Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 , is 12. When he was first dxd with asthma at 2yr, it was scarey, esp in the hospital. But he never fit the profile of asthma (probably because of the undxd TE fistula)He has been tested for everything from pulumonary hypertension, CF, tuberoclusis(sp?), valley fever and other fevers. He had respiratory and renal failure earlier this yr. It is really frightening when you give a child nebulizer treatment to help him breathe and it depresses his breathing further. Carol is on the right track with saline treatments. is now dxd with chronic lung disease. We have a prescription for the hospital pharmacy (can't get it at a reg pharmacy) for 7% saline that does nebulizer treatments twice a day. We also have a vest that shakes him (CF patients use this also) because he is prone to get multiple mucus plugs. He does not cough deep enough. Even the RT at hospital would suction and try to " tickle " his cough response and they couldn't. Being on this list is helpful, ask the experienced moms questions and you'll get lots of help and research to do to help your son. Janet Quote Link to comment Share on other sites More sharing options...
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