Guest guest Posted May 10, 2000 Report Share Posted May 10, 2000 In a message dated 5/10/00 3:33:09 AM Pacific Daylight Time, egroups writes: << Lou Gehrig's disease >> My aunt, my dad's sister, died from this disease, so maybe we've got something genetic going on in our family, too..... Never thought of this before I read the article..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 I can't imagine without DS - it is an integral part of his identity and he (and others) with DS should be valued and respected like any other minority (ethnic,gender etc|) However, I can remember him before the onset of whatever is affecting him now and I AM looking for a 'cure' for that. I do want to change his behaviour - I want to help him control his anxieties, learn to relate, learn to learn. I want his days filled with laughter not self-injurous behaviour. I want him to feel like he belongs. I'm learning how to help him but I've got lots more questions for you guys......... Tell me more about PECS and how does it work with signing? We're having his urine tested for GF/CF diet - How many of you have found this effective? He seems to love SI therapy whilst we're doing it but I don't think there's any 'knock-on' effect, do you? How on earth do I choose a school!!! Have to make a decision for next year very soon!!!!! Thanks in advance Kayte In UK (where theres a lot of skeptisism about dual diagnosis) Mum to (4.5) & Grace (4 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2000 Report Share Posted May 11, 2000 Kayte, does nt respond to sign,Makaton and we have just started PECS,he really has very little desire to communicate with us and if I manipulate the environment so that he needs help to get the things he wants he drags us and uses eye pointing which is a form of communicating we pretend we dont understand him and offer the symbols but he will usually go without rather than offer a card. is gf/cf and I didnt do the test because Shattocks machinery was broken and he had a long backlog,it has cured his persistent diarrhoea but I have nt seen much change in any other area,where we live ,Swindon the children are statemented and thereisnt a choice of school,except for the most able Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2004 Report Share Posted May 11, 2004 Roy -- There is no known cure; treatment is for the SYMPTOMS but once the nerves have been destroyed, they are gone. If you tell us where you live, we may be able to recommend an experienced physician to help you. It sounds like whoever you've been going to so far hasn't done a very good job of explaining this disease (what it is, what it does, what it means) to you. You'll find lots of good educational information in the Links section on the website: achalasia/links I would start out with this article: http://www.clevelandclinicmeded.com/diseasemanagement/gastro/motor/motor.htm and then move on to the articles in the "description of achalasia" folder:achalasia/links/Diagnosis_and_Descri_001072488748/ If your surgeon wasn't extremely experienced at doing Heller Myotomies, it's possible he didn't do "enough" when he cut the LES muscle. Many people find that a dilation AFTER surgery is helpful, too. I hope you can find something to help you here -- this is a great group of supportive people and we probably have one of the single-most-extensive collections of achalasia literature known to mankind!Debbi in Michigan Cure I have been told that I have Achalasia which i have suffered with for two years and I have had two balloon treatments which worked for a short time, then i had an operation which cut the muscles, but now I appear to be suffering once again with swallowing my food. Can anyone tell me of any known cure or is it something that i have to live with for the rest of my life.Roy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2004 Report Share Posted May 12, 2004 Roy wrote: Can anyone tell me of any known cure or is it something that i have to live with for the rest of my life. There isn't really a cure, but some lucky folks get long lasting relief from the treatments you have already had. You will probably have to deal with achalasia the rest of your life. On the bright side you can stick around here and enjoy the company of others that know what you are dealing with. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 I too thought the tiredness and all my aches and pains were due to aging and stress. You mean healthy people dont get tired? or get aches and pains? Hmmm, wonder what is normal and what is not. Like when I walk every day, one park has some really steep hills and you know it is high 80's when I go out or low 90's with humidity, even worse, (TX here) I think I might die before I reach top of hill. LOL But i do feel good generally since divorce 4 years ago. LOL again. Was in a stressful marriage with lots of emotional abuse. I also had to have cataract surgery within last 2 years, darn near went blind...I need eyes to do my work! That was tough as docs dont tell you or ask you how you would like to see when they get done! They pic a lens, pop it in your eye... kind of permanent there. Now I see sparklers at dark. Kept going back to doc waiting for it to go away, well it aint!! they took away my far vision, gave me computer distance in right eye, duh... cuz I say I work at pc??? what the deal, I do other stuff too ya know, like walk, and work with close up needs, actually magnification is necessary for some of my work. I was soooo angry after surgery, Email me before cataract surgery so I can give you right questions for doc. You see they want it where you still need glasses so they can still make money, so they have there games they play. If you know how to do it, you can get distance put in and just wear reading glasses for close. That is only one medical crises I have had! Prayers up--blessings down. PrayerPraise4Hepcfriends/ tamara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 I too have experienced great fatigue and pains. During and after treatment I was a mess. Could not separate the mental from the physical. Earlier this year I could hardly walk a block. Went to dr. and had teats and I had pneumonia and low testosterone. I am always blaming crap on my antidepressant, celexa. Feel better now though. Contemplation new Peg combo tx. Don't know if I got it in me though. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Tell me what to ask, my surgery is scheduled for Sept 20th,, they are doing both cataract and removing the sarcoid membrane,, tamara <seweasy@...> wrote:I too thought the tiredness and all my aches and pains were due to aging and stress. You mean healthy people dont get tired? or get aches and pains? Hmmm, wonder what is normal and what is not. Like when I walk every day, one park has some really steep hills and you know it is high 80's when I go out or low 90's with humidity, even worse, (TX here) I think I might die before I reach top of hill. LOL But i do feel good generally since divorce 4 years ago. LOL again. Was in a stressful marriage with lots of emotional abuse. I also had to have cataract surgery within last 2 years, darn near went blind...I need eyes to do my work! That was tough as docs dont tell you or ask you how you would like to see when they get done! They pic a lens, pop it in your eye... kind of permanent there. Now I see sparklers at dark. Kept going back to doc waiting for it to go away, well it aint!! they took away my far vision, gave me computer distance in right eye, duh... cuz I say I work at pc??? what the deal, I do other stuff too ya know, like walk, and work with close up needs, actually magnification is necessary for some of my work. I was soooo angry after surgery, Email me before cataract surgery so I can give you right questions for doc. You see they want it where you still need glasses so they can still make money, so they have there games they play. If you know how to do it, you can get distance put in and just wear reading glasses for close. That is only one medical crises I have had! Prayers up--blessings down. PrayerPraise4Hepcfriends/ tamara It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 > Tell me what to ask, my surgery is scheduled for Sept 20th,, they are doing both cataract and removing the sarcoid membrane,, > First off, do not be nervous or scared of surgery. The very worst is all the eye drops you get bombarded with. The most pain before during or after is the iv needle stick. ] Before surgery, they do all kind of vision testing and put your numbers in, then ask you what you do the most, I said I sew and when asked about computer i said yes. I have not needed glasses except for astigmatism, and after 43 close up work. I could always see far off until cataract. eyes went bad quickly! one did anyway. After surgery, I kept going back to doc saying it was all blurry like under water! Well, I never had a distance problem, besides it looks like 4'th of July at night now, cant drive nights any more since surgery. Doc lied said I would be able to see 20/20 after surgery, after surgery he changed it to 20/20 with correction????? I had to see retinologist, and get more testing. Very expensive! I believe that was a doctor to doctor hook up too, more money...then after all test and complaints, doc says, well it looks excellent (surgery) all is well go home leave me alone. Talk about depressed! And to top it my glasses were not sufficeint, they kept changing them, never got right. I finally got appt with county hospital, he tweeked vision in glasses, it helps. I drive with a contact for slight vision help to left eye nothing for right, it sees the dash. That is called monovision when you see each eye different with correction and balance it out. When at home, I wear glasses to work and see cause am doing needlework stuff all the time or reading. It just seemed like a big trick to me, and this is a well known doc and practice...However you see now before need of surgery is how you probably want to see afterwards, so make sure he gives you lens for that. I have friends that had teh surgery and see very well. Also, if you cloud up afterwards it is a simple procedure to do something to lens to fix that. When I saw other doc at county, he said the surgery was nice but said my eyes are totally different, duh...figured that one out. You will do fine, it is a breeze to go thru as long as you get what you want! hugs Tam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 a1thighmaster wrote: > No matter who says it, it is still a false statement. Without clinical > proof it is unethical to claim a cure, Why? I have to take you up on that statement!!! Take the cat cases with FIP for example. No vet has yet managed a cure a single cat of FIP. Not one - not anywhere on the planet. Yet cats diagnosed by vets and recommended for euthanasia have come to me - their owners used homeopathy based on my suggestions - and years later the cats are still fit and healthy. So tell me ETHICALLY - why those can not be called cured? Also tell me why the breast cancer I had in 2000 and which I treated with homeopathy so that it was gone in under a month starting with a hot 2 inch tumour - and is still gone (always will be as homeopathy removes the cause and replaces it with resistance) - can not be called a cure for " ethical " reasons? What's " ethical " about DENYING me the " cure " word???????? That seems to me the better question surely! After all any doctor claims a cure if the patient is alive after 5 years. He need not do a " clinical study " first!! Why should I? > but people are still allowed to > do it. So I always look for proof. Cats alive many years after the vet says they are terminal is not proof? My missing breast cancer is not proof? What proof would you call " ethical " enough? What about my leg that had gangrene in 1984 and which narrowly missed amputation thanks to meeting a homeopath. Is it not " cured " enough? It works same as the good one:-)) But it is unethical in your book to call it cured of gangrene without a clinical study? How is that realistic? Are all the cat, dog, pig, sheep, horse, cow, dog etc animals of my clients fully healthy but " uncured " then? They are very happily uncured if so :-)) This whole nonsense of using allopathic yardsticks to measure cures is like insisting on using a ruler to measure water. Each system needs its own yardstick. To a homeopath a double-blind trial is a joke! It is a bunch of experiments with an opinion on the outcome, based on no principles of nature whatsoever and which provides zero assurance against a repeat episode. To a homeopath it is not cure till you can SHOW there is resistance to recurrence!!! So to a homeopath nothing in the so-called " scinetific " world (a misnomer in many cases) cures anything at all and they are the ones who should not be claiming a cure " ethically " !! I see it differently: Being " alive " 5 yrs later regardless what ugly chemicals or ill health exists is not " ethically " a cure in *my* book :-))) But having great health and resistance to recurrence of the illness - is what *I* call cure. No allopath meets that standard:-)) They can't because it is not even an objective of allopathy to build resistance to recurrence. Note all the babies with ear infections that recur over and over again for example despite more and more toxic antibiotics .... except with homeopathy. With homeopathy you fix it once with resistance to recurrence and no toxicity - and that's that. But heaven forbid that be called a cure as it would be unethical????? How do you figure that? Namaste, IRene -- Irene de Villiers, B.Sc AASCA MCSSA D.I.Hom. Box 4703 Spokane WA 99220. www.angelfire.com/fl/furryboots/clickhere.html (Veterinary Homeopath.) Proverb:Man who say it cannot be done should not interrupt one doing it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 So they came after Jesus to arrest him and he told them " you tell that fox Herod, that I am here CURING disease " ...........yet this is a dissallowed term. much like saying perpetual motion in the energy field......while a Japanese man is selling a magnet motor cieling fan that is not plugged in to anything...Americans are spanked into fearing the concept. .....so it is with the word cure. I am here to tell you there is a CURE for every disease. There are many wonderful cures placed here in nature....it can even be argued that it is natural to do dna cures. Through electrophoresis you can escort a missing characteristic into the chromosome and completely correct a disease. Of course you need a healthy lifestyle. One good thing does not contend with the other good thing. Look for instance at the characteristic in the one family in Italy that make a protein in their blood that allows them to virtually drink tractor grease and clean their veins out anyway. This characteristic has been transferred so that people with familiar hypercholestoremia can live instead of die young with plugged up veins.Yet, the technology is not given to the sick and dying....it is hidden. Well people should quit eating grease, but some people cant, so maybe like the one brother said they could take enzymes, but the continued intake of grease can also cause cancer and diabetes so we see we need to be wholistic and not look for a quick fix, but if your mamma is dying on a bed in front of you and you do not uplift medical answers and cures which abound and could save her life then you are really a good cult member for the special interests. dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2012 Report Share Posted January 7, 2012 Hi there cure how have you been doing? i started a couple weeks ago all my friends are envious of me http://tinyurl.com/6usonjm Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.