Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 About 10 yrs ago, I talked to Dr Swenson (he used to be a high profile person involved in DS like Dr L. I forget his speciality.)I asked him about the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathing problems. At first it shot up his SATs to a good level about 96%. But during the next couple of yrs it seemed that he just stayed at 92-93%. All during this time he did have many aspirated pneumonias. Finally after reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back up again to 95%. He has been off it now for almost a yr and his SATs have stayed in the 96-97% Of course, he also had surgery this yr for an undxd TE fistula that he had since birth) so the aspirated pneumonias have not been an issue. But I do believe the NAC did contribute to my son's breathing issues. On another note, I am going to try the glut cream to further heal and strengthen my son's lungs. There is an interesting article about how 80% of oral glut does get used by the body. www.vrp.com go to articles about glutathione, it is the second one about 1/2 way down. Janet H Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Janet, I feel dumb, but what does NAC stand for? I did look up and briefly scan the article you mentioned. I'll read it more in depth later, but I was glad to find that part about 80% of oral glutathione is used by the body. So, it surely ought to do some good. 's SAT's have been suprisingly good, even though he has an unrepaired CHD. He does not have pulmonary hypertension, for which we are extremely thankful. But I am concerned because of his chronic tight cough and wheezing that takes about 2 weeks to clear up, even with breathing treatments and asthma meds. His ped said that asthma in young children can cause permanent damage to the lungs. has an appointment to see a pulmonologist, on Mon. I'm hoping he can accurately assess the condition of 's lungs. I don't know what kinds of tests they can do on a 2 yr. old. He can't blow in a tube or anything like that. My goal is to help strengthen his immune system and heal his lungs and keep medical intervention to the barest minimum possible. One mom mentioned that her child almost died from overdosing on asthma meds. That is kind of scary. Thanks! and Blessings! jmhill46619 <jmhill46619@...> wrote: About 10 yrs ago, I talked to Dr Swenson (he used to be a high profileperson involved in DS like Dr L. I forget his speciality.)I asked himabout the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathingproblems. At first it shot up his SATs to a good level about 96%. Butduring the next couple of yrs it seemed that he just stayed at 92-93%.All during this time he did have many aspirated pneumonias. Finallyafter reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back upagain to 95%. He has been off it now for almost a yr and his SATs havestayed in the 96-97% Of course, he also had surgery this yr for anundxd TE fistula that he had since birth) so the aspirated pneumoniashave not been an issue.But I do believe the NAC did contribute to my son's breathing issues.On another note, I am going to try the glut cream to further heal andstrengthen my son's lungs. There is an interesting article about how80% of oral glut does get used by the body. www.vrp.com go toarticles about glutathione, it is the second one about 1/2 way down.Janet H (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 That is very interesting, Janet. That is what I've heard when I've read stuff about NAC, because when looking up info on glutathione, NAC often comes up! When I corresponded with Dr. Jill about this kind of stuff, she said it isn't totally clear what NAC does in DS because it hasn't specifically been studied in people with DS. But, she did say they are assuming it increases OS. WIth your son's breathing issues, sounds like it may have very well increased OS. Dr. Jill says Glut cream works really for many kids. Qadoshyah Book ~ Down Syndrome: What You CAN Dowww.gotdownsyndrome.net/Book/whatyoucandobook.html Re: glutathione: capsules vs. cream now NAC About 10 yrs ago, I talked to Dr Swenson (he used to be a high profileperson involved in DS like Dr L. I forget his speciality.)I asked himabout the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathingproblems. At first it shot up his SATs to a good level about 96%. Butduring the next couple of yrs it seemed that he just stayed at 92-93%.All during this time he did have many aspirated pneumonias. Finallyafter reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back upagain to 95%. He has been off it now for almost a yr and his SATs havestayed in the 96-97% Of course, he also had surgery this yr for anundxd TE fistula that he had since birth) so the aspirated pneumoniashave not been an issue.But I do believe the NAC did contribute to my son's breathing issues.On another note, I am going to try the glut cream to further heal andstrengthen my son's lungs. There is an interesting article about how80% of oral glut does get used by the body. www.vrp.com go toarticles about glutathione, it is the second one about 1/2 way down.Janet H No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Anne, NAC stands for N-acetyl-cysteine. Qadoshyah Book ~ Down Syndrome: What You CAN Dowww.gotdownsyndrome.net/Book/whatyoucandobook.html Re: Re: glutathione: capsules vs. cream now NAC Janet, I feel dumb, but what does NAC stand for? I did look up and briefly scan the article you mentioned. I'll read it more in depth later, but I was glad to find that part about 80% of oral glutathione is used by the body. So, it surely ought to do some good. 's SAT's have been suprisingly good, even though he has an unrepaired CHD. He does not have pulmonary hypertension, for which we are extremely thankful. But I am concerned because of his chronic tight cough and wheezing that takes about 2 weeks to clear up, even with breathing treatments and asthma meds. His ped said that asthma in young children can cause permanent damage to the lungs. has an appointment to see a pulmonologist, on Mon. I'm hoping he can accurately assess the condition of 's lungs. I don't know what kinds of tests they can do on a 2 yr. old. He can't blow in a tube or anything like that. My goal is to help strengthen his immune system and heal his lungs and keep medical intervention to the barest minimum possible. One mom mentioned that her child almost died from overdosing on asthma meds. That is kind of scary. Thanks! and Blessings! jmhill46619 <jmhill46619 > wrote: About 10 yrs ago, I talked to Dr Swenson (he used to be a high profileperson involved in DS like Dr L. I forget his speciality.)I asked himabout the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathingproblems. At first it shot up his SATs to a good level about 96%. Butduring the next couple of yrs it seemed that he just stayed at 92-93%.All during this time he did have many aspirated pneumonias. Finallyafter reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back upagain to 95%. He has been off it now for almost a yr and his SATs havestayed in the 96-97% Of course, he also had surgery this yr for anundxd TE fistula that he had since birth) so the aspirated pneumoniashave not been an issue.But I do believe the NAC did contribute to my son's breathing issues.On another note, I am going to try the glut cream to further heal andstrengthen my son's lungs. There is an interesting article about how80% of oral glut does get used by the body. www.vrp.com go toarticles about glutathione, it is the second one about 1/2 way down.Janet H (one and only wife to Fred; mom to Kari, Melody, Faith, Heidi, Isaac, Josiah, , Alana, and ! Yes, they're all ours!) Is. 40:31 "They that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles, they shall run and not be weary, they shall walk and not faint." Looking for last minute shopping deals? Find them fast with Search. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 We use NAC for Phoebe’s cystic fibrosis. It does many things, but for cf patients it helps to liquefy their mucus so they can clear it out of their lungs easier. It has some effect on the immune system response as well. I can tell you in my own experience, it really does work. I had Phoebe on it for a couple of months and I ran out. After two weeks of her not being on it, she started to get congested and eventually got sick. She went back on it and things got better in about two weeks. Dinkins-Borkowski; Nolan(5) nocf, Phoebe(3) Ds & cf Watch Our Christmas Video, Click Here! From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Qadoshyah Sent: Friday, January 11, 2008 1:56 PM Down Syndrome Treatment Subject: Re: Re: glutathione: capsules vs. cream now NAC That is very interesting, Janet. That is what I've heard when I've read stuff about NAC, because when looking up info on glutathione, NAC often comes up! When I corresponded with Dr. Jill about this kind of stuff, she said it isn't totally clear what NAC does in DS because it hasn't specifically been studied in people with DS. But, she did say they are assuming it increases OS. WIth your son's breathing issues, sounds like it may have very well increased OS. Dr. Jill says Glut cream works really for many kids. Qadoshyah Book ~ Down Syndrome: What You CAN Do www.gotdownsyndrome.net/Book/whatyoucandobook.html ----- Original Message ----- From: jmhill46619 Down Syndrome Treatment Sent: Friday, January 11, 2008 7:25 AM Subject: Re: glutathione: capsules vs. cream now NAC About 10 yrs ago, I talked to Dr Swenson (he used to be a high profile person involved in DS like Dr L. I forget his speciality.)I asked him about the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathing problems. At first it shot up his SATs to a good level about 96%. But during the next couple of yrs it seemed that he just stayed at 92-93%. All during this time he did have many aspirated pneumonias. Finally after reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back up again to 95%. He has been off it now for almost a yr and his SATs have stayed in the 96-97% Of course, he also had surgery this yr for an undxd TE fistula that he had since birth) so the aspirated pneumonias have not been an issue. But I do believe the NAC did contribute to my son's breathing issues. On another note, I am going to try the glut cream to further heal and strengthen my son's lungs. There is an interesting article about how 80% of oral glut does get used by the body. www.vrp.com go to articles about glutathione, it is the second one about 1/2 way down. Janet H No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 I thought of you when I was reading some of this stuff and wondered if you used it with Phoebe for her CF. That's interesting to hear that it works so well . Qadoshyah Book ~ Down Syndrome: What You CAN Dowww.gotdownsyndrome.net/Book/whatyoucandobook.html Re: glutathione: capsules vs. cream now NAC About 10 yrs ago, I talked to Dr Swenson (he used to be a high profileperson involved in DS like Dr L. I forget his speciality.)I asked himabout the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathingproblems. At first it shot up his SATs to a good level about 96%. Butduring the next couple of yrs it seemed that he just stayed at 92-93%.All during this time he did have many aspirated pneumonias. Finallyafter reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back upagain to 95%. He has been off it now for almost a yr and his SATs havestayed in the 96-97% Of course, he also had surgery this yr for anundxd TE fistula that he had since birth) so the aspirated pneumoniashave not been an issue.But I do believe the NAC did contribute to my son's breathing issues.On another note, I am going to try the glut cream to further heal andstrengthen my son's lungs. There is an interesting article about how80% of oral glut does get used by the body. www.vrp.com go toarticles about glutathione, it is the second one about 1/2 way down.Janet H No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Me too! I have also heard it is a much better way to get the glutathione into the cells. I remember reading something about NAC being a precursor to the production of glutathione and when you have the NAC, the cells start making it on their own. I think there were some arguments about the glutathione not getting absorbed into the cells where it needs to work. They say it is because the body works on a supply/demand type system. When the body detects the extra glutathione (given as supplements or creams) it shuts down the cellular production of it because it thinks there is too much floating around, then gets rid of the extra. For patients who are deficient, this of course defeats the purpose. By giving a precursor to assist the cells to make their own glutathione, it is absorbed and used properly. That is the theory anyways! Dinkins-Borkowski; Nolan(5) nocf, Phoebe(3) Ds & cf Watch Our Christmas Video, Click Here! From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Qadoshyah Sent: Friday, January 11, 2008 5:56 PM Down Syndrome Treatment Subject: Re: Re: glutathione: capsules vs. cream now NAC I thought of you when I was reading some of this stuff and wondered if you used it with Phoebe for her CF. That's interesting to hear that it works so well . Qadoshyah Book ~ Down Syndrome: What You CAN Do www.gotdownsyndrome.net/Book/whatyoucandobook.html ----- Original Message ----- From: Dinkins-Borkowski Down Syndrome Treatment Sent: Friday, January 11, 2008 3:25 PM Subject: RE: Re: glutathione: capsules vs. cream now NAC We use NAC for Phoebe’s cystic fibrosis. It does many things, but for cf patients it helps to liquefy their mucus so they can clear it out of their lungs easier. It has some effect on the immune system response as well. I can tell you in my own experience, it really does work. I had Phoebe on it for a couple of months and I ran out. After two weeks of her not being on it, she started to get congested and eventually got sick. She went back on it and things got better in about two weeks. Dinkins-Borkowski; Nolan(5) nocf, Phoebe(3) Ds & cf Watch Our Christmas Video, Click Here! From: Down Syndrome Treatment [mailto:Down Syndrome Treatment ] On Behalf Of Qadoshyah Sent: Friday, January 11, 2008 1:56 PM Down Syndrome Treatment Subject: Re: Re: glutathione: capsules vs. cream now NAC That is very interesting, Janet. That is what I've heard when I've read stuff about NAC, because when looking up info on glutathione, NAC often comes up! When I corresponded with Dr. Jill about this kind of stuff, she said it isn't totally clear what NAC does in DS because it hasn't specifically been studied in people with DS. But, she did say they are assuming it increases OS. WIth your son's breathing issues, sounds like it may have very well increased OS. Dr. Jill says Glut cream works really for many kids. Qadoshyah Book ~ Down Syndrome: What You CAN Do www.gotdownsyndrome.net/Book/whatyoucandobook.html ----- Original Message ----- From: jmhill46619 To: Down Syndrome Treatment Sent: Friday, January 11, 2008 7:25 AM Subject: Re: glutathione: capsules vs. cream now NAC About 10 yrs ago, I talked to Dr Swenson (he used to be a high profile person involved in DS like Dr L. I forget his speciality.)I asked him about the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathing problems. At first it shot up his SATs to a good level about 96%. But during the next couple of yrs it seemed that he just stayed at 92-93%. All during this time he did have many aspirated pneumonias. Finally after reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back up again to 95%. He has been off it now for almost a yr and his SATs have stayed in the 96-97% Of course, he also had surgery this yr for an undxd TE fistula that he had since birth) so the aspirated pneumonias have not been an issue. But I do believe the NAC did contribute to my son's breathing issues. On another note, I am going to try the glut cream to further heal and strengthen my son's lungs. There is an interesting article about how 80% of oral glut does get used by the body. www.vrp.com go to articles about glutathione, it is the second one about 1/2 way down. Janet H No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Yeah, it is a much better way to get glutathione into the cells. NAC is a precursor product to glutathione, like you said. But, I've heard bad reports of NAC increasing oxidative stress in DS too, so. . . . But, Phoebe's situation is a bit different than others because of her cf. Hmm, that's interesting. I hadn't really heard that in regards to giving glutathione. Qadoshyah Book ~ Down Syndrome: What You CAN Dowww.gotdownsyndrome.net/Book/whatyoucandobook.html Re: glutathione: capsules vs. cream now NAC About 10 yrs ago, I talked to Dr Swenson (he used to be a high profileperson involved in DS like Dr L. I forget his speciality.)I asked himabout the NAC and he did not think it would hurt a DS person to take it. had been on NAC for about 3 yrs. He always had such breathingproblems. At first it shot up his SATs to a good level about 96%. Butduring the next couple of yrs it seemed that he just stayed at 92-93%.All during this time he did have many aspirated pneumonias. Finallyafter reading many, many times that NAC causes oxidative stress, when was relatively healthy period, I took him off it. I was very surprised, amazed and saddened b/c his SATs shot back upagain to 95%. He has been off it now for almost a yr and his SATs havestayed in the 96-97% Of course, he also had surgery this yr for anundxd TE fistula that he had since birth) so the aspirated pneumoniashave not been an issue.But I do believe the NAC did contribute to my son's breathing issues.On another note, I am going to try the glut cream to further heal andstrengthen my son's lungs. There is an interesting article about how80% of oral glut does get used by the body. www.vrp.com go toarticles about glutathione, it is the second one about 1/2 way down.Janet H No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.1/1219 - Release Date: 1/11/2008 10:19 AM No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.2/1221 - Release Date: 1/12/2008 2:04 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 I use the cream on and don't know if it's coincidence or not but her asthma really got better. I haven't used it much this year as she hasn't been sick( up til the whole strep deal) and her asthma still is great. I did re-order though, so will be back to using a small dose every day again.Another reason I like the cream is it's simply one less thing to try to get her to swallow! Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Carol,I am interested in both the glutathione cream and starting on gingko but how do you determine what dose would be correct and he also will not swallow any pills so I would have to find an alternate to pill form, any ideas?Thanks, MarkoCarol in IL <ps1272000@...> wrote: I use the cream on and don't know if it's coincidence or not but her asthma really got better. I haven't used it much this year as she hasn't been sick( up til the whole strep deal) and her asthma still is great. I did re-order though, so will be back to using a small dose every day again.Another reason I like the cream is it's simply one less thing to try to get her to swallow! Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 I think Dr Cody would be better suited to answer that question. ;-) I only give 75 mg ( I THINK.. my bottle is MIA) a day. I use Kirkman's in capsule form and simply open the capsule up and add honey to it. It tastes nasty, but she knows she *has* to take meds, so not much fight there. I finally broke down and bought a small mortar and pestle for grinding pills to a powder. Pretty cheap really, and well worth the money! Never crush time release meds though!!! With the glut cream, if you get diarrhea, you've given too much. That's how I tell. There is a measure included with the bottle for the standard dose. Just start very small and see what happens. Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: Marko <lkmarko@...>To: Down Syndrome Treatment Sent: Tuesday, January 15, 2008 9:15:25 AMSubject: Re: Re: glutathione: capsules vs. cream now NAC Carol,I am interested in both the glutathione cream and starting on gingko but how do you determine what dose would be correct and he also will not swallow any pills so I would have to find an alternate to pill form, any ideas?Thanks, MarkoCarol in IL <ps1272000 (DOT) com> wrote: I use the cream on and don't know if it's coincidence or not but her asthma really got better. I haven't used it much this year as she hasn't been sick( up til the whole strep deal) and her asthma still is great. I did re-order though, so will be back to using a small dose every day again.Another reason I like the cream is it's simply one less thing to try to get her to swallow! Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - http://health. groups.. com/group/ DownSyndromeInfo Exchange/ Listen to oldest dd's music http://www.myspace. com/vennamusic Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 with the gingko you can crush it . That is what I do. I have a great one that crush it into a powder !! Carol P Marko <lkmarko@...> wrote: Carol,I am interested in both the glutathione cream and starting on gingko but how do you determine what dose would be correct and he also will not swallow any pills so I would have to find an alternate to pill form, any ideas?Thanks, MarkoCarol in IL <ps1272000 > wrote: I use the cream on and don't know if it's coincidence or not but her asthma really got better. I haven't used it much this year as she hasn't been sick( up til the whole strep deal) and her asthma still is great. I did re-order though, so will be back to using a small dose every day again.Another reason I like the cream is it's simply one less thing to try to get her to swallow! Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic Be a better friend, newshound, and know-it-all with Mobile. Try it now. Hugs, Carol P. AIM iammamapie Giga iammamapie Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Thanks Carol, I did email Dr. Cody but I haven't heard back yet. I do use a pill crusher when needed and I think he is pretty good about taking things I just take the course of least resistance when available.Carol in IL <ps1272000@...> wrote: I think Dr Cody would be better suited to answer that question. ;-) I only give 75 mg ( I THINK.. my bottle is MIA) a day. I use Kirkman's in capsule form and simply open the capsule up and add honey to it. It tastes nasty, but she knows she *has* to take meds, so not much fight there. I finally broke down and bought a small mortar and pestle for grinding pills to a powder. Pretty cheap really, and well worth the money! Never crush time release meds though!!! With the glut cream, if you get diarrhea, you've given too much. That's how I tell. There is a measure included with the bottle for the standard dose. Just start very small and see what happens. Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: Marko <lkmarkosbcglobal (DOT) net>Down Syndrome Treatment Sent: Tuesday, January 15, 2008 9:15:25 AMSubject: Re: Re: glutathione: capsules vs. cream now NAC Carol,I am interested in both the glutathione cream and starting on gingko but how do you determine what dose would be correct and he also will not swallow any pills so I would have to find an alternate to pill form, any ideas?Thanks, MarkoCarol in IL <ps1272000 (DOT) com> wrote: I use the cream on and don't know if it's coincidence or not but her asthma really got better. I haven't used it much this year as she hasn't been sick( up til the whole strep deal) and her asthma still is great. I did re-order though, so will be back to using a small dose every day again.Another reason I like the cream is it's simply one less thing to try to get her to swallow! Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - http://health. groups.. com/group/ DownSyndromeInfo Exchange/ Listen to oldest dd's music http://www.myspace. com/vennamusic Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 which kind do you prefer?Thanksiammamapie <iammamapie@...> wrote: with the gingko you can crush it . That is what I do. I have a great one that crush it into a powder !! Carol P Marko <lkmarkosbcglobal (DOT) net> wrote: Carol,I am interested in both the glutathione cream and starting on gingko but how do you determine what dose would be correct and he also will not swallow any pills so I would have to find an alternate to pill form, any ideas?Thanks, MarkoCarol in IL <ps1272000 > wrote: I use the cream on and don't know if it's coincidence or not but her asthma really got better. I haven't used it much this year as she hasn't been sick( up til the whole strep deal) and her asthma still is great. I did re-order though, so will be back to using a small dose every day again.Another reason I like the cream is it's simply one less thing to try to get her to swallow! Carol in IL AIM doihavtasay1 GigaTribe doihavtasayMom to seven including , 7 with TOF, AVcanal, GERD! , LS, As thma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic Be a better friend, newshound, and know-it-all with Mobile. Try it now. Hugs, Carol P. AIM iammamapie Giga iammamapie Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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