to page 14 for the included services in HBSSP.

tp://www.familysupportnetwork.org/miscellaneous%20pdfs/2009%20Frequently%20Asked\

%20Questions.pdf

rom: IPADDUnite <mailto:IPADDUnite%40>

mailto:IPADDUnite <mailto:IPADDUnite%40> ] On

ehalf

Terrill

nt: Thursday, April 07, 2011 9:31 AM

: IPADDUnite <mailto:IPADDUnite%40>

bject: Re: SSI

ou can use waiver funds for respite

t sure you can use waiver funds for recreation

arlotte this was a big issue

you remember?

thy

athy Ficker Terrill

n Apr 7, 2011, at 9:06 AM, sunshinebeaches3@...

<mailto:sunshinebeaches3%40aol.com>

mailto:sunshinebeaches3%40aol.com>

ote:

use it for that and also a class that has taken at COD. I will also be

ing a large portion of it to pay for his summer camp this year.

ary H.

-----Original Message-----

rom: Margie Sillery <margiesillery@... <mailto:margiesillery%40>

mailto:margiesillery%40>

ipaddunite <ipaddunite <mailto:ipaddunite%40>

mailto:ipaddunite%40>

Sent: Thu, Apr 7, 2011 8:06 am

ubject: SSI

Can this money be used for special recreation programs? Thanks.

[Guest guest]

If the special recreation program is for the SSI recipient - YES.

From: Margie Sillery <margiesillery@...>

Subject: SSI

ipaddunite

Date: Thursday, April 7, 2011, 8:06 AM

 

Can this money be used for special recreation programs?  Thanks.

[Guest guest]

Yes.  You are an inspiration.

From: Pyle Bopkas <teleprovider@...>

Subject: Re: SSI

IPADDUnite

Date: Thursday, April 7, 2011, 4:38 PM

 

It is money, no matter how you see it.

 

You can used it to improve your health, go to a baseball game, donate to

charity, buy foods, etc.

 

I myself have a personal mission to become independent where I don't need Social

Security any more and help other.

 

Does that help your question?

[Guest guest]

I thought we were talking about SSI here and not the Waiver.?

I was thinking that the best way to keep track of the funds OUT of the Rep Payee

account, was to write checks and checks to myself with the purpose in the memo

of the check. Now is it ok to " repay " yourself as the rep payee for something

you paid as a lump sum for your child, over say a couple of months because to

have paid for it all directly from the rep payee account itself at the time of

purchase because at that time there was not enough money in the account?

For example summer camp $1125 and taking $274 each month over several months.

The checks go to the rep payees name even though in those months you already

wrote another check for " fair share expenses " already?

I know I am probably asking really stupid questions however I am a newbie as my

son was just approved. i really dont want someone from SSA at the end of year

asking me why the other money besides the " fasir share expenses " was supposed to

be spent on the recipiant and not to me the rep payee.

Any veterans of being a rep payee wanna chime in?

Thanks,

Diane S

>

> >

> > I use it for that and also a class that has taken at COD. I will also

be using a large portion of it to pay for his summer camp this year.

> > H.

> >

> > SSI

> >

> > Can this money be used for special recreation programs? Thanks.

> >

> >

[Guest guest]

I see nothing wrong with the way you want to do this. Just remember to not let

the total value of your son's account to exceed $2000. SSI doesn't care if your

child owes you money.

> >

> > >

> > > I use it for that and also a class that has taken at COD. I will also

be using a large portion of it to pay for his summer camp this year.

> > > H.

> > >

> > > SSI

> > >

> > > Can this money be used for special recreation programs? Thanks.

> > >

> > >

[Guest guest]

Thanks and Diane. This is exactly where I am right now and what I was

planning to do -- and wondering what's okay/not okay. Reading my collection of

old IPADDU posts is very useful, but when we actually start doing it there are

always questions. Reading, reading .....

> >

> > I thought we were talking about SSI here and not the Waiver.?

> >

> > I was thinking that the best way to keep track of the funds OUT of the Rep

Payee account, was to write checks and checks to myself with the purpose in the

memo of the check. Now is it ok to " repay " yourself as the rep payee for

something you paid as a lump sum for your child, over say a couple of months

because to have paid for it all directly from the rep payee account itself at

the time of purchase because at that time there was not enough money in the

account?

> >

> > For example summer camp $1125 and taking $274 each month over several

months. The checks go to the rep payees name even though in those months you

already wrote another check for " fair share expenses " already?

> >

> > I know I am probably asking really stupid questions however I am a newbie as

my son was just approved. i really dont want someone from SSA at the end of

year asking me why the other money besides the " fasir share expenses " was

supposed to be spent on the recipiant and not to me the rep payee.

> >

> > Any veterans of being a rep payee wanna chime in?

> >

> > Thanks,

> > Diane S

[Guest guest]

Looking for help in filing for SSI...they have asked me inappropriate questions

over the phone ( ie: what is our family income) so I decided to just hire this

out....my son is 19, we have legal guardianship and he has Down syndrome.

[Guest guest]

I have received many telephone calls from families that have a member with Down

Syndrome and an IQ under 50 who have been denied as being disabled by SSI. There

is a form called: Function Report - Adult.  Usually, SSI will ask for the WAIS

IQ test and the Function Report - Adult, and the chromosome test. If the

Function Report  is glowing: can do all activities of daily living

independently, can cross the street independently, can cook independently, has

no problems getting along socially with anyone.........etc.....then SSI feels

he/she can rip tickets in 1/2 at a movie theater for 8 hours a day , 5 days a

week.  Some of our answers do not truly display accurate situations: ie:

can he/she brush is teeth?  yes.   real answer: I tell him to brush

his teeth, I supply the tooth paste and I go over areas missed. See the

difference?

 

Remember: with Social Security, it is not the diagnosis as much as it is the

functional limitations:  because I have a low IQ, I cannot keep my

concentration, pace and persistance. I have problems in social settings.

I need help (physical and/or  verbal) with activities of daily living. THESE

are what Social Security is looking at. There are people with AIDS, Cancer,

Autism, Low IQ that can work. Social Security is looking for people who have

functional limitiations making them unable to work - because of their diagnosis.

I believe peoplel get denied NOT because they are not disabled - but rather

because they do not describe and have proof of their limitations. 

From: Theresa Varnet <tvarnet@...>

IPADDUnite

Sent: Sunday, July 17, 2011 9:27 AM

Subject: Re: SSI

 

The only time your income is an issue is if child is under age 18. However, if

you called in the month your child turned 18, they will still ask about your

income because he was under 18 for a portion of the month therefore ineligible

for that month unless family meets financial eligibility level.  If you apply

on the first day of the month after your child turns 18, they will not ask about

family income or resources.  If your child has an IQ under 50 and has DS, it

should be a slam dunk in applying for SSI. 

Terrie Varnet

From: roxanne.remitz <roxanne.remitz@...>

Subject: SSI

IPADDUnite

Date: Saturday, July 16, 2011, 5:54 PM

 

Looking for help in filing for SSI...they have asked me inappropriate questions

over the phone ( ie: what is our family income) so I decided to just hire this

out....my son is 19, we have legal guardianship and he has Down syndrome.