RE: Re: glutathione: capsules vs. cream now NAC ()

January 11, 2008

Phoebe has cf and Down’s

syndrome and we use breathing treatments and the vest as well. I am

pushing to get her on the hypertonic saline treatments, but our physician told

us that sometimes in very young children it can cause bleeding because their

lung tissue is so fragile. But we should be getting to use it this year.

Dinkins-Borkowski; Nolan(5) nocf, Phoebe(3) Ds

& cf

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[mailto:Down Syndrome Treatment ] On Behalf Of jmhill46619

Sent: Friday, January 11, 2008 5:13 PM

Subject: Re: glutathione: capsules vs. cream

now NAC ()

,

is 12. When he was first dxd with asthma at 2yr, it was

scarey, esp in the hospital. But he never fit the profile of asthma

(probably because of the undxd TE fistula)He has been tested for

everything from pulumonary hypertension, CF, tuberoclusis(sp?), valley

fever and other fevers. He had respiratory and renal failure earlier

this yr.

It is really frightening when you give a child nebulizer treatment to

help him breathe and it depresses his breathing further. Carol is on

the right track with saline treatments. is now dxd with

chronic lung disease. We have a prescription for the hospital pharmacy

(can't get it at a reg pharmacy) for 7% saline that does

nebulizer treatments twice a day. We also have a vest that shakes him

(CF patients use this also) because he is prone to get multiple mucus

plugs. He does not cough deep enough. Even the RT at hospital would

suction and try to " tickle " his cough response and they couldn't.

Being on this list is helpful, ask the experienced moms questions and

you'll get lots of help and research to do to help your son.

Janet

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