PZT ? Re: [SPAM]Re: new to the group

[Guest guest]

I read in the article that PZT worked much the same way as Caffeine and Gingko..

Why then can't one give their child caffeine? After I read that I give a little green tea before therapies or what not.. I figure that its safer on the child until the problems with PZT are ironed out. Plus you get antioxidants ! So I wonder if the effects of PZT are longer lasting? or what?

I like to look at natural alternatives before drugs.. but this is the first I heard about the " Changing Minds " protocol. Course is only 2 yrs.. so It's not like I have been here forever : )

Steph

new to the group

Hi All,My name is Cody and Carol invited me to join this group. Thank you. We started a new foundation called the Changing Minds Foundation. It is dedicated to improving the mental abilities of those with DS. We have started a 6 person clinical study which is using a group of medications, herbs, and fatty acids. Each chosen for a specific reason. I would be happy to answer any questions anyone has on this.The protocol for the study is:Ginkgo BilobaProzacFocalin XRPhosphatidyl CholineBody Bio Balanced OilFolinic acid/B12A year and a half ago I thought theoretically this should work (my pediatrician thought so too) but of course I didn't have solid evidence.(and I will be happy to discuss each piece and why it is included) Now we are watching the fantastic changes. My son Neal has been on all of the above for 1 1/2 years and I think he has reached what I would call the tipping point. What I mean by that is that he been getting better and better but a slow steady progress and he just took a huge leap. Last fall 2006, Neal read on a kindergarten level. In one year, he advanced at a normal rate and now reads on a 2nd grade level. But what all of a sudden kicked in was that he can read a paragraph in the 2nd grade workbook and answer the questions.The entire fall of 2006, I gave up on adding and subtraction because I was doing it not him. So all we did every day was count to 100 on the 100s board and that was very hard for him. In the beginning it took him an hour to count all those numbers. He couldn't stay focused. He pronounced 30 and 40 incorrectly as well as 60,70,80 which he pronounced 16,17,18 and then at one point he flipped that. He only began working on adding and subtracting last Jan. No he can add and subtract 2 and 3 columns with carry over and borrowing. The other day I made 3 number columns to solidify that he has to add all the numbers because sometimes he would carry over and then forget to add the one. And his response was great after the first problem he got it. You know when you look at your child and you know they have it. I guess that is what I mean by the tipping point. He now gets concepts. Whereas, before he looked at me blankly. I will tell you this, this is not magic -it is work. But it is great!!!! I know I have met a lot of resistance to the idea that we should treat the symptoms of DS. I have no idea why we put ourselves in that position. OK granted no one knew what was going on before a few years ago but now there is a pretty good bead on what is causing what. The problem is that the people who understand what is going on biochemically, physiologically are the researchers. they study mice in the lab. Dr. Mobley at Stanford has tried to bring it to the clinic but it will take a long time to get there. In this country the system is set up that at this point in research the pharmaceutical company steps in. They will not be interested. There is nothing to patent and the population is too small. So how do we get this into practice?I don't know. I think we as parents have to demand treatment. There is nothing in this protocol that is difficult. Any neurologist is capable of following this. I know this is very long, but that is why we got private funding and started a small trial. So that we could show improvement so others may benefit. I'll be happy to answer and questions.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

Never miss a thing. Make your homepage.