Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Thats great news Pete. were you into stage 4 cirrhosis?. Did I read that right? It was a Roche study using Shering drugs? Stranger things can happen I guess. Happy for you.....your friend...ric Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 > > Thats great news Pete. were you into stage 4 cirrhosis?. Did I > read that right? It was a Roche study using Shering drugs? > Stranger things can happen I guess. Happy for you.....your friend...ric I'm stage 1 inflmation only. The fatigue has been bad enough at this level - I can sympathize with those with worse damage than me. It was a Schering Study and I was in the control group using Roche drugs. I had a very standard dosage: 1 ml of interferon and 1200 mg of ribavarin daily. That ribavarin is what is giving me sides - getting a persistent cough from it. Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 > We all have our bd moments Pete......but right now it's time to > > CELEBRATE! > > To bad I can't put graphics......but imagine balloons and a sign with bright > colored letters that says..... > > CONGRATULATIONS!!!! > > Love, > Nursey Thanks so much for the good vibes. The struggle is so much easier when we have companions of like mind. I feel like reaching to hug everybody here. Togeather Each Achieves More Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Congatulations!!! Yes you are heading in the right direction and will continue to do so. okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Hugs to ya okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 annita please let us all know what you find out about your thyroid,, if you dont like this doc, then go to another one,, dont give up! ms seven wonders <okseven_7@...> wrote: Hugs to ya okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Im waiting for the nurse to call be back I just called she was with a patient okseven_7 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Hey Jackie this was the person that gave the ultrasound to me and a dr checked it out too. I know hes knows it there from his reaction to feeling but yet he is saying nothing its sticking out you can see it by my throat If its not thyroid what else could it be > Hugs to ya > > > okseven_7 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2005 Report Share Posted August 11, 2005 Jeezzzz Guys, you're gonna have me exhausted!!! I'm so thrilled for you Pete. Way to Go you phenomenal Dragon Slayer you! *Doing the patented Kanga Dance* Love anne Good news People I have some good news. Yesterday I was told I cleared the virus, after 8 weeks of treatment. I have genotype 1b, have had it for 33 years, and viral load had been as high as 16 million. I was taking Roche drugs as part of a Schering Plough study for patients with genotype 1. I had inflamation without fibrosis. So all I can say is, never give up hope. Don't let anyone scare you from trying your best to beat this disease. Of course, although yesterday was the day everyone with hep c hopes for, the day you learn you have cleared the virus, I'm not out of the woods yet but certainly headed in that direction. 40 weeks of treatment remain, and I could end up with some damage from the treatment. At least now I can plan ahead, feel confident I'm not being sucked into a slow downward spiral, maybe get a girlfriend, etc. One of the worst things about hep c is the cloud it hangs over your head. I feel that's gone now. Woohoo. What a long strange trip it's been. This group has a great spirit. People sharing mostly positive energy. Keep up the good work. Sure, some people need chewing out once in a while for venting a little too much despair. But I feel we should tolerate some bad behavior. The important thing is to include everybody with hep c into this group. This should be a place to share our crying towels or celebrate each other's success. Just try to be nice! my best to all Pete It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Congrats, Pete! Cleared at week 12, (15 down, 33 to go...) On 8/11/05, anne <kanga2@...> wrote: > Jeezzzz Guys, you're gonna have me exhausted!!! I'm so thrilled for you > Pete. Way to Go you phenomenal Dragon Slayer you! > > *Doing the patented Kanga Dance* > > Love > anne > > Good news > > > People I have some good news. Yesterday I was told I cleared the > virus, after 8 weeks of treatment. I have genotype 1b, have had it for > 33 years, and viral load had been as high as 16 million. I was taking > Roche drugs as part of a Schering Plough study for patients with > genotype 1. I had inflamation without fibrosis. > > So all I can say is, never give up hope. Don't let anyone scare you > from trying your best to beat this disease. > > Of course, although yesterday was the day everyone with hep c hopes > for, the day you learn you have cleared the virus, I'm not out of the > woods yet but certainly headed in that direction. 40 weeks of > treatment remain, and I could end up with some damage from the treatment. > > At least now I can plan ahead, feel confident I'm not being sucked > into a slow downward spiral, maybe get a girlfriend, etc. One of the > worst things about hep c is the cloud it hangs over your head. I feel > that's gone now. Woohoo. What a long strange trip it's been. > > This group has a great spirit. People sharing mostly positive energy. > Keep up the good work. Sure, some people need chewing out once in a > while for venting a little too much despair. But I feel we should > tolerate some bad behavior. The important thing is to include > everybody with hep c into this group. This should be a place to share > our crying towels or celebrate each other's success. Just try to be nice! > > my best to all > > Pete > > > > > > > > It's a pleasure having you join in our conversations. We hope you have > found the support you need with us. > > If you are using email for your posts, for easy access to our group, just > click the link-- > Hepatitis C/ > > Happy Posting > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 > Congrats, Pete! > > Cleared at week 12, > > (15 down, 33 to go...) Way to go ! I was exercising today and thinking how different it is now that my virus is cleared. The liver is not working so hard to filter out virus, so that no longer causes my fatigue. It seems I'm able to exert myself a little more than before, though with my low red blood cell count, I'm still not able to work out hard. But I'm wondering if I'll be able to ramp up and finally build strength as treatment goes on and the liver gets even healthier. I'd appreciate any comments on that from those who've been there, done that. Just hope I can survice the reamining 40 weeks of treatment without damage. Pete Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 i also have a rash where i took my first shot last week. didnt show up for a day or so but its still there just where the shot was lol didnt know what it was --- s <jumpinjive@...> wrote: --------------------------------- Since I mostly post to whine about the sides, I thought I'd post something positive. :-) After about two months of a rash on my torso and arms that I could swear got worse every day, I'm finally seeing a bit of improvement. It seems to be getting a bit better in the area where it first started. Maybe it's running it's course. One more week 'til halfway, 23/48 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 When I was doing the peg/riba, I used to get a red, round circle around the place I gave myself that shot. I tried to go in a different place every time but that didn't work out too well. Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 haha judi same thing with me,, I tried to make a pattern,haha,, plus,, I went out and bought a two headed stuffed dragon and every week when I did my shot, I stuck a hatpin in the stuffed dragon. It was pretty funny but it was my way of showing myself that I was making progress in tx.. then when I had to use procrit and neupo, I started running out of places to stick the pins in,, haha,, when I was done with it,, my granddaughter wanted it, so I pulled all the pins out and gave it to her,,she still has it too! --- judi <judirachel@...> wrote: > When I was doing the peg/riba, I used to get a red, > round circle > around the place I gave myself that shot. I tried > to go in a > different place every time but that didn't work out > too well. > > Judi > > > > Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 After running out of places on my thighs and stomach. I let me hubbie use me for dart practice and he will give me them in the buttock. So one week thighs, one week stomach and one week buttocks. Gives me three areas to abuse. LOL Love Janet judi <judirachel@...> wrote: When I was doing the peg/riba, I used to get a red, round circle around the place I gave myself that shot. I tried to go in a different place every time but that didn't work out too well. Judi It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 I did alphainterferon/ribaviron and am 2 years undetectable. I have physical scars from injection site reactions. They are dark brown circles about the size of a dime. My injection site wiuld turn red and puff up to about the size of a Silver Dollar.I much as I thought about it though, I never could bring myself to give my shot in the belly. Bill --- judi <judirachel@...> wrote: > When I was doing the peg/riba, I used to get a red, > round circle > around the place I gave myself that shot. I tried > to go in a > different place every time but that didn't work out > too well. > > Judi > > > > __________________________________ - PC Magazine Editors' Choice 2005 http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 can we get a picture of that Janet?? ric I don't know a damned thing other than what I know and what I know isn't always right. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 Ric, You are a *sick* man! But then, we knew that, didn't we? Sal Re: Re: good news can we get a picture of that Janet?? ric I don't know a damned thing other than what I know and what I know isn't always right. It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- Hepatitis C/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 (Ric, I am afraid that they would close the group down if I posted a pic of my buttock. Hmmm could be I am Forrest Gump?? Love and laughter ) Janet (you ain't seeing my butt) > > > can we get a picture of that Janet?? ric > > I don't know a damned thing other than what I know > and what I know isn't always right. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2005 Report Share Posted November 18, 2005 Congrats on the new job. My wife's company, Shared Care Inc (see sharedcareinc.com) is looking for people to contract to develop her web site further along the database lines. If this something your new company does? If so we can send them an outline to bid on. That sounds great. Let us know when you need more input. I will try to add a little every few days. For example: Now we want to know if you eat licorice or licorice flavoring candy, chew licorice flavored chewing tobacco or take any licorice flavored meds or supplements or magic potions. If you have never been asked this question then you have never been seen by a hypertension specialist who is worth his/her salt or blood pressure. The reason we want to aks this is that the flavoring in licorice (glyzrhinnic acid) can cause severe high blood pressure, and low K. It does this by blocking the enzyme that protects the kidney from cortisol which is the adrenal hormone that is normally in the blood (1000 x more that aldo). Normally cortisol cannot get to the mineralocorticoid receptor(MC) because in the renal tubule cells the enzyme 17hydroxylase chews up cortisol so it cant get to the MC receptor and cause sodium retention. Licorice blocks this enzyme, cortisol activates the MC receptor which makes sodium channels on the urine side of the tubule cell. This lets sodium leak out of the uring (diffuse) into the cell and it is pumped back into the blood at the blood side of the cell by a sodium pump. There is also a Na/K,H pump at the urine side which pumps K or H into the urine as the Na comes in to maintian electrical neutralily in the cell. The high urine K causes low blood K and the highe urine H causes low H ion in the blood called alkalosis. I would think the question would be something like: Do you ever eat licorice or take in any licorice substance. Pull down response would be No or Yes. If Yes we ask for more details. Another pull down might be why are we asking this? This would link to the longer explanation as to why. Not all may want the explanation. Also we should have links to licorice web sites and/or a few references or tell then to search pubmed for more information by searching for licorice and hypertension. I have a short power point presentation that also covers this we could have at the site. Havent looked to see what wikipedia has. May your pressure be low! Clarence E. Grim, BS (Chem/Math), MS (Biochem), MD, FACP, FACC, FAHS Clinical Professor of Medicine and Epidemiology Director, Hypertension Diagnosis and Treatment Center Board Certified in Internal Medicine, Geriatrics and Hypertension Published over 220 scientific papers, book chapters and 220 abstracts in the area of high blood pressure epidemiology, physiology, endocrinology measurement, treatment and how to detect curable causes. Listed in Best Doctors in America Specializing in Difficult to Control High Blood Pressure and the History and Physiology of High Blood pressure in the African Diaspora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 KAT OMG I'M SO HAPPY FOR YOU GUYS!!!! This is awesome!! Thank God.. love D PS.. lol sorry I didn't mean to leave you out. I'm incredibly excited for you guys. kathyshel2000 <kathyshel2000@...> wrote: HI HOPE EVERYONE IS OK AND HAVING A NICE WEEK. WE ARE FINE AND GOING TO BE DOING BETTER SOON I MAY EVEN TAKE SOME DAYS OFF. THE PUPPIES ARE HERE THEY WERE BORN ON SAT WE HAVE FIVE NOW HES BLACK AND WHIE SHES BROWN AND WHITE 3 OF THE PUPPIES ARE BLACK AND GRAY 1 BLACKAND WHITE AND 1 BROWN AND WHITE THEY ARE SO UGLY THEY ARE CUTE.MICHEAL SORRY TO HEAR ABOUT THE BABY HOPE SHE DOES WELLD GLAD THAT YOU GOT APPROVED AND SO DID WE !!!!!!!!!!!!!!!!! KAT AND DONALD Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Woooo hooooo! Great news, Kat De GOOD NEWS D GLAD THAT YOU GOT APPROVED AND SO DID WE !!!!!!!!!!!!!!!!! KAT AND DONALD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Yeah what De said! Allan with 2 L's RE: GOOD NEWS Woooo hooooo! Great news, Kat De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of kathyshel2000Sent: Monday, April 03, 2006 11:26 PMHepatitis CSupportGroupForDummies Subject: GOOD NEWS D GLAD THAT YOU GOT APPROVED AND SO DID WE !!!!!!!!!!!!!!!!! KAT AND DONALD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 What kind of puppies are they.I mean the breed.Puppies are fun to have around. Gail -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of kathyshel2000Sent: April 3, 2006 8:26 PMHepatitis CSupportGroupForDummies Subject: GOOD NEWSHI HOPE EVERYONE IS OK AND HAVING A NICE WEEK. WE ARE FINE AND GOING TO BE DOING BETTER SOON I MAY EVEN TAKE SOME DAYS OFF. THE PUPPIES ARE HERE THEY WERE BORN ON SAT WE HAVE FIVE NOW HES BLACK AND WHIE SHES BROWN AND WHITE 3 OF THE PUPPIES ARE BLACK AND GRAY 1 BLACKAND WHITE AND 1 BROWN AND WHITE THEY ARE SO UGLY THEY ARE CUTE.MICHEAL SORRY TO HEAR ABOUT THE BABY HOPE SHE DOES WELLD GLAD THAT YOU GOT APPROVED AND SO DID WE !!!!!!!!!!!!!!!!! KAT AND DONALD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 amen, I'm so happy for you . i cried when i read that. i would love for you to stay a member,remember a few things clear does not mean the virus is not there its could be below the detectable limits refrain from alcohol,and other harmful things and i pray that it stays 0 wtg and i truly am so very happy for you. How low will we go? Check out Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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